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X-WR-CALNAME:Turner Syndrome Foundation
X-ORIGINAL-URL:https://turnersyndromefoundation.org
X-WR-CALDESC:Events for Turner Syndrome Foundation
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260406
DTEND;VALUE=DATE:20270407
DTSTAMP:20260421T213102Z
CREATED:20260406T202921Z
LAST-MODIFIED:20260421T213102Z
UID:10002922-1775433600-1807055999@turnersyndromefoundation.org
SUMMARY:Send a Greeting Card
DESCRIPTION:Greeting cards. A handwritten note. A keepsake. A thoughtful gesture. \nCard designers have donated their original art to support TS.  Cards are $5.00 \n100% of the proceeds support Turner syndrome. \nDon’t buy a card from a box store. Give an orginal and make it be a gift of support! \nBuy one or many. Stock up now and support this cause.
URL:https://turnersyndromefoundation.org/event/send-a-greeting-card/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2022/05/cards.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260601T000000
DTEND;TZID=America/New_York:20270731T235900
DTSTAMP:20260720T213303Z
CREATED:20260601T200733Z
LAST-MODIFIED:20260720T213303Z
UID:10002938-1780272000-1817078340@turnersyndromefoundation.org
SUMMARY:Turner Syndrome Kindness Campaign
DESCRIPTION:Send a Card and Spread Kindness\nThe Turner Syndrome Kindness Campaign is dedicated to bringing back the joy and personal connection of handwritten mail. We are bringing back the joy of receiving a card. You can lift someone with a kind note to show that you care. \nSend a beautifully handmade card with a custom message that we will handwrite and mail to someone living with Turner syndrome. Whether it’s words of encouragement\, positivity\, support\, wisdom\, or simply a kind note to brighten someone’s day\, each letter is created with care and compassion. Make your donation and we will handle the rest! \nIn a world filled with quick texts and social media messages\, receiving a handwritten letter can feel truly special. Our goal is to spread kindness\, create meaningful connections\, and remind individuals in the Turner syndrome community that they are supported\, valued\, and never alone. \n \nEvery letter sent is a small act of kindness that can make a big difference. Together\, we can bring back the magic of snail mail while sharing hope\, positivity\, and encouragement one mailbox at a time. \n \n  \nPurchase more cards here!
URL:https://turnersyndromefoundation.org/event/turner-syndrome-kindness-campaign/
LOCATION:Online
CATEGORIES:Awareness,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Turner-Syndrome-Kindness-Campaign-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260701
DTEND;VALUE=DATE:20261001
DTSTAMP:20260724T184817Z
CREATED:20260701T185442Z
LAST-MODIFIED:20260724T184817Z
UID:10003159-1782864000-1790812799@turnersyndromefoundation.org
SUMMARY:Film & Advocacy Opportunity: A Family Planning Survey
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/family-planning-survey/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Family-Planning-Survey-scaled.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260702
DTEND;VALUE=DATE:20270101
DTSTAMP:20260724T184846Z
CREATED:20260702T184206Z
LAST-MODIFIED:20260724T184846Z
UID:10003161-1782950400-1798761599@turnersyndromefoundation.org
SUMMARY:Research Opportunity: Positive Prenatal Screening for Turner Syndrome
DESCRIPTION:
URL:https://turnersyndromefoundation.org/event/research-opportunity-positive-prenatal-screening-for-turner-syndrome/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Research-Positive-Prenatal-screening-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260820
DTEND;VALUE=DATE:20280101
DTSTAMP:20260820T162144Z
CREATED:20260820T161216Z
LAST-MODIFIED:20260820T162144Z
UID:10004345-1787184000-1830297599@turnersyndromefoundation.org
SUMMARY:Wings of Hope - Book Fundraiser
DESCRIPTION:Wings of Hope’s Story\n\n\nWings of Hope was created to honor the strength\, resilience\, and beauty of those living with Turner syndrome. \nThis initiative accompanies the release of Wings of Hope\, a deeply personal book that shares the journey of a mother and daughter navigating Turner syndrome through faith\, perseverance\, and purpose. \nRead or purchase the book here \nSupporters may also choose to donate directly through this fundraiser page\, helping expand awareness and support the mission even further. \nWhy Wings of Hope\nThe butterfly symbolizes transformation\, endurance\, and hope—qualities that reflect the journey of individuals and families living with Turner syndrome. \nWings of Hope shares that journey through the lived experience of a mother and daughter\, highlighting both the challenges and the victories along the way. It is a story grounded in faith\, resilience\, and the belief that even the smallest wings can carry great hope. \nHow the Fundraiser Works \n\nWings of Hope is available for purchase on Amazon\n100% of book proceeds will be donated to the Turner Syndrome Foundation (TSF)\nSupporters can also donate directly through this fundraiser page\nSharing the fundraiser helps amplify awareness and support for the Turner syndrome community
