BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Turner Syndrome Foundation - ECPv6.16.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20270314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20271107T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260601
DTEND;VALUE=DATE:20260701
DTSTAMP:20260604T201340
CREATED:20260601T200733Z
LAST-MODIFIED:20260601T201454Z
UID:10002938-1780272000-1782863999@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Kindness Campaign
DESCRIPTION:Bringing Back Snail Mail\n \n\nThe Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. \nWith just a $5 donation\, you will have the opportunity to send a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether it’s words of encouragement\, positivity\, support\, wisdom\, or simply a kind note to brighten someone’s day\, each letter is created with care and compassion. \nIn a world filled with quick texts and social media messages\, receiving a handwritten letter can feel truly special. Our goal is to spread kindness\, create meaningful connections\, and remind individuals in the Turner syndrome community that they are supported\, valued\, and never alone. \n \nEvery letter sent is a small act of kindness that can make a big difference. Together\, we can bring back the magic of snail mail while sharing hope\, positivity\, and encouragement one mailbox at a time. \nView more cards here!
URL:https://turnersyndromefoundation.org/event/turner-syndrome-kindness-campaign/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Turner-Syndrome-Kindness-Campaign-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260606
DTEND;VALUE=DATE:20260607
DTSTAMP:20260604T201340
CREATED:20260506T175708Z
LAST-MODIFIED:20260515T163842Z
UID:10002933-1780704000-1780790399@turnersyndromefoundation.org
SUMMARY:MLB Miami Marlins vs Tampa Rays Baseball Game 'Strikeouts for Ellis'
DESCRIPTION:Peter and Lydia Fairbanks invite you to support the Turner Syndrome Foundation\n  \nTS Community Day on June 6\, 2026 \nMiami Marlins vs. Tampa Rays game in Miami\, FL \nGrab Bag Fundraiser\n\nOrder Tickets\nOrder Strikeouts for Ellis Merchandise \n  \nYour support brings hope to many. Thank you for your donation. \n \n \n \n \n \nORDER STRIKEOUTS FOR ELLIS MERCHANDISE \n \n  \n \nAfter an abnormal ultrasound and weeks of waiting for test results\, we were told that our daughter\, Ellis\, likely had Turner syndrome at 9 weeks gestation. Ellis was with us for a total of 19 weeks and six days gestation. Those weeks were extremely difficult. The unknown of the diagnosis\, difficulty receiving care\, and the odds that were repeated to us every appointment made it difficult to see the light. Despite the darkness at times\, we cherish those weeks because Ellis met milestones we were told she wouldn’t\, and she taught us the importance of life and being present. Ellis was a fighter. Throughout this journey of diagnosis and loss\, Peter and I have learned that there is a gap in the system. Reaching out to the Turner Syndrome Foundation taught us that there are many others experiencing the same battles. We are motivated to help the Turner Syndrome Foundation bridge the gap between diagnosis and care. This season\, we vow to honor Ellis and other families who have experienced loss. We vow to Rays Up for those who beat the odds and raise awareness for Turner Syndrome and the resources that are out there. \n \nThis season\, we will participate in two initiatives to raise awareness and support for the Turner Syndrome community: Strikeouts for Ellis and the Rays Up for Turner Syndrome online auction. We appreciate all the support in advance. Peter and I know we are not alone\, and we want others to know they are not alone\, either. \nWe can make a difference!\nWith Love\, Peter and Lydia Fairbanks \n \nStrikeouts for Ellis\nAll season-long\, when you hear “With that strikeout\, Peter Fairbanks and his wife\, Lydia\, will donate $200 to the Turner Syndrome Foundation. Follow Pete and the Major League Baseball team\, the Miami Marlins\, for more information and know that TSF is being supported in honor of Ellis. \nMLB Stats: https://www.mlb.com/player/pete-fairbanks-664126 \nMedia: https://www.espn.com/mlb/story/_/id/48406953/pete-fairbanks-gets-start-leaves-marlins-birth-child \nMedia:  https://mlbn-distro.mlb.com/temp/20240728-MLB-ROKU-PETE-TRICIA-POST-346008.mp4 \nMedia: https://x.com/Ry_Bass/status/1818298972886159671
URL:https://turnersyndromefoundation.org/event/fairbanks-strikeout-for-turner-syndrome-2/
LOCATION:Tampa Bay Rays\, Tropicana Field\, St. Petersburg\, FL\, 33705\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/IMG_1273-scaled.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260620T190000
DTEND;TZID=America/New_York:20260620T220000
DTSTAMP:20260604T201340
CREATED:20260130T195416Z
LAST-MODIFIED:20260506T182506Z
UID:10002886-1781982000-1781992800@turnersyndromefoundation.org
SUMMARY:Jersey Shore BlueClaws X TSF
