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X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20260526T200000
DTEND;TZID=America/New_York:20260526T210000
DTSTAMP:20260604T231725
CREATED:20260518T201711Z
LAST-MODIFIED:20260518T201711Z
UID:10002935-1779825600-1779829200@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Expectant Parent Panel
DESCRIPTION:Free Virtual Event\nJoin TSF for a peer-to-peer panel discussion designed for expectant parents and families\nnavigating a prenatal diagnosis of Turner syndrome.\nIn this conversation\, three mothers of girls with Turner syndrome will share their personal\nexperiences receiving their daughters’ diagnoses during pregnancy. Panelists will discuss the\nemotions and uncertainty that can come with diagnosis\, navigating pregnancy after receiving\nthe news\, preparing for their daughters’ arrivals\, and their experiences during the early years of\nlife. \nMay 26 @ 8:00–9:00 PM EDT\nThis event is intended to provide connection\, perspective\, and support through shared lived\nexperience. \nMeet the Panelists\n\nRena’e Williams: Rena’e is the mother of Shekina\, a 1-year-old with Turner syndrome. She\nreceived Shekina’s diagnosis at five months pregnant.\nMaurissa Trent: Maurissa is the mother of 9-year-old Juliana.\nBriana Rex: Briana is the mother of Lyla\, a 1-year-old with Turner syndrome who is also a\nfraternal twin.\nFacilitated By Stacie Pelton: Stacie is a woman with Turner syndrome\, a social worker\, and a\ndedicated volunteer with the Turner Syndrome Foundation.\n\nAbout the Panel Series\nTSF Panel Events are peer-to-peer conversations where individuals and families can learn from\nthe experiences of others navigating different aspects of life with Turner syndrome. These\nevents feature community members\, parents\, and occasional subject matter experts sharing\npersonal stories\, practical insights\, and audience Q&A in a supportive environment.\nRegistration is free but required. Register to receive the Zoom link. \nThis event will be recorded.
URL:https://turnersyndromefoundation.org/event/turner-syndrome-expectant-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Expectant-Parent-Panel-Header.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T200000
DTEND;TZID=America/New_York:20260520T210000
DTSTAMP:20260604T231725
CREATED:20260409T171230Z
LAST-MODIFIED:20260409T171327Z
UID:10002924-1779307200-1779310800@turnersyndromefoundation.org
SUMMARY:Webinar - The Role of Occupational Therapy for Turner Syndrome
DESCRIPTION:The Role of Occupational Therapy for Turner Syndrome\n  \n \nOccupational Therapy is a keen intervention for patients with Turner syndrome. This webinar will include an overview of the definition and scope of practice of occupational therapy\, including how occupational therapy helps people perform important daily life activities. The webinar will also discuss the various challenges associated with Turner syndrome that occupational therapy can help with\, including feeding challenges\, fine motor concerns\, social concerns\, and executive functioning concerns. \nLastly\, this webinar will encourage participants to learn more about and consider occupational therapy as a career path. \nWhat are some of the anticipated benefits of attending the proposed presentation? \nSome anticipated benefits of attending the proposed presentation include increased knowledge of occupational therapy and a greater understanding of its benefits for patients with Turner syndrome. \nExplain how this webinar might be relevant to the general population (non-TS). \nThis webinar might be relevant to the general population because occupational therapy can help a wide range of people across the lifespan and in many settings. It is also a lesser-known profession compared to others\, such as physical therapy and speech-language pathology\, so it is valuable for the general population to understand occupational therapy and how it can help. \nWho Should Attend & What You’ll Gain \nThis webinar is highly relevant not only to professionals\, but to the general public—because nearly everyone has a family member\, friend\, colleague\, or community connection. Whether you work in education\, healthcare\, counseling\, or simply want to be more informed and inclusive\, this session offers knowledge you can immediately apply.