Turner Syndrome FoundationCategory: Featured Articles
Register for TSRX to Help Science Know More About Turner Syndrome!
Subscribe to our Blog! The future of Turner syndrome research is in the hands of the patient community. The Turner Syndrome Foundation, in collaboration with Invitae Patient Insights Network (PIN), has established a TSRX PIN to assist the patient community…
Read MoreVolunteers Drive Our Success
Each April, we celebrate National Volunteer Week and Global Volunteer Month. Nonprofits, especially small organizations like the Turner Syndrome Foundation (TSF), rely heavily on volunteers to carry out their missions. We at TSF are so grateful for our volunteers; we…
Read MorePlaying for a Purpose: LSU Women’s Basketball & Baton Rouge Attorney Support TS Awareness
During Turner Syndrome Awareness Month (TSAM) 2023, the Louisiana State University (LSU) Women’s Basketball Team held a Turner syndrome awareness night at its game on February 2nd. This was an exciting step in our awareness efforts that we are thrilled…
Read MoreTSF Celebrates National Disability Awareness Month
March is National Disability Awareness Month. It is a time to celebrate the contributions of those with disabilities, including people who also have chronic conditions like Turner syndrome (TS). While TS is not in itself a disability, some individuals with…
Read MoreCard Auction February 2023
ORGANIZER Lori Kobular Instagram: @mulchlady6 Email: lkobular@tsfusa.org BIDDING ENDS Starts – Wednesday, February 1, 9AM Ends – Tuesday, February 28, 11:59PM EST ONLINE AUCTION The card auction & bidding will take place on: https://www.instagram.com/mulchlady6/ Exciting Updates on the Greeting Card…
Read MoreSharing a Turner Syndrome Diagnosis with Your Child at Different Stages
Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis…
Read MoreAccomplishing Great Things: Turner Syndrome Foundation’s 2022 Annual Report
The Turner Syndrome Foundation (TSF) had a very productive 2022! We expanded our programs and initiatives to support patients, caregivers, and families affected by Turner syndrome (TS). Let’s take a look at TSF’s 2022 Annual Report, which outlines the organization’s…
Read MoreGet Ready for Turner Syndrome Awareness Month 2023!
Turner Syndrome Awareness Month 2023 is fast approaching! The entire month of February is dedicated to increasing awareness of Turner syndrome (TS). The Turner Syndrome Foundation’s (TSF’s) Awareness Committee has put together lots of fun-filled challenges for the month. Don’t…
Read MoreA Day in the Life with Turner Syndrome: Throughout the Lifespan
With this post, we conclude our “Day in the Life” series and recall all the amazing individuals we’ve gotten to know! Canon Pham, a high school senior from California and Turner Syndrome Foundation (TSF) blog volunteer, came up with the…
Read MoreLegislative Advocacy at TSF: Pursuing Lasting Change
Advocacy takes many forms, from standing up for those experiencing discrimination to raising awareness of a global cause. The most effective advocacy measures are those that create sustained change via the laws that govern access to services and care. Legislative…
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