URL:https://turnersyndromefoundation.org/event/wings-of-hope-book-fundraiser/
LOCATION:Online
CATEGORIES:Awareness
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/Screenshot-2026-08-20-at-12.05.41-PM.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260902
DTEND;VALUE=DATE:20270902
DTSTAMP:20260804T175932Z
CREATED:20260703T203603Z
LAST-MODIFIED:20260804T175932Z
UID:10003163-1788307200-1819843199@turnersyndromefoundation.org
SUMMARY:Group Coaching for Women with Turner Syndrome
DESCRIPTION:This is not therapy\, but a structured coaching program focused on turning goals into consistent action. \nSupporting the Turner Syndrome Foundation\nEnrollment in this special Turner syndrome cohort also creates a meaningful opportunity to support the Turner Syndrome Foundation. \nA portion of the service fee may be donated to TSF at the client’s discretion.
URL:https://turnersyndromefoundation.org/event/f-nvld-cohort/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/Screenshot-2026-07-03-at-4.26.06-PM.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260912
DTEND;VALUE=DATE:20260913
DTSTAMP:20260810T171329Z
CREATED:20260703T195944Z
LAST-MODIFIED:20260810T171329Z
UID:10003162-1789171200-1789257599@turnersyndromefoundation.org
SUMMARY:FXT Golf Outing
DESCRIPTION:Join the Arensdorf family for the 1st Annual Golf Outing Fundraiser benefiting the Fragile X Foundation and the Turner Syndrome Foundation. The event will feature an 18-hole shotgun start at 8:00 AM with a meal to follow. Registration will begin at 7am. All proceeds from the outing will be distributed between the two foundations\, supporting their missions to advance research\, education\, advocacy\, and family support programs. We look forward to a day of golf\, camaraderie\, and giving back to these important causes. If you’re not a golfer or can’t attend the outing\, you can still be part of the event by making a donation to one of our benefiting foundations. \nSupport the Fundraiser:\nDonate online\nhttps://givebutter.com/gtFZVj/fxtgolfouting \nMail your donation:\nTurner Syndrome Foundation\nPO Box 726\, Holmdel\, NJ 07733 \nLearn more: https://www.facebook.com/events/995941449474752/ \n 
URL:https://turnersyndromefoundation.org/event/fxt-golf-outing/
LOCATION:19858 E Pleasant Grove Rd\, 19858 E Pleasant Grove Rd\, Peosta\, 52068\, United States
CATEGORIES:In person
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/FXT-Golf-scaled.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260916T110000
DTEND;TZID=America/New_York:20260916T120000
DTSTAMP:20260728T184240Z
CREATED:20260727T183934Z
LAST-MODIFIED:20260728T184240Z
UID:10003167-1789556400-1789560000@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Wednesdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \n\nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\n\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours/2026-09-16/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T200000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260826T221400Z
CREATED:20260706T192946Z
LAST-MODIFIED:20260826T221400Z
UID:10003158-1789675200-1789678800@turnersyndromefoundation.org
SUMMARY:TSF Campus Club Launch
DESCRIPTION:TSF Campus Club Launch Focus Group on September 17 at 8:00 PM ET. We are presenting the TSF Campus Club Ambassador Program\, a new initiative designed to engage college students in raising awareness\, building community\, and advancing the mission of the Turner Syndrome Foundation. \nWe are here to listen to you. As we prepare to launch this program\, we want your perspective on what works\, what could be improved\, and what would inspire students to get involved.\nAs you watch the presentation\, please consider: \n\nIs the opportunity clear and compelling?\nWhat would motivate a student to start or join a TSF Campus Club?\nAre the expectations and benefits clear?\nWhat questions or concerns might a student have?\nHow can we best reach students\, campuses\, and organizations?\n\nThere are no right or wrong answers. Your candid feedback will help us strengthen the program before we introduce it more broadly.\nThank you for helping us build a program that can engage the next generation of leaders in advancing Turner syndrome awareness\, advocacy\, and support.