\nWho? Patients\, caregivers\, allied health professionals\, nurses\, physicians\, educators\, and school administrators. \nAbout the Presenters: \nMcKenna Raye Flemming\nMy personal and professional experiences as an occupational therapist and educator in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with conditions\, injuries\, or illnesses. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nI am a Doctoral student in the occupational therapy program at A.T. Still University\, scheduled to graduate in June 2026. I have been conducting research on social skills in young adults with Turner syndrome. I am passionate about occupational therapy and how it can help those affected by Turner syndrome. \nMegan Edwards Collins\, BS\, MS\, PhD \n\n\n\n\n\n\nEmployer\nWinston-Salem State University\n\n\nPosition\nProfessor\, Program Chair\, Department of Occupational Therapy\n\n\nDegree & Certifications\nBS in OT\, MS in OT\, PhD in Education and Human Resource Studies; Certified Aging in Place Specialist\, Certified Fall Prevention Specialist\, Driving Rehab Professional\n\n\n\nMy personal and professional experiences as an occupational therapist and role in higher education have helped me better understand what students and clients may be experiencing physically\, mentally\, and emotionally as they manage and live with a condition\, injury\, or illness. Occupational therapy practitioners can play an invaluable role in helping clients live life to the fullest\, doing things they need\, want\, and have to do. It’s an incredibly rewarding career! \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Occupational-Therapy.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T200000
DTEND;TZID=America/New_York:20260513T210000
DTSTAMP:20260604T231725
CREATED:20260429T194156Z
LAST-MODIFIED:20260429T194156Z
UID:10002931-1778702400-1778706000@turnersyndromefoundation.org
SUMMARY:Facebook Chat: Occupational Therapy Experiences
DESCRIPTION:Facebook Chat: Occupational Therapy Experiences\nMay 13th\, 8 PM ET \nJoin us for a live conversation on Facebook to discuss the role of occupational therapy for individuals with Turner syndrome. To participate\, just visit the Turner Syndrome Foundation’s Facebook page at the scheduled time and respond to the question posted on our timeline every 10 minutes. Feel free to share your experiences and engage with others in the comments! Find us on Facebook: https://www.facebook.com/turnersyndromefoundation/ \nThis chat will tie in with our upcoming webinar on the same topic\, taking place May 20th at 8 PM ET. Register for the webinar: https://turnersyndromefoundation.org/event/webinar-the-role-of-occupational-therapy-for-turner-syndrome/
URL:https://turnersyndromefoundation.org/event/facebook-chat-occupational-therapy-experiences/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Facebook-Chat-OT-experiences-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T110000
DTEND;TZID=America/New_York:20260504T210000
DTSTAMP:20260604T231725
CREATED:20260409T190903Z
LAST-MODIFIED:20260409T193146Z
UID:10002925-1777892400-1777928400@turnersyndromefoundation.org
SUMMARY:Freddy's for TSF
DESCRIPTION:Join Freddy’s as they support Turner Syndrome\nMay 4\, 2026 \n11am – 9pm \n2136 Route 35 South\, Holmdel\, NJ\, 07733 \nHow To Participate:\n\nIn-Store\n\nShow flyer or say “I’m here for the fundraiser” at checkout\n\n\nOnline/Mobile\n\nUse Promo Code: GIVEBACK\n\n\n\nFreddy’s is proud to contribute 15% of event sales
URL:https://turnersyndromefoundation.org/event/freddys-for-tsf/
LOCATION:2136 ROUTE 35 SOUTH\, HOLMDEL\, NJ 07733\, 2136 Route 35 South\, Holmdel\, NJ\, 07733\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Freddys-Fundraiser-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260516
DTSTAMP:20260604T231725
CREATED:20260108T192059Z
LAST-MODIFIED:20260430T203225Z
UID:10002871-1777593600-1778889599@turnersyndromefoundation.org
SUMMARY:Spring Auction 2026
