Category: Uncatergorized


Share: Turner Syndrome PSA

turner syndrome psa

Know the signs. Change a life. For more than a decade, the median diagnosis age for Turner Syndrome has been 15 years old. This is a problem. In the best possible situations, Turner Syndrome girls are diagnosed at birth or…

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TSF is proud to present TSRX!

Turner Syndrome Research eXchange PIN

Turner Syndrome Research eXchange Turner Syndrome Foundation is proud to announce the Turner Syndrome Research eXchange (TSRX) in collaboration with Invitae’s Patient Insights Network (PIN). TSRX is a space for permission-based sharing of your medical data to advance research and…

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Keep the legislative campaign going!

Our petition to send to legislators has seen great success in gaining signatures, but the momentum needs to continue in order to have the largest impact. With 568 signatures across the country we can gain attention, but we know that…

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An impactful last-minute gift for your sweetheart

“There is only one happiness in life: to love and be loved”  Today we are celebrating the best gift of all! An official day to express LOVE to those that somehow have made your existence better. Whether be your friend, parents,…

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Legislative Advocacy in PA

Pennsylvania legislature

One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter,…

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It’s all possible because of YOU!

Thanks

Thank you for your support of TSF’s annual appeal!

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New Year’s Resolutions- let us help you stay on track

Every year, New Year’s Resolutions happen the same way. January first rolls around and we’re all ready for self-improvement: whether its eating healthier, working out, volunteering, traveling, or starting a new hobby, the new year seems like the perfect time…

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In-kind donations: multiply your impact!

in-kind donations

Donated goods and services can have a major impact for TSF!

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From a Father’s Heart

Father and Daughter

Why a Father Supports Turner Syndrome Foundation

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How you can make a difference this holiday season

The holidays are a great time to catch up with friends and family to celebrate the joys of life, but it is also a perfect opportunity to make a difference as a group. We’d like to offer some ideas of…

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