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PRODID:-//Turner Syndrome Foundation - ECPv6.18.0//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;VALUE=DATE:20260912
DTEND;VALUE=DATE:20260913
DTSTAMP:20260810T171329Z
CREATED:20260703T195944Z
LAST-MODIFIED:20260810T171329Z
UID:10003162-1789171200-1789257599@turnersyndromefoundation.org
SUMMARY:FXT Golf Outing
DESCRIPTION:Join the Arensdorf family for the 1st Annual Golf Outing Fundraiser benefiting the Fragile X Foundation and the Turner Syndrome Foundation. The event will feature an 18-hole shotgun start at 8:00 AM with a meal to follow. Registration will begin at 7am. All proceeds from the outing will be distributed between the two foundations\, supporting their missions to advance research\, education\, advocacy\, and family support programs. We look forward to a day of golf\, camaraderie\, and giving back to these important causes. If you’re not a golfer or can’t attend the outing\, you can still be part of the event by making a donation to one of our benefiting foundations. \nSupport the Fundraiser:\nDonate online\nhttps://givebutter.com/gtFZVj/fxtgolfouting \nMail your donation:\nTurner Syndrome Foundation\nPO Box 726\, Holmdel\, NJ 07733 \nLearn more: https://www.facebook.com/events/995941449474752/ \n 
URL:https://turnersyndromefoundation.org/event/fxt-golf-outing/
LOCATION:19858 E Pleasant Grove Rd\, 19858 E Pleasant Grove Rd\, Peosta\, 52068\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/FXT-Golf-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260828T190000
DTEND;TZID=America/New_York:20260828T210000
DTSTAMP:20260805T172121Z
CREATED:20260702T171221Z
LAST-MODIFIED:20260805T172121Z
UID:10003160-1787943600-1787950800@turnersyndromefoundation.org
SUMMARY:BlueClaws vs Wilmington Blue Rocks
DESCRIPTION:Turner Syndrome Community Event\n8/28 7:05 PM – Jersey Shore BlueClaws VS Wilmington Blue Rocks at ShoreTown Ballpark Lakewood\, NJ 08701 \n \nBaseball and Turner Syndrome… As good as it gets! \nJoin us at the BlueClaws Baseball Game on August 28th for the 2nd Turner Syndrome Foundation community event. The game starts at 7:05 pm. Tickets are $20 per person. TS patients are free. This year\, we are offering a special 6-pack of tickets for the price of four. We hope the event will be a sell-out! \nTurner Syndrome Foundation is a community partner of the Jersey Shore BlueClaws Minor League Baseball team of the South Atlantic League and the High-A affiliate of the Philadelphia Phillies. \n \nThe Jersey BlueClaws Stadium is located in Lakewood\, New Jersey\, and is named for their location on the Jersey Shore and blue crabs native to the area. \nThe BlueClaws play their home games at ShoreTown Ballpark. 6500 people attend the games. \n \nThe BlueClaws are going to play ball with Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nQuestions? Email Lori Kobular lkobular@tsfusa.org —– Turner Syndrome affects 1 in 2\,000 females. We can help.