DESCRIPTION:Bloom Spring Auction Benefiting the Turner Syndrome Foundation\nWelcome to the Bloom Spring Auction\, where generosity blooms into impact. \nEvery bid you place directly supports the Turner Syndrome Foundation’s mission to advance research\, education\, advocacy\, and care for individuals affected by Turner syndrome. This is more than an auction—it’s an opportunity to create meaningful change. \n\nBid & Buy Opportunities May 1 to May 15\, 2026\nBrowse our curated selection of unique items and experiences\, and bid generously. Each item has a set minimum bid\, and the highest bidder at closing wins. \nIn addition to bidding\, don’t miss our exclusive Buy-It-Now opportunities: \n\nOne new Buy-It-Now item launches daily at 8:00 a.m. EST\nEach featured item highlights TSF merchandise at a reduced price\nQuantities are limited—once it’s gone\, it’s gone\n\nLet’s make this Spring Auction unforgettable—together. \n \nSHOP FOR BLOOM MERCH: https://turnersyndromefoundation.org/shop/ \nIf you have any questions about this auction\, contact Adrianna Verzolini averzolini@tsfusa.org or (732) 847-3385. \nThank you to our Annual In-Kind Donor  – “Scavenger Hunts by Let’s Roam” 
URL:https://turnersyndromefoundation.org/event/spring-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Bloom-banner-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260401T173000
DTEND;TZID=America/New_York:20260401T183000
DTSTAMP:20260604T231725
CREATED:20260318T171659Z
LAST-MODIFIED:20260318T171659Z
UID:10002919-1775064600-1775068200@turnersyndromefoundation.org
SUMMARY:TSF Butterfly Bake Sale
DESCRIPTION:Join Kaitlin and her daughter for a sweet cause! TSF Butterfly Bake Sale Bake Sale brings the community together to support individuals living with Turner syndrome and to help spread knowledge about this condition. Enjoy a delicious selection of baked goods while contributing to an important mission. \n\nWestwood Village Mall – 2600 SW Barton Street\, Seattle\, WA\nApril 1st 5:30pm\n\n“I have been following TSF for about 3 years now and because my daughter was diagnosed with TS I didn’t know much about TS until I found TSF and I appreciate everything that TSF does” – Kaitlin \n  \n 
URL:https://turnersyndromefoundation.org/event/tsf-butterfly-bake-sale/
LOCATION:Westwood Village Mall\, 2600 SW Barton Street\, Seattle\, WA\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/Bake-Sale-Flyer-Kaitlin-Wagner-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T190000
DTEND;TZID=America/New_York:20260319T200000
DTSTAMP:20260604T231725
CREATED:20260306T203519Z
LAST-MODIFIED:20260306T203519Z
UID:10002918-1773946800-1773950400@turnersyndromefoundation.org
SUMMARY:NLN Community Webinar - Turner Syndrome
DESCRIPTION:NLN Community Webinar – Turner Syndrome\nJoin us for a special community webinar focused on understanding Turner Syndrome (TS) and the unique lymphatic considerations that contribute to the high incidence of lymphedema in this population. This session will explore the clinical features of Turner Syndrome and provide clear\, accessible education on how differences in the lymphatic system play a significant role in swelling\, diagnosis\, and long?term management. \nDesigned for individuals living with TS\, families\, caregivers\, and anyone seeking to better understand lymphatic health\, this webinar offers a supportive space to learn\, ask questions\, and connect with the broader community. Attendees will gain insight into why lymphedema is so common in Turner Syndrome and what steps can help support early recognition and care. \nRegister Here! \nThis event is free and open to all. \nSpeaker – Dr. Ebru Gültekin \nMarch 19\, 2026\n7:00 pm ET
URL:https://turnersyndromefoundation.org/event/nln-community-webinar-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/03/images.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260228T090000
DTEND;TZID=America/New_York:20260315T235900
DTSTAMP:20260604T231725
CREATED:20260126T213436Z
LAST-MODIFIED:20260303T191030Z
UID:10002885-1772269200-1773619140@turnersyndromefoundation.org
SUMMARY:Card Auction 2026
DESCRIPTION:THIS IS A GREETING CARD FUNDRAISER! Bid now on Instagram @MULCHLADY6. Winners and supporters will donate in support of the Turner Syndrome Foundation\nChoose from a beautiful array of custom-made designer greeting cards. \nBid Now Until 3/15! \nDonate \nTSF’s Greeting Card Auction is an event in which artists from across the globe create charming masterpieces for all occasions and donate them to benefit TSF. Greeting card connoisseurs and art enthusiasts will bid on their favorite cards. After the auction ends\, TSF will send the cards to the highest bidders. Card donations begin at $5.00. \nThe auction begins on February 28\, 2026\, at 9 AM EDT\, which is Rare Disease Day\, and ends on March 15\, 2026\, at midnight! \nPlace Your Bid Here With @MULCHLADY6 \nHow to BID on a card:\nAll Bids start at $5.00 with increasing bids of $1.00 \nShipping is free in the US unless you want priority shipping with tracking and that will be determined by the Post Office. International Shipping will also be determined by the post office. \n1) Please place your bid in US dollar amounts in the comment section under the photo of the card you want\n2) Please be sure to tag the highest bidder with your bid. Example #mulchlady6$10\n3) Once the auction is over and the winners are figured out the highest bidder will be contacted with a link of where to send their donation.