\n \nThe Turner Syndrome Foundation Campus Club Initiative empowers college students to lead awareness\, advocacy\, and education efforts for Turner syndrome—an often underrecognized and underserved condition. \nDespite affecting approximately 1 in 2\,000 females\, Turner syndrome remains widely underdiagnosed\, and many individuals lack access to resources and support. Campus clubs help bridge this gap by increasing awareness and connecting communities to education and services. \nWe are seeking motivated campus leaders who are passionate about advocacy and interested in making a meaningful impact by starting a club at their college or university. \nTSF campus leaders serve as ambassadors who: \n\n\n\nRaise awareness through events and campaigns\nEducate peers and faculty about Turner syndrome\nAdvocate for early diagnosis and improved care\nEngage with campus and local communities\nSupport outreach and fundraising efforts\n\n\n\n  \nIf you are interested in creating your club\, fill out this form \nRegistration Information \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/tsf-campus-club-launch/
LOCATION:Online
CATEGORIES:Awareness,working group
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/TSF-Club-Banner.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260917T200000
DTEND;TZID=America/New_York:20260917T210000
DTSTAMP:20260728T184559Z
CREATED:20260727T184227Z
LAST-MODIFIED:20260728T184559Z
UID:10003334-1789675200-1789678800@turnersyndromefoundation.org
SUMMARY:Club Ambassador Office Hours - Thursdays
DESCRIPTION:Campus Club Ambassador Office Hours\nReady to launch your Turner Syndrome Foundation Campus Club? Join our Campus Club Ambassador Office Hours for personalized guidance and support as you build a successful student organization on your campus. \nWhether you’re just getting started or preparing for your first event\, these office hours provide an opportunity to ask questions\, receive one-on-one coaching\, and connect with the TSF team. \nDuring the session\, we’ll help you: \nRegister Your Club – Complete your college or university’s student organization requirements.\nRecruit Members – Learn effective strategies to engage classmates\, friends\, and other student organizations.\nBuild Your Leadership Team – Establish officer roles\, define club goals\, and create a strong foundation for success.\nLaunch Your First Event – Plan impactful awareness\, education\, advocacy\, or fundraising activities that engage your campus community.\nStay Connected with TSF – Learn about monthly leadership check-ins\, exclusive ambassador opportunities\, resources\, and ongoing support.\nWhether you’re in the planning stages or already leading your campus club\, these office hours are designed to help you grow your leadership skills\, expand awareness of Turner syndrome\, and make a meaningful impact on your campus. \nRegister today and take the next step toward becoming a TSF Campus Club Ambassador!
URL:https://turnersyndromefoundation.org/event/club-ambassador-office-hours-2/2026-09-17/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/07/5-simple-steps-scaled.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260925T200000
DTEND;TZID=America/New_York:20260925T220000
DTSTAMP:20250113T215344Z
CREATED:20250113T215343Z
LAST-MODIFIED:20250113T215344Z
UID:10000077-1790366400-1790373600@turnersyndromefoundation.org
SUMMARY:Star Sisters Monthly Meet Up Event
DESCRIPTION:Star Sisters Monthly Meet-Up Event  \nBe a Star Sister – Meet Others – Get Involved!\nSign Up Now\nA virtual meet-up and private Facebook group for the Turner syndrome community offered exclusively to girls\, women\, and their parents or guardians. Learn from experts\, people with experience\, life coaches & learn from one another! Join today and shine! \nSign up once to receive the virtual meet-up link\, invitation to the private group\, and meeting reminders\, too! Are you an all-star and have something to share with this community? Volunteers interested in speaking\, writing\, or conducting group discussions are encouraged to register and share their interests. \nIf you have any questions\, email Nicole at ntopp@tsfusa.org \nPolicy and disclaimer- To be a Star Sister\, they must have TS or be a parent or guardian of a minor child with TS. All are asked to abide by simple privacy\, kindness\, and decency rules. TSF reserves the right to remove anyone from the group at will. All are urged to proceed with personal responsibility and caution\, as TSF is not responsible for any discussions or actions of others at any time\, including those of group leaders or presenters. Thank you.