DESCRIPTION:The Jersey Shore BlueClaws are scheduled to play a home game against the Greenville Drive\, A Red Sox affiliate\, at ShoreTown Ballpark in Lakewood\, NJ. \n \nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nHere are the details for the game on Saturday\, June 20\, 2026: \n\nOpponent: Greenville Drive (Boston Red Sox affiliate)\nLocation: ShoreTown Ballpark\, Lakewood\, New Jersey\nTime: 7:05 PM EDT\nSpecial Event: The BlueClaws will play as the “Jersey Shore Locals” in a special theme night for Irish Heritage!\n\n \n25th Anniversary: The 2026 season marks the 25th anniversary of the BlueClaws. More details to follow. Save the date! \nWant to Volunteer? Contact Lori Kobular at lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/jersey-shore-blueclaws-x-tsf/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260722T200000
DTEND;TZID=America/New_York:20260722T210000
DTSTAMP:20260604T201340
CREATED:20260420T174445Z
LAST-MODIFIED:20260420T174445Z
UID:10002929-1784750400-1784754000@turnersyndromefoundation.org
SUMMARY:Webinar - Growth Charts for Children with Turner Syndrome in MyChart
DESCRIPTION:Growth Charts for Children with Turner Syndrome in MyChart\n \nJoin us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos\, a large-scale dataset created through collaboration among leading health systems using Epic. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \n\nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of how healthcare technology platforms like Epic are developing population-specific growth charts and expanding tools for rare conditions. This reflects a growing shift toward more personalized\, data-driven care in medicine. \n\nWhat You’ll Learn\n\nHow to locate Turner Syndrome growth charts within MyChart\nHow these charts were developed using real-world clinical data\nHow specialized growth charts help contextualize a child’s development compared to others with the same condition\nHow Epic is expanding growth chart tools for other rare conditions\n\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \n\nPresenter\nJacob Anderson\nSoftware Developer\, Epic \nJacob Anderson is a software developer at Epic\, the healthcare technology company behind MyChart. He focuses on building tools for outpatient care\, including growth charts for children with rare conditions. Originally from Chicago\, he is now based in Madison\, Wisconsin. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Growth-Chart-in-MyChart.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261008T200000
DTEND;TZID=America/New_York:20261008T210000
DTSTAMP:20260604T201340
CREATED:20260521T182427Z
LAST-MODIFIED:20260521T182604Z
UID:10002936-1791489600-1791493200@turnersyndromefoundation.org
SUMMARY:WE- NVLD and Navigating Emerging Adulthood
DESCRIPTION:WE LEARN Webinar\nNVLD and navigating Emerging Adulthood\nHosted by Turner Syndrome Foundation\, Inc. \nDate: Thursday\, October 8\nTime: 8:00 PM EDT\nFormat: Live Stream \n \nAbout This Event\nJoin us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning difficulties\, social confusion\, anxiety\, shame\, identity development\, relationships\, motivation\, and the overwhelming mental load of daily adult life. The presentation would also discuss how NVLD can impact work\, school\, emotional regulation\, and self-esteem\, while offering practical strategies for building structure\, resilience\, self-awareness\, and a sustainable adult life that works with the individual’s brain rather than against it. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of NVLD and help normalize many of the struggles young adults with Turner Syndrome and NVLD-related profiles often experience while also \nWhat You’ll Learn\n\nHow NVLD traits can impact the transition into adulthood\, particularly in areas like independence\, relationships\, emotional regulation\, executive functioning\, anxiety\, and identity development.\nPractical\, actionable strategies for reducing overwhelm\, improving daily functioning\, and building a more sustainable and fulfilling adult life.\nParents\, professionals\, and young adults themselves would gain language\, frameworks\, and concrete tools to better understand these patterns with less shame and more effectiveness.\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \nPresenter\nChristina J Cummins\nMS in mental health counseling \nChristina is a therapist-turned-coach who shifted from traditional DBT therapy after seeing how effectively DBT skills helped individuals with NVLD-style neurocognitive profiles make real progress. Her work combines these skills with directive\, action-oriented coaching to help clients translate insight into follow-through. She specializes in supporting young adults who are capable but stuck\, particularly during major life transitions. Her approach is structured\, practical\, and focused on helping clients move toward meaningful\, realistic personal goals. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/we-nvld-and-navigating-emerging-adulthood/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Christina-J-Cummins.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
END:VCALENDAR