\n4) Once proof of the donation is confirmed the card will be mailed out.\n5) If we do not hear back from the highest bidder within 24 hours\, we will move to the next highest bidder on that card. \n\n\n\nThe Turner Syndrome Awareness Card Auction is a collaborative Card Auction benefiting the Turner Syndrome Foundation\, which operates solely on donations. TS is a complex condition affecting 1 in every 2\,000 women and girls. Join Lori in supporting this cause! The very talented card designers who have donated their amazing cards are from all over the world and work on Design Teams for various crafting companies that sell dies\, stamps\, and other cardmaking supplies. They are the most generous and caring people! They have poured lots of love into each of their creations! \nAll sales are final. No refunds or warranties are promised or provided. This fundraiser supports the Turner Syndrome Foundation\, a 501(c)3 charitable organization. \nDesigners who wish to donate their cards may contact Lori at lkobular@tsfusa.org.\nMail checks payable to Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733 \nThank you all so much for your support!  
URL:https://turnersyndromefoundation.org/event/card-auction-2026/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Card-Auction-Graphic-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260224T200000
DTEND;TZID=America/New_York:20260224T210000
DTSTAMP:20260604T231725
CREATED:20260209T213127Z
LAST-MODIFIED:20260304T211330Z
UID:10002900-1771963200-1771966800@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Awareness Month Patient & Parent Panel
DESCRIPTION:Turner Syndrome Awareness Month Patient & Parent Panel\n  \n \n  \nJoin us for a powerful and meaningful evening of conversation during Turner Syndrome Awareness Month. Through personal stories and shared reflections\, panelists will speak about what it’s really like to live with Turner syndrome\, navigate diagnosis and care\, and build resilience along the way. \nThis event is open to patients\, parents\, caregivers\, advocates\, and anyone looking to learn more about Turner syndrome through real-life perspectives. \nFacilitator\nStacie Pelton\n \nPanelists \n\nJean-Marie Andrews\, TS mom\nKaitlin Yaskia\, woman with TS\nCarlee Ritch\, woman with TS\n\nWhether you are part of the Turner syndrome community or seeking to better understand it\, we invite you to join us for an evening of connection\, learning\, and shared experience.
URL:https://turnersyndromefoundation.org/event/turner-syndrome-awareness-month-patient-parent-panel/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/02/TSAM-Panel-2026.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260218T200000
DTEND;TZID=America/New_York:20260218T210000
DTSTAMP:20260604T231725
CREATED:20260115T182702Z
LAST-MODIFIED:20260115T182702Z
UID:10002882-1771444800-1771448400@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Careers
DESCRIPTION:Turner Syndrome Awareness Month Patient & Parent Panel\n  \n \n  \nJoin us for a powerful and meaningful evening of conversation during Turner Syndrome Awareness Month. Through personal stories and shared reflections\, panelists will speak about what it’s really like to live with Turner syndrome\, navigate diagnosis and care\, and build resilience along the way. \nThis event is open to patients\, parents\, caregivers\, advocates\, and anyone looking to learn more about Turner syndrome through real-life perspectives. \nFacilitator\nStacie Pelton\n \nPanelists \n\nJean-Marie Andrews\, TS mom\nKaitlin Yaskia\, woman with TS\nCarlee Ritch\, woman with TS\n\nWhether you are part of the Turner syndrome community or seeking to better understand it\, we invite you to join us for an evening of connection\, learning\, and shared experience.
