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Volunteering to Make a Difference

As you read last week, Cassidy is a woman who volunteers with us to make a difference. She shared her story of overcoming challenges, finding support, and connecting with the community. This week, she shares why she volunteers and the…

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Positivity through the Journey

“I have always been shorter and smaller than my peers and that’s okay. I like being my own unique self! We are all beautiful, no matter what!“ Cassidy is a woman who has Turner Syndrome with a story to share….

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Preparing to Move it for Millie

Move it for Millie 2020

written by Heather Benoit- Millie’s Mom & Move it for Millie Event Director  Watch a video about Heather’s experience organizing this annual event. Overall, the impact of our event has been humbling and sincere. We have raised awareness throughout the…

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2020 Turner Syndrome Autumn Retreat

2020 Turner Syndrome Autumn Retreat

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How do you Raise Awareness?

February Awareness Month just ended and we want to know how you participated! We have created a survey to find out just that. There are so many ways to spread the word about TS. Whether you just share your story…

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Help Us Raise Awareness in Every State!

February is Turner Syndrome Awareness Month

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New! Turner Syndrome Patient Handbook

Patient Handbook on Turner Syndrome

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A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

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Awareness Month Involvement Packet

Involvement Guide

February Awareness Month is almost here, and we have prepared so many ways for you to join us in making change. Raising awareness happens all year, but February is a special time for us to focus our efforts and work…

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“Taking Action this Awareness Month” Webinar

Awareness Webinar

We have a very special free webinar planned for Thursday, January 9th at 8 pm EST! This will be a webinar to discuss all the things we have prepared for you in Awareness Month this February. Additionally, you will hear…

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