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Category: Featured Articles


Why I Fundraise: Ideas for In-person and Virtual Fundraisers

Why I Fundraise

In this post, Lori, a mother of a woman with Turner Syndrome (TS), details two awareness and fundraising events she organized and how she has pivoted to virtual activities since then. My Motivation People ask me why I fundraise for…

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Awareness Month 2021: YOU Can Make a Difference

February is Turner Syndrome Awareness Month! We want to let you know how you can get involved and make a difference by raising awareness of Turner Syndrome. Each and every person’s efforts to spread the word about Turner Syndrome has…

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Choosing a Health Insurance Plan

Choosing a health insurance plan

In this post, we will discuss some tips on how to choose a health insurance plan based on a recent webinar presented by Pfizer and hosted by the Turner Syndrome Foundation (TSF). Particularly, we will focus on considerations to think…

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2020 in Review

TSF 2020 in review

As a TS patient, I’ve been longing for a community and resources to access the information and community I’ve been craving. TSF has given that to me 10-fold as I began joining their online forums, volunteer on their Awareness Committee…

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My Story: Navigating Turner Syndrome Under the Radar

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…

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From 1938 to 2020: It’s Time for Change

Did you know that Turner Syndrome (TS) was first discovered in 1938? It might be hard to believe, given that, after 80 years, there is still a lack of awareness, research, and support for the TS community. Take a look…

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My Story: Never Let a Diagnosis Get in Your Way

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…

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Adult Care Guidelines for Individuals with Turner Syndrome

adult care guidelines

In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in…

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Letters from Santa

Spread holiday cheer with a letter from Santa to your child! You can select a pre-written letter template, add some personalization, and TSF will send the letter to your child, from Santa. Registration is open from December 7-14th so that…

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Ways To Give Back to the TS Community

Want to find more ways to spread holiday cheer this season? Help children and adults with Turner Syndrome (TS) access the resources and support they need to excel by giving to the Turner Syndrome Foundation (TSF). Learn the many ways…

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