URL:https://turnersyndromefoundation.org/event/facebook-chat-careers/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-18.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T200000
DTEND;TZID=America/New_York:20260211T210000
DTSTAMP:20260604T231725
CREATED:20260115T182409Z
LAST-MODIFIED:20260115T182409Z
UID:10002881-1770840000-1770843600@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Education
DESCRIPTION:Turner Syndrome Awareness Month Patient & Parent Panel\n  \n \n  \nJoin us for a powerful and meaningful evening of conversation during Turner Syndrome Awareness Month. Through personal stories and shared reflections\, panelists will speak about what it’s really like to live with Turner syndrome\, navigate diagnosis and care\, and build resilience along the way. \nThis event is open to patients\, parents\, caregivers\, advocates\, and anyone looking to learn more about Turner syndrome through real-life perspectives. \nFacilitator\nStacie Pelton\n \nPanelists \n\nJean-Marie Andrews\, TS mom\nKaitlin Yaskia\, woman with TS\nCarlee Ritch\, woman with TS\n\nWhether you are part of the Turner syndrome community or seeking to better understand it\, we invite you to join us for an evening of connection\, learning\, and shared experience.
URL:https://turnersyndromefoundation.org/event/facebook-chat-education/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-11.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260204T200000
DTEND;TZID=America/New_York:20260204T210000
DTSTAMP:20260604T231725
CREATED:20260115T181550Z
LAST-MODIFIED:20260115T182140Z
UID:10002879-1770235200-1770238800@turnersyndromefoundation.org
SUMMARY:Facebook Chat - Getting to Know You
DESCRIPTION:Turner Syndrome Awareness Month Patient & Parent Panel\n  \n \n  \nJoin us for a powerful and meaningful evening of conversation during Turner Syndrome Awareness Month. Through personal stories and shared reflections\, panelists will speak about what it’s really like to live with Turner syndrome\, navigate diagnosis and care\, and build resilience along the way. \nThis event is open to patients\, parents\, caregivers\, advocates\, and anyone looking to learn more about Turner syndrome through real-life perspectives. \nFacilitator\nStacie Pelton\n \nPanelists \n\nJean-Marie Andrews\, TS mom\nKaitlin Yaskia\, woman with TS\nCarlee Ritch\, woman with TS\n\nWhether you are part of the Turner syndrome community or seeking to better understand it\, we invite you to join us for an evening of connection\, learning\, and shared experience.