URL:https://turnersyndromefoundation.org/event/star-sisters-meet-up-2-2-3/2026-09-25/
LOCATION:Online
CATEGORIES:Star Sisters,Virtual
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2024/03/Star-Sisters.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261001T200000
DTEND;TZID=America/New_York:20261001T210000
DTSTAMP:20260702T194204Z
CREATED:20260618T174304Z
LAST-MODIFIED:20260702T194204Z
UID:10003106-1790884800-1790888400@turnersyndromefoundation.org
SUMMARY:Legislative Advocacy Meeting
DESCRIPTION:Legislative Advocacy Working Group\nThe Turner Syndrome Foundation’s Legislative Advocacy Working Group (LAWG) is a dedicated team of volunteers committed to advancing public policies that improve the lives of individuals affected by Turner syndrome. Through grassroots advocacy\, education\, and community engagement\, members help ensure that the voices of patients\, families\, caregivers\, and healthcare professionals are heard by local\, state\, and federal policymakers. \nWhat Does the Legislative Advocacy Working Group Do?\nThe Working Group monitors legislation and public policy issues that impact healthcare access\, rare disease awareness\, research funding\, education\, and patient support services. Members work together to: \n\nEducate elected officials about Turner syndrome and its lifelong health implications.\nAdvocate for policies that improve access to healthcare\, diagnosis\, treatment\, and support services.\nParticipate in letter-writing campaigns\, phone calls\, and meetings with legislators and their staff.\nRaise awareness of issues affecting the Turner syndrome community at the local\, state\, and national levels.\nCollaborate with other rare disease and patient advocacy organizations on shared policy priorities.\nShare updates on legislative developments and opportunities for community action.\n\nHow Can I Join?\nAnyone passionate about making a difference for the Turner syndrome community is welcome to participate. No prior advocacy experience is required.\nTo get started: \n\nComplete the Turner Syndrome Foundation Volunteer Application.\nSelect Legislative Advocacy when asked\, “In which areas would you like to volunteer?”\nComplete the online volunteer orientation.\nAttend our monthly virtual working group meetings and participate in advocacy activities at a level that fits your schedule.\n\nWhether you can make a phone call\, write a letter\, meet with a legislator\, or help organize advocacy efforts in your state\, your participation can help create meaningful change for individuals and families affected by Turner syndrome. \nTo learn more and get started: \n \nTogether\, we can amplify the voices of individuals and families affected by Turner syndrome and create lasting change.
URL:https://turnersyndromefoundation.org/event/legislative-advocacy-meeting/2026-10-01/
LOCATION:Online
CATEGORIES:Advocacy,Virtual,working group
ATTACH;FMTTYPE=image/jpeg:https://turnersyndromefoundation.org/wp-content/uploads/2026/06/Legislative-Advocacy-scaled.jpg
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261005T200000
DTEND;TZID=America/New_York:20261005T210000
DTSTAMP:20250311T171335Z
CREATED:20250107T035537Z
LAST-MODIFIED:20250311T171335Z
UID:10002115-1791230400-1791234000@turnersyndromefoundation.org
SUMMARY:Education Working Group
DESCRIPTION:The education working group will meet the first Monday of each month. The group is comprised of educators\, administrators\, and allied health professionals.