URL:https://turnersyndromefoundation.org/event/blueclaws-vs-wilmington-blue-rocks/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/BlueClaws-Cover-Photo.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260822T120000
DTEND;TZID=America/New_York:20260822T170000
DTSTAMP:20260717T183237Z
CREATED:20260511T214134Z
LAST-MODIFIED:20260717T183237Z
UID:10002934-1787400000-1787418000@turnersyndromefoundation.org
SUMMARY:Summer Social at Liberty Lake\, Bordentown\, NJ
DESCRIPTION:Summer Fun with Friends!\nA Day of Connection\, Nature\, and Community\nJoin the Turner Syndrome Foundation for a meaningful one-day retreat designed for girls\, women\, and families living with Turner syndrome. Set in a peaceful\, nature-based environment\, this experience offers something rare and powerful: the opportunity to connect with others who truly understand the journey. For many\, this is more than an event—it’s a turning point.\n  \n \nEvent Details \nLocation: Liberty Lake Picnic\nBordentown\, New Jersey \nDate: Saturday\, August 22\, 2026\nTime: 12:00 PM – 5:00 PM (EST) \nRain or shine\, the event will take place as scheduled. \nSpread the word and print out a flyer! \nParticipants will: \n\nBuild genuine\, lasting friendships\nStrengthen confidence and independence\nLearn practical life and health insights\nExperience the relief of being seen\, understood\, and supported\n\nAs many attendees describe\, it is life-changing. \nWhat to Expect \nThis one-day social retreat is designed to foster connection in a relaxed\, welcoming outdoor setting. \nHighlights include: \n\nCommunity-building activities and group engagement\nOutdoor recreation\, including swimming\, games\, and seating under a shaded pavilion\nShared meals and informal networking\nA supportive\, inclusive atmosphere for all ages\nThis is a community-focused experience—centered on connection\, conversation\, and simply enjoying time together.\n\nRegistration includes: \n\n\n\nFull access to Liberty Lake activities\nMeals and refreshments throughout the day\nEntry into a safe\, welcoming community experience\nCapacity is limited to preserve a high-quality\, connected experience.  Early registration is strongly encouraged.\nScholarships are limited and reserved for individuals with Turner syndrome.  Availability is based on need and supported by donor funding.\n\n\n\nJoin the Turner Syndrome Foundation for its Annual Community Day for fun in the sun at Liberty Lake Picnic in Bordentown\, NJ. Rain or shine\, the event will go on!! This event is for all ages and is a great way to meet new people! \nCommunity Social!\nThis will be a strictly social and friendly networking event! Individuals and families affected by TS are invited to spend the day together\, interacting and having fun. Talking among yourselves and as a group. There will be no professional medical presentations. We want to get to know you and you to get to know one another! \nThere will be fun!\nActivities include enjoying the great outdoors with games\, swimming\, mini golf\, good food\, new friends\, and more! There are two pools and dressing rooms\, so be sure to bring your towels & swimsuits!  Food and drinks are provided all day\, right under our pavilion\, with gluten-free options available upon request. Coolers are permitted (no glass bottles\, please). Surrounded by nature\, nestled under a covered pavilion reserved just for our group\, you will find ample tables\, shade from the sun\, and seating. \nRegistration:\nEvent registration includes entrance to the park for the Turner Syndrome Foundation’s Community Day and meals. Family and friends are welcome to join the TSF Community Day. You can sponsor the event to support TSF in providing a limited number of free event tickets for individuals with TS.  Please support our efforts by sponsoring this event so everyone can enjoy this day! \nOvernight Accommodations \nWhile this is a one-day retreat\, guests traveling from outside the area are welcome to extend their stay. A curated list of nearby hotels and accommodations in the Bordentown area will be provided upon registration to help you plan your visit with ease. \nBecome a Sponsor: Make This Experience Possible \nRegistrations are non-refundable and non-transferable. A limited number of scholarships are available for individuals in need.  If you have questions\, please call (732) 847-3385 for assistance.
URL:https://turnersyndromefoundation.org/event/summer-social-at-liberty-lake-bordentown-nj/
LOCATION:Liberty Lake Picnic\, 1195 Florence Columbus Rd\, Bordentown\, NJ\, 08505\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Liberty-Lake-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260620T190000
