Turner Syndrome FoundationCategory: Featured Articles
2020 in Review
As a TS patient, I’ve been longing for a community and resources to access the information and community I’ve been craving. TSF has given that to me 10-fold as I began joining their online forums, volunteer on their Awareness Committee…
Read MoreMy Story: Navigating Turner Syndrome Under the Radar
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…
Read MoreFrom 1938 to 2020: It’s Time for Change
Did you know that Turner Syndrome (TS) was first discovered in 1938? It might be hard to believe, given that, after 80 years, there is still a lack of awareness, research, and support for the TS community. Take a look…
Read MoreMy Story: Never Let a Diagnosis Get in Your Way
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…
Read MoreAdult Care Guidelines for Individuals with Turner Syndrome
In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in…
Read MoreLetters from Santa
Spread holiday cheer with a letter from Santa to your child! You can select a pre-written letter template, add some personalization, and TSF will send the letter to your child, from Santa. Registration is open from December 7-14th so that…
Read MoreWays To Give Back to the TS Community
Want to find more ways to spread holiday cheer this season? Help children and adults with Turner Syndrome (TS) access the resources and support they need to excel by giving to the Turner Syndrome Foundation (TSF). Learn the many ways…
Read MoreNew Merchandise- the Story Behind the Designs
We are so excited for the launch of new merchandise to show Turner Syndrome Pride! The items feature unique designs with symbols commonly associated with TS. They are available on a variety of products from hats to blankets to sweatshirts…
Read MorePediatric Care Guidelines for Turner Syndrome
In this post, we will share care guidelines for pediatric patients with Turner syndrome (TS). We aim to provide a general breakdown of suggested physician visits and tests to expect to ensure early monitoring and prevention of potential health concerns….
Read MoreThankful for Turner Syndrome
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…
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