Category: Uncatergorized


Share: Turner Syndrome PSA

turner syndrome psa

Know the signs. Change a life. For more than a decade, the median diagnosis age for Turner Syndrome has been 15 years old. This is a problem. In the best possible situations, Turner Syndrome girls are diagnosed at birth or…

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TSF is proud to present TSRX!

Turner Syndrome Research eXchange PIN

Turner Syndrome Research eXchange Turner Syndrome Foundation is proud to announce the Turner Syndrome Research eXchange (TSRX) in collaboration with Invitae’s Patient Insights Network (PIN). TSRX is a space for permission-based sharing of your medical data to advance research and…

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Legislative Advocacy in PA

Pennsylvania legislature

One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter,…

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It’s all possible because of YOU!

Thanks

Thank you for your support of TSF’s annual appeal!

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From a Father’s Heart

Father and Daughter

Why a Father Supports Turner Syndrome Foundation

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The importance of writing to your legislators

Rally for Medical Research

We have been running our campaign to gain signatures on a letter to legislators for a few weeks now and have recieved great feedback! We’d like to further stress how simple it is to sign on to this legislative advocacy,…

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Turner Syndrome Patient Guide Available Upon Request

[sg_popup id=”1″ event=”onload”][/sg_popup] The Turner Syndrome Patient Guide is available upon request. The “Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome- Brief Synopsis” is a guide that provides a summary of the main points from…

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Rally for Medical Research

  2017 Rally for Medical Research Turner Syndrome Foundation representatives attended the 2017 Rally for Medical Research this September in Washington, DC. The meetings and reception were held in the Grand Hyatt Hotel and on Capitol Hill. Aligning with advocacy…

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Together we make a difference!

Standing Tall for Turner Syndrome

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Succeed in School

Every day two or more girls with TS are born in the United States. Resources are available to help these young scholars succeed.

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