DTEND;TZID=America/New_York:20260620T220000
DTSTAMP:20260506T182506Z
CREATED:20260130T195416Z
LAST-MODIFIED:20260506T182506Z
UID:10002886-1781982000-1781992800@turnersyndromefoundation.org
SUMMARY:Jersey Shore BlueClaws X TSF
DESCRIPTION:The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive\, A Red Sox affiliate\, at ShoreTown Ballpark in Lakewood\, NJ. \n \nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nHere are the details for the game on Saturday\, June 20\, 2026: \n\nOpponent: Greenville Drive (Boston Red Sox affiliate)\nLocation: ShoreTown Ballpark\, Lakewood\, New Jersey\nTime: 7:05 PM EDT\nSpecial Event: The BlueClaws will play as the “Jersey Shore Locals” in a special theme night for Irish Heritage!\n\n \n25th Anniversary: The 2026 season marks the 25th anniversary of the BlueClaws. More details to follow. Save the date! \nWant to Volunteer? Contact Lori Kobular at lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/jersey-shore-blueclaws-x-tsf/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260606
DTEND;VALUE=DATE:20260607
DTSTAMP:20260515T163842Z
CREATED:20260506T175708Z
LAST-MODIFIED:20260515T163842Z
UID:10002933-1780704000-1780790399@turnersyndromefoundation.org
SUMMARY:MLB Miami Marlins vs Tampa Rays Baseball Game 'Strikeouts for Ellis'
DESCRIPTION:Peter and Lydia Fairbanks invite you to support the Turner Syndrome Foundation\n  \nTS Community Day on June 6\, 2026 \nMiami Marlins vs. Tampa Rays game in Miami\, FL \nGrab Bag Fundraiser\n\nOrder Tickets\nOrder Strikeouts for Ellis Merchandise \n  \nYour support brings hope to many. Thank you for your donation. \n \n \n \n \n \nORDER STRIKEOUTS FOR ELLIS MERCHANDISE \n \n  \n \nAfter an abnormal ultrasound and weeks of waiting for test results\, we were told that our daughter\, Ellis\, likely had Turner syndrome at 9 weeks gestation. Ellis was with us for a total of 19 weeks and six days gestation. Those weeks were extremely difficult. The unknown of the diagnosis\, difficulty receiving care\, and the odds that were repeated to us every appointment made it difficult to see the light. Despite the darkness at times\, we cherish those weeks because Ellis met milestones we were told she wouldn’t\, and she taught us the importance of life and being present. Ellis was a fighter. Throughout this journey of diagnosis and loss\, Peter and I have learned that there is a gap in the system. Reaching out to the Turner Syndrome Foundation taught us that there are many others experiencing the same battles. We are motivated to help the Turner Syndrome Foundation bridge the gap between diagnosis and care. This season\, we vow to honor Ellis and other families who have experienced loss. We vow to Rays Up for those who beat the odds and raise awareness for Turner Syndrome and the resources that are out there. \n \nThis season\, we will participate in two initiatives to raise awareness and support for the Turner Syndrome community: Strikeouts for Ellis and the Rays Up for Turner Syndrome online auction. We appreciate all the support in advance. Peter and I know we are not alone\, and we want others to know they are not alone\, either. \nWe can make a difference!\nWith Love\, Peter and Lydia Fairbanks \n \nStrikeouts for Ellis\nAll season-long\, when you hear “With that strikeout\, Peter Fairbanks and his wife\, Lydia\, will donate $200 to the Turner Syndrome Foundation. Follow Pete and the Major League Baseball team\, the Miami Marlins\, for more information and know that TSF is being supported in honor of Ellis. \nMLB Stats: https://www.mlb.com/player/pete-fairbanks-664126 \nMedia: https://www.espn.com/mlb/story/_/id/48406953/pete-fairbanks-gets-start-leaves-marlins-birth-child \nMedia:  https://mlbn-distro.mlb.com/temp/20240728-MLB-ROKU-PETE-TRICIA-POST-346008.mp4 \nMedia: https://x.com/Ry_Bass/status/1818298972886159671
URL:https://turnersyndromefoundation.org/event/fairbanks-strikeout-for-turner-syndrome-2/
LOCATION:Tampa Bay Rays\, Tropicana Field\, St. Petersburg\, FL\, 33705\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/IMG_1273-scaled.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T110000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260409T193146Z
CREATED:20260409T190903Z
LAST-MODIFIED:20260409T193146Z
UID:10002925-1777892400-1777928400@turnersyndromefoundation.org
SUMMARY:Freddy's for TSF
DESCRIPTION:Join Freddy’s as they support Turner Syndrome\nMay 4\, 2026 \n11am – 9pm \n2136 Route 35 South\, Holmdel\, NJ\, 07733 \nHow To Participate:\n\nIn-Store\n\nShow flyer or say “I’m here for the fundraiser” at checkout\n\n\nOnline/Mobile\n\nUse Promo Code: GIVEBACK\n\n\n\nFreddy’s is proud to contribute 15% of event sales