URL:https://turnersyndromefoundation.org/event/getting-to-know-you/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/Feb-4.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Kentucky/Louisville:20260201T110000
DTEND;TZID=America/Kentucky/Louisville:20260201T140000
DTSTAMP:20260604T231725
CREATED:20260119T213045Z
LAST-MODIFIED:20260119T213045Z
UID:10002884-1769943600-1769954400@turnersyndromefoundation.org
SUMMARY:LSU Lady Tigers Game Turner Syndrome Awareness Half-Time Photo Opportunity
DESCRIPTION:Alabama Crimson Tide at LSU Tiger Womens Basketball \nTURNER SYNDROME\nBATON ROUGE\, La. – LSU women’s basketball will help raise awareness and money for Turner Syndrome\, a cause close to Head Coach Kim Mulkey\, at the February 1 game against Alabama in the PMAC. \n(center) Coach Mulkey’s daughter Makenzie Fuller\, granddaughter Sage\, grandson Kannon\, & son-in-law Clay. Photo by Kristen Young\n“This cause is personal to me and my family because of the loss of Scout Marie\,” Mulkey said. “My daughter (Makenzie Fuller) had to deliver a stillborn at 20 weeks\, and she will always be a part of our lives. We will continue to talk about and raise awareness for Turner Syndrome\, now and always. I didn’t know about Turner Syndrome before it affected our family\, and I want to make sure everyone knows about the life-altering condition before it affects them.” \nAt the game on February 1\, LSU will honor Turner Syndrome survivors on the court. They are welcoming anyone affected by Turner syndrome to be recognized on the court at halftime as a group. \nT-shirt sales support the Turner Syndrome Foundation. The online order form has closed. \nBuy Tickets
URL:https://turnersyndromefoundation.org/event/lsu-lady-tigers-game-turner-syndrome-awareness-half-time-photo-opportunity/
LOCATION:Online
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2023/03/Believe-in-Miracles_LSU-Sports-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260114
DTEND;VALUE=DATE:20260401
DTSTAMP:20260604T231725
CREATED:20260114T194807Z
LAST-MODIFIED:20260114T203552Z
UID:10002878-1768348800-1775001599@turnersyndromefoundation.org
SUMMARY:Study - Health in Women with Turner Syndrome
DESCRIPTION:We Want To Talk With You
URL:https://turnersyndromefoundation.org/event/study-health-in-women-with-turner-syndrome/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/healthcare-study-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260109T080000
DTEND;TZID=America/New_York:20260301T170000
DTSTAMP:20260604T231725
CREATED:20260109T230752Z
LAST-MODIFIED:20260109T231111Z
UID:10002872-1767945600-1772384400@turnersyndromefoundation.org
SUMMARY:Join the Turner Syndrome Awareness Crew
DESCRIPTION:Sign Up Form\nSmall actions = Big ripple effects = Meaningful awareness all year long!\nRaising awareness for Turner syndrome doesn’t have to be overwhelming or time-consuming. \nThat’s why we created the Turner Syndrome Awareness Crew — a low-commitment\, high-impact way to help spread awareness in your community\, online\, and beyond all year round. \nWhen many people take simple actions together\, awareness grows farther than any one person could reach alone. \nWhat Is the Awareness Crew?\nThe Turner Syndrome Awareness Crew is a group of supporters who take small\, meaningful actions to help educate others and spark conversations about Turner syndrome. \nThere’s no minimum time requirement\, no pressure to do everything\, and no “right” way to raise awareness. \nWhat Kind of Actions Are We Talking About?\nThink simple and flexible\, yet high-impact: \n\n? Sharing or creating a social media post\n? Dropping off a flyer at a doctor’s office\, school\, or workplace\n?? Signing or sharing a petition\n? Talking with friends\, family\, or coworkers about Turner syndrome\n? Participating in Awareness Month activities\n\nEach action might only take a few minutes\, but when many of us come together to take action\, they create a powerful ripple effect. \n\n\nRaise Awareness and Bring Others Along\nEvery Awareness Crew member will receive a personal fundraising page\, making it easy to invite friends\, family\, and your community to support Turner syndrome awareness alongside you. \nYou don’t need to fundraise actively if you don’t want to. But if you do share your page\, you’re helping amplify awareness and support year-round. \nWhy It Matters\nAwareness leads to: \n\nEarlier diagnoses\nBetter understanding in doctors’ offices\, schools\, and workplaces\nStronger advocacy\nA more informed and compassionate community\n\nWhen many people take small steps\, the impact grows! \nReady to Be Part of the Crew?\nIf you’ve ever wanted to help raise awareness\, but weren’t sure how\, this is your invitation. \n? Join the Turner Syndrome Awareness Crew\n? Take simple actions when it works for you\n? Be part of something bigger than yourself \n? Shop for TSAM New Merch \nSign up today and start making an impact\, one small action at a time! \n\n\n\n\n\n 
