Category: Uncatergorized


Andrea Levey

In loving memory of Andrea Eden Levey Memorial Donations  

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A Stellar Video: This is my story

Eager to spread awareness of Turner Syndrome, Stella decided to share her Turner Syndrome journey. This courageous and beautiful young lady is making a difference. Watch her video, read her story and be inspired!  Don’t let anyone discourage you from…

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Back to School Guide

Back to School

Back to School It’s that time of the year again – summer is coming to an end and parents are getting their children ready to go back to school. Every student follows a similar checklist such as buying new notebooks,…

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In-Kind Donation Request

in-kind donations

The last few months of the year are particularly important for nonprofits. Americans become increasingly generous as the summer months come to a close and we enter the holiday giving season. According to Network for Good, 12% of annual giving…

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North Carolina Community Potluck

North Carolina Community Potluck Turner Syndrome Foundation supporter, Audrey Jones, is organizing a potluck event to bring the North Carolina and nearby Turner Syndrome community together. This casual event is for individuals, families, and friends who have or are connected to…

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Goddess Garden Organics Supports TS Weekend

Thank you, Goddess Garden Organics, Autumn Retreat Sponsor! Big thank you to Goddess Garden Organics for supplying sunscreen for the Turner Syndrome Autumn Retreat! The Autumn Retreat will be held on September 21-23, 2018 at YMCA Camp Ockanickon in Medford, NJ….

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Running the NJ Marathon with TSF

Running the 2018 NJ Marathon was one of the most memorable races of my life. In addition to completing the race in 3 hours 26 minutes, I also re-qualified for the Boston Marathon, matching my personal marathon record I ran…

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Overcoming Labels: How ONE Sixth Grader Opens Up About Having Turner Syndrome

It takes a strong, resilient, and driven person to overcome a label that has been associated with them their entire life. This is the case with 12-year-old Natalie Mohorter, an extremely intelligent, beautiful young sixth grader with Turner’s Syndrome. Natalie tried to deliver to people while organizing her sixth grade Gateway Project, a capstone class assignment meant to spread awareness about any topic of her choice. In this project, she officially came out to her fellow classmates, teachers, and community about having Turner Syndrome.

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Running: The Perfectly Painful Outlet

Everyone has an outlet. A passion, an activity, a guilty pleasure. Something that puts their mental and physical health in check. Well….mine is running. Running is more than an activity designed to keep you in excellent physical shape. It is…

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Are you interested in sharing your experience with Turner Syndrome?

Audrey (AJ) Jones, a first year cultural anthropology doctoral student at Emory University, is conducting an ethnographic study of girls and women with Turner Syndrome.  ABOUT STUDY: Unlike the typical medical studies of Turner Syndrome, this study is interested in…

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