URL:https://turnersyndromefoundation.org/event/education-working-group-2/2026-10-05/
LOCATION:Online
CATEGORIES:working group
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2024/12/Education-Working-Group.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261008
DTEND;VALUE=DATE:20261009
DTSTAMP:20260826T215249Z
CREATED:20260826T185357Z
LAST-MODIFIED:20260826T215249Z
UID:10004346-1791417600-1791503999@turnersyndromefoundation.org
SUMMARY:DAFday 2026
DESCRIPTION:Make an Impact Through Your Donor-Advised Fund\nA Donor-Advised Fund (DAF) offers a simple\, flexible\, and tax-efficient way to support the Turner Syndrome Foundation and help improve the lives of girls and women affected by Turner syndrome. \nBy recommending a grant to the Turner Syndrome Foundation (TSF) through your DAF\, you help advance our mission to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care for those affected by Turner syndrome. \nYour generosity helps TSF provide education\, patient and caregiver resources\, professional engagement\, advocacy\, and support—reaching individuals and families across the United States and around the world. \nRecommend a Grant Today\nClients of Fidelity Charitable\, Schwab Charitable\, Vanguard Charitable\, and other sponsoring organizations can recommend a grant to the Turner Syndrome Foundation using the DAF giving widget below. \n \nAlready have a Donor-Advised Fund? Put your charitable dollars to work for the Turner syndrome community today. \nGiving Directly Through Your DAF Sponsor\nIf you prefer to contact your financial institution or DAF sponsor directly\, please designate your charitable grant to: \n\nOrganization: Turner Syndrome Foundation\nTax ID (EIN): 27-1409942\nAddress: Turner Syndrome Foundation\, PO Box 726\, Holmdel\, NJ 07733\n\nAfter recommending your grant\, please notify us. DAF grants sometimes arrive without the donor’s complete contact information. Letting us know about your gift allows us to properly acknowledge your generosity and express our appreciation. \nWhy Your DAF Gift Matters\nTurner syndrome is a complex chromosomal condition affecting approximately 1 in every 2\,000 females born and requiring specialized healthcare throughout a lifetime. Yet awareness remains limited\, and many girls and women struggle to find knowledgeable providers\, appropriate resources\, and coordinated care. \nYour DAF can change that. \nYour charitable grant can help TSF: \n\nExpand free patient and caregiver education and support\nIncrease professional awareness of Turner syndrome\nConnect families with information and healthcare resources\nAdvance research and research participation\nStrengthen advocacy and public awareness\nBuild programs that improve care throughout every stage of life\n\nYour Charitable Dollars. Their Healthier Tomorrows.\nIf you have already established a DAF\, recommending a grant is one of the easiest ways to put those charitable funds into action. \nRecommend a grant to the Turner Syndrome Foundation today and help create a future where a missing chromosome never means missed opportunities. \nFor questions or assistance with a DAF gift\, please contact the Turner Syndrome Foundation at info@tsfusa.org | (800) 594-4585 x5.
URL:https://turnersyndromefoundation.org/event/dafday-2026/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/webp:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/DAFday.webp
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261008T200000
DTEND;TZID=America/New_York:20261008T210000
DTSTAMP:20260804T180722Z
CREATED:20260521T182427Z
LAST-MODIFIED:20260804T180722Z
UID:10002936-1791489600-1791493200@turnersyndromefoundation.org
SUMMARY:NVLD and Navigating Emerging Adulthood
DESCRIPTION:WE LEARN Webinar\nNVLD and navigating Emerging Adulthood\nHosted by Turner Syndrome Foundation\, Inc. \nDate: Thursday\, October 8\nTime: 8:00 PM EDT\nFormat: Live Stream \n \n  \nAbout This Event\nJoin us for an informative webinar exploring the unique challenges many young adults with NVLD face as they transition into greater independence. Topics would include executive functioning difficulties\, social confusion\, anxiety\, shame\, identity development\, relationships\, motivation\, and the overwhelming mental load of daily adult life. The presentation would also discuss how NVLD can impact work\, school\, emotional regulation\, and self-esteem\, while offering practical strategies for building structure\, resilience\, self-awareness\, and a sustainable adult life that works with the individual’s brain rather than against it. \nAll registered participants will receive access to the webinar recording for on-demand viewing. \nWhy This Matters\nWhile this webinar focuses on Turner Syndrome\, it also offers valuable insights for a broader audience. Attendees will gain a better understanding of NVLD and help normalize many of the struggles young adults with Turner Syndrome and NVLD-related profiles often experience while also \nWhat You’ll Learn\n\nHow NVLD traits can impact the transition into adulthood\, particularly in areas like independence\, relationships\, emotional regulation\, executive functioning\, anxiety\, and identity development.\nPractical\, actionable strategies for reducing overwhelm\, improving daily functioning\, and building a more sustainable and fulfilling adult life.\nParents\, professionals\, and young adults themselves would gain language\, frameworks\, and concrete tools to better understand these patterns with less shame and more effectiveness.\n\nRegistration & Support\nThis webinar is offered free of charge to ensure accessibility for all. Donations and sponsorships help make educational programs like this possible. \nSupport our mission and help us continue providing free learning opportunities. \nPresenter\nChristina J Cummins\nMS in mental health counseling \nChristina is a therapist-turned-coach who shifted from traditional DBT therapy after seeing how effectively DBT skills helped individuals with NVLD-style neurocognitive profiles make real progress. Her work combines these skills with directive\, action-oriented coaching to help clients translate insight into follow-through. She specializes in supporting young adults who are capable but stuck\, particularly during major life transitions. Her approach is structured\, practical\, and focused on helping clients move toward meaningful\, realistic personal goals. \nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today!
