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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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DTSTART;TZID=America/New_York:20260722T200000
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SUMMARY:Webinar - Growth Charts for Children with Turner Syndrome in MyChart
DESCRIPTION:Growth Charts for Children with Turner Syndrome in MyChart\n \nJoin us for an informative webinar exploring the integration of Turner Syndrome–specific growth charts within MyChart. This session will walk attendees through how to access these charts and explain the data and methodology behind their development using Cosmos\, a large-scale dataset created through collaboration among leading health systems using Epic. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \n\nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of how healthcare technology platforms like Epic are developing population-specific growth charts and expanding tools for rare conditions. This reflects a growing shift toward more personalized\, data-driven care in medicine. \n\nWhat You’ll Learn\n\nHow to locate Turner Syndrome growth charts within MyChart\nHow these charts were developed using real-world clinical data\nHow specialized growth charts help contextualize a child’s development compared to others with the same condition\nHow Epic is expanding growth chart tools for other rare conditions\n\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \n\nPresenter\nJacob Anderson\nSoftware Developer\, Epic \nJacob Anderson is a software developer at Epic\, the healthcare technology company behind MyChart. He focuses on building tools for outpatient care\, including growth charts for children with rare conditions. Originally from Chicago\, he is now based in Madison\, Wisconsin. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/webinar-growth-charts-for-children-with-turner-syndrome-in-mychart/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/04/Growth-Chart-in-MyChart.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
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