URL:https://turnersyndromefoundation.org/event/%f0%9f%8c%9f-join-the-turner-syndrome-awareness-crew-%f0%9f%8c%9f/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/01/TSAM-Crew.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250727T130000
DTEND;TZID=America/New_York:20250727T160000
DTSTAMP:20260604T231725
CREATED:20250621T145704Z
LAST-MODIFIED:20250621T145704Z
UID:10002849-1753621200-1753632000@turnersyndromefoundation.org
SUMMARY:TS Community Day at BlueClaws Baseball\, Lakewood\, NJ
DESCRIPTION:Turner Syndrome Community Day\n1:05 PM –  Wilmington Blue Rocks at Jersey Shore BlueClaws ShoreTown Ballpark Lakewood\, NJ 08701\nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nTickets: $20 per person | TS Patients are Free | Special Buy Four Tickets Get Two Free!\nPrices are subject to change. \n\n  \nAbout the Event\nThe Turner Syndrome Foundation is a community partner of the the Jersey Shore BlueClaws Minor League Baseball team of the South Atlantic League and the High-A affiliate of the Philadelphia Phillies. The Jersey BlueClaws are located in Lakewood\, New Jersey\, and are named for their location on the Jersey Shore and blue crabs native to the area. The BlueClaws play their home games at ShoreTown Ballpark. 6500 people attend the games. \nTSF Community Day \nWe’re growing a community! Wear your TSF shirts and hats. If you need to order merch before the event\, go to the online SHOP. \nBring your smiles and be ready for a group photo! \nQuestions? Email Lori Kobular lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/ts-community-day-at-blueclaws-baseball-lakewood-nj-2/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250621T190000
DTEND;TZID=America/New_York:20250621T220000
DTSTAMP:20260604T231725
CREATED:20250224T192044Z
LAST-MODIFIED:20250226T203743Z
UID:10002165-1750532400-1750543200@turnersyndromefoundation.org
SUMMARY:TS Community Day at BlueClaws Baseball\, Lakewood\, NJ
DESCRIPTION:Turner Syndrome Community Day and Irish Heritage Night!\n7:05 PM –  Hudson Valley Renegades at Jersey Shore Blueclaws ShoreTown Ballpark Lakewood\, NJ 08701\nThe BlueClaws are going to play ball with the Turner Syndrome Foundation as their community partner. This is a game for people of all ages. If you love baseball and want to have a chance to connect with others living with Turner syndrome\, join us. \nTickets: $20 per person | TS Patients are Free | Special Buy Four Tickets Get Two Free!\nPrices are subject to change.\n \nAbout the Event\nThe Turner Syndrome Foundation is a community partner of the the Jersey Shore BlueClaws Minor League Baseball team of the South Atlantic League and the High-A affiliate of the Philadelphia Phillies. The Jersey BlueClaws are located in Lakewood\, New Jersey\, and are named for their location on the Jersey Shore and blue crabs native to the area. The BlueClaws play their home games at ShoreTown Ballpark. 6500 people attend the games. The event will feature Irish Night Festivities. Kids are invited to run the bases after the game. \nTSF Community Day \nWe’re growing a community and there will be a TS Awareness announcement and TSF group table to share information. Stop by to check in and you’ll be entered to win a PRIZE! \nWear your TSF shirts and hats! If you need to order merch before the event\, go to the online SHOP. \nBring your smiles and be ready for a group photo! \nA representative from TSF will throw the first game ball! \nOur own Olivia Sullivan\, a rising star\, will sing\, “Take Me Out to the Ball Game”. \nWhere will you find us? At the TSF charity section 110 \nEnter 3rd Base entrance gate \nQuestions? Email Lori Kobular lkobular@tsfusa.org
URL:https://turnersyndromefoundation.org/event/ts-community-day-at-blueclaws-baseball-lakewood-nj/
LOCATION:Jersey Shore BlueClaws\, 2 Stadium Way\, Lakewood\, NJ\, 08701\, United States
CATEGORIES:Awareness,In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/05/vh6g7mdnxawwmk5dttwz.jpeg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
END:VCALENDAR