Featured Articles Archives - Page 5 of 9 - Turner Syndrome Foundation //

Category: Featured Articles


New Merchandise- the Story Behind the Designs

new ts awareness merchandise

We are so excited for the launch of new merchandise to show Turner Syndrome Pride! The items feature unique designs with symbols commonly associated with TS. They are available on a variety of products from hats to blankets to sweatshirts…

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Pediatric Care Guidelines for Turner Syndrome

pediatric care guidelines

In this post, we will share care guidelines for pediatric patients with Turner syndrome (TS). We aim to provide a general breakdown of suggested physician visits and tests to expect to ensure early monitoring and prevention of potential health concerns….

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Thankful for Turner Syndrome

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…

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My Story: I Wouldn’t Change a Thing

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Jill, a 28-year-old woman with TS. Jill discusses how she found…

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Celebrate Children’s Day with TSF!

World Children’s Day is a day to celebrate the rights and education of children. This year, in honor of Children’s Day on November 20th, the Turner Syndrome Foundation (TSF) is are offering two opportunities to celebrate your special child. Spotlight…

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Announcing 24/7 Caregivers Group

“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a…

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Physicians Making a Difference!

physicians making a difference

The Professional Membership is an opportunity for professionals such as physicians to get involved with TSF to advance our mission. Allied health professionals are poised to  improve resources and support for improved quality and access to care for individuals with…

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Defining Key Terms in Discussing Turner Syndrome

Turner syndrome definitions

Medical information can be confusing, and defining key terms in discussing Turner Syndrome (TS) is important. In this post, we aim to provide definitions of some general medical terms and some specifically associated with TS. General Medical Terms Amniocentesis: procedure…

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My Story: Living with an Autoimmune Disease and Other Medical Issues

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Coping with TS can be challenging, but dealing with other…

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Is Growth Hormone Therapy Right for Your Child?

is growth hormone therapy right for your child?

In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for…

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