Category: Personal Journey Stories Told

"Turner Girls Can": Rebranding TSF Alaska

Turner Girls Can

Over several years TSF Alaska has become an uplifting page on Facebook for members of the Turner Syndrome community to share photos of their girls doing amazing things. We have decided to embrace this change and officially rebrand the page,…

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A Woman's Perspective on Infertility

coming out turner syndrome diagnosis

by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF The Topic of Infertility Infertility is definitely not a typical holiday topic, but it is a quiet discussion that whispers around the corners of my holidays: at family gatherings,…

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How I handle my anxiety

By: Josey Petz, TSF Volunteer I am sure not many of you know this, but women with Turners Syndrome can easily develop anxiety. I definitely have had anxiety for as long as I can remember. I am constantly worried about…

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A Stellar Video: This is my story

Eager to spread awareness of Turner Syndrome, Stella decided to share her Turner Syndrome journey. This courageous and beautiful young lady is making a difference. Watch her video, read her story and be inspired!  Don’t let anyone discourage you from…

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A story of love, hope & perseverance

Our Turner Syndrome Story… On December 11th, 2017 I was at work anticipating a call to find out the gender of our baby that would ultimately change our lives. From week 7 I had a feeling so strong she was…

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Legislative Advocacy in PA

Pennsylvania legislature

One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter,…

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“Love will find you and won’t know it.”

Meet Chandra. In her story and video below she tells us about her TS diagnosis, the struggles she faced, and how she met the love of her life. She even offers some dating advice for those who feel they will…

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“Why me” to “What for?” A remarkable story.

Natalie C., A mother, a physician, a researcher… yet it wasn’t until her daughter was 12 years of age when she received the diagnosis. A remarkable story that reminds parents that there should be no room for feelings of guilt for HER diagnosis. As a parent, there is nothing you could’ve done to prevent it. Rather, focus on what to do after you receive it!

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From a daughter’s heart

My mother, Paula, wearing  red and myself at 8 years of age on the right.            My story is a little unique, and hopefully inspiring, to others because as an adopted child Turner Syndrome affected my…

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