URL:https://turnersyndromefoundation.org/event/nvld-and-navigating-emerging-adulthood/
LOCATION:Online
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/05/Christina-J-Cummins-1.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261012T200000
DTEND;TZID=America/New_York:20261012T210000
DTSTAMP:20241213T032532Z
CREATED:20241213T032529Z
LAST-MODIFIED:20241213T032532Z
UID:10002081-1791835200-1791838800@turnersyndromefoundation.org
SUMMARY:TS Women in Medicine
DESCRIPTION:This is the meeting of a working group and is limited to medical professionals. The quarterly meeting will be presented by the Turner Syndrome Foundation and moderated by Kayla Ganger\, BS\, MHS\, PA-C and Mary Gwyn Roper\, MD\, both active volunteers\, leaders and professional members of the Foundation. The objective of this event is to assemble TS women in medicine with a diverse range of allied health specialties to learn more about the mission and contribute to the discussion about solutions for issues confronting patients today. \nThis working group will learn about: \n\nThe mission of the Foundation\nOutreach Initiatives\nCurrent Objectives\nWhat TS women in medicine can do to improve care\n\nIn this discussion\, you will: \n\nIntroduce & meet Turner Syndrome Women In Medicine\nShare experiences\nExchange ideas\nContribute to next steps for professional awareness\n\nWE Learn is a Turner Syndrome Foundation educational learning activity. \nEvery TS WOMAN IN MEDICINE is encouraged to be a professional member and an active contributor to this working group. \n  \nSIGN UP FOR TURNER SYNDROME WOMEN IN MEDICINE WORKING GROUP \n 
URL:https://turnersyndromefoundation.org/event/tswim-2024-03-26-2-2/2026-10-12/
CATEGORIES:Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2022/01/TS-Women-In-Medicine.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261110T200000
DTEND;TZID=America/New_York:20261110T210000
DTSTAMP:20260812T175436Z
CREATED:20260812T175223Z
LAST-MODIFIED:20260812T175436Z
UID:10004343-1794340800-1794344400@turnersyndromefoundation.org
SUMMARY:Introducing NASCARR: A new partnership connecting researchers\, families\, TSF\, and the NIH to advance research for X&Y Chromosome Variations
DESCRIPTION:Introducing NASCARR: A new partnership connecting researchers\, families\, TSF\, and the NIH to advance research for X&Y Chromosome Variations\n  \n \nJoin us for an informative webinar introducing NASCARR and its potential to advance research and clinical trial readiness for Turner syndrome. \nWith a combined 40+ years of experience in medicine and clinical research\, including the care of individuals with Turner syndrome and other sex chromosome aneuploidy (SCA) conditions\, this session will explore how NASCARR can help strengthen the research landscape and create new opportunities for progress. \nAttendees will gain a clearer understanding of this new funding mechanism\, emerging research initiatives\, and what greater clinical trial readiness could mean for the Turner syndrome community. We’ll also discuss how healthcare professionals\, researchers\, individuals with Turner syndrome\, and families can become involved and help shape the future of research. \nWhether you are a clinician\, researcher\, patient\, family member\, or advocate\, this webinar offers an opportunity to learn how NASCARR is working to accelerate meaningful research and build the foundation for future clinical trials. \n\nEvent Link:\nCheck the email you provided to receive the webinar link. \nCost:\nFree. Donations are appreciated. \nDonations and sponsorships make learning events such as this WE LEARN webinar activity freely and accessible to everyone. Please support us today! \nReturn to view more webinars page.
URL:https://turnersyndromefoundation.org/event/166374/
LOCATION:Online
CATEGORIES:Research,Virtual
ATTACH;FMTTYPE=image/png:https://turnersyndromefoundation.org/wp-content/uploads/2026/08/NASCARR.png
ORGANIZER;CN="Turner Syndrome Foundation":MAILTO:info@tsfusa.org
END:VEVENT
END:VCALENDAR