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Category: Featured Articles


Expecting a Baby Girl with Turner Syndrome

If you are a parent expecting a baby girl with Turner Syndrome, first of all, congratulations! This is an exciting time of life, despite the questions and concerns a Turner Syndrome diagnosis might bring. Turner Syndrome is completely random, and…

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Leisa’s Passion for Helping Others

Woman with Turner Syndrome

It’s National Volunteer Month! Today we are highlighting Leisa Jenkins, mother of a girl who has Turner Syndrome, coach, author of 10x Your Inner Rockstar, and a TSF volunteer. As a volunteer, Leisa is a member of our Engaged Volunteer…

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Learn about Hearing Loss

Many people don’t realize that Turner Syndrome is more than just short stature. It can lead to many different health concerns, including hearing loss. Up to 90% of TS patients have sensorineural hearing loss. Also, up to 80% of TS…

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Positivity through the Journey

“I have always been shorter and smaller than my peers and that’s okay. I like being my own unique self! We are all beautiful, no matter what!“ Cassidy is a woman who has Turner Syndrome with a story to share….

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A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

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Research Opportunities

Turner Syndrome Research eXchange

Research is a team effort. The more people that are on the team, the more effective research can be. It is important for all women, girls, and family members affected by Turner Syndrome to contribute to clinical trials in order…

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From Heartbroken to Hopeful

Kourtney’s Story “My pregnancy with Natalie was my third pregnancy. After two fetal loses, the doctors were watching me closely and considered me high risk. We were terrified to get our hopes up that this pregnancy would be successful. At…

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Meant to Live

Ivy was diagnosed with Turner Syndrome at 16 weeks in utero. The doctors gave us no hope that she would live. But 20 weeks later, our little girl beat the 1% odds and came screaming into this world and she’s…

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Turner Syndrome. Know the Signs.

Diagnosis

Turner Syndrome. Know the signs. A list of Common Symptoms: Short statured Verbally gifted Learning issues Frequent earaches Delayed puberty ORDER A WINDOW DECAL FOR AWARENESS TAKE A CLOSER LOOK AT SHORT GIRLS WHAT IS TS? SYMPTOMS DIAGNOSING

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