URL:https://turnersyndromefoundation.org/event/freddys-for-tsf/
LOCATION:2136 ROUTE 35 SOUTH\, HOLMDEL\, NJ 07733\, 2136 Route 35 South\, Holmdel\, NJ\, 07733\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Freddys-Fundraiser-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T173000
DTEND;TZID=America/New_York:20260401T183000
DTSTAMP:20260318T171659Z
CREATED:20260318T171659Z
LAST-MODIFIED:20260318T171659Z
UID:10002919-1775064600-1775068200@turnersyndromefoundation.org
SUMMARY:TSF Butterfly Bake Sale
DESCRIPTION:Join Kaitlin and her daughter for a sweet cause! TSF Butterfly Bake Sale Bake Sale brings the community together to support individuals living with Turner syndrome and to help spread knowledge about this condition. Enjoy a delicious selection of baked goods while contributing to an important mission. \n\nWestwood Village Mall – 2600 SW Barton Street\, Seattle\, WA\nApril 1st 5:30pm\n\n“I have been following TSF for about 3 years now and because my daughter was diagnosed with TS I didn’t know much about TS until I found TSF and I appreciate everything that TSF does” – Kaitlin \n  \n 
URL:https://turnersyndromefoundation.org/event/tsf-butterfly-bake-sale/
LOCATION:Westwood Village Mall\, 2600 SW Barton Street\, Seattle\, WA\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/Bake-Sale-Flyer-Kaitlin-Wagner-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20260201T110000
DTEND;TZID=America/Kentucky/Louisville:20260201T140000
DTSTAMP:20260119T213045Z
CREATED:20260119T213045Z
LAST-MODIFIED:20260119T213045Z
UID:10002884-1769943600-1769954400@turnersyndromefoundation.org
SUMMARY:LSU Lady Tigers Game Turner Syndrome Awareness Half-Time Photo Opportunity
DESCRIPTION:Alabama Crimson Tide at LSU Tiger Womens Basketball \nTURNER SYNDROME\nBATON ROUGE\, La. – LSU women’s basketball will help raise awareness and money for Turner Syndrome\, a cause close to Head Coach Kim Mulkey\, at the February 1 game against Alabama in the PMAC. \n(center) Coach Mulkey’s daughter Makenzie Fuller\, granddaughter Sage\, grandson Kannon\, & son-in-law Clay. Photo by Kristen Young\n“This cause is personal to me and my family because of the loss of Scout Marie\,” Mulkey said. “My daughter (Makenzie Fuller) had to deliver a stillborn at 20 weeks\, and she will always be a part of our lives. We will continue to talk about and raise awareness for Turner Syndrome\, now and always. I didn’t know about Turner Syndrome before it affected our family\, and I want to make sure everyone knows about the life-altering condition before it affects them.” \nAt the game on February 1\, LSU will honor Turner Syndrome survivors on the court. They are welcoming anyone affected by Turner syndrome to be recognized on the court at halftime as a group. \nT-shirt sales support the Turner Syndrome Foundation. The online order form has closed. \nBuy Tickets
URL:https://turnersyndromefoundation.org/event/lsu-lady-tigers-game-turner-syndrome-awareness-half-time-photo-opportunity/
LOCATION:Online
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2023/03/Believe-in-Miracles_LSU-Sports-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251024T180000
DTEND;TZID=America/New_York:20251024T200000
DTSTAMP:20251023T182716Z
CREATED:20251023T182610Z
LAST-MODIFIED:20251023T182716Z
UID:10002853-1761328800-1761336000@turnersyndromefoundation.org
SUMMARY:BooClaws Spooktacular October 24th with Ghostbusters
DESCRIPTION:Family Fun Night…. Who ya gonna watch? \nThe sixth annual BooClaws Spooktacular returns to ShoreTown Ballpark on Friday\, October 24th when the 1984 classic Ghostbusters is shown on the video board! Tickets are $10 pp \nFans are encouraged to come in costume. Gates open at 6:00 pm\, and the movie begins at 7:00 pm. \nActivities surrounding the movie include early trick-or-treating on the concourse\, a costume parade\, a costume contest\, and much more. \n“The BooClaws Spooktacular is one of our favorite events of the year\,” said BlueClaws General Manager Bob McLane. “This year\, we’re excited to combine the BooClaws Spooktacular and our own Buster\, with Ghostbusters! It’s a night you don’t want to miss!” \nEveryone is encouraged to watch the movie from the field or the seating bowl.\nBlankets and chairs are welcome.\n \n-Tickets donated by the Jersey Shore BlueClaws-
URL:https://turnersyndromefoundation.org/event/booclaws-spooktacular-october-24th-with-ghostbusters/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/BlueClaws-Cover-Photo.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
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