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Category: Volunteers


TS Awareness: Move it for Millie

Heather Benoit lost her daughter, Millie, of Turner Syndrome at 20 weeks of gestation. Understanding the importance of greater awareness of this rare yet widely unrecognized condition, Heather’s friends & family decided to honor Millie’s memory by hosting an awareness event. Over 300 people were present…

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Share: Turner Syndrome PSA

turner syndrome psa

Know the signs. Change a life. For more than a decade, the median diagnosis age for Turner Syndrome has been 15 years old. This is a problem. In the best possible situations, Turner Syndrome girls are diagnosed at birth or…

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Legislative Advocacy in PA

Pennsylvania legislature

One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter,…

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Meet Rachel

Welcome Rachel Belmont, Team TSF Coordinator! Rachel is a junior in college studying Health Studies with plans on applying to physical therapy programs this summer. Rachel is an avid runner, but her running journey began on a rough note. In…

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The importance of writing to your legislators

Rally for Medical Research

We have been running our campaign to gain signatures on a letter to legislators for a few weeks now and have recieved great feedback! We’d like to further stress how simple it is to sign on to this legislative advocacy,…

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Making TS a National Priority

turner syndrome, awareness month, raise awareness

Sign the petition to urge legislator to make Turner Syndrome a national priority by declaring the month of February Turner Syndrome Awareness Month.

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“My Guy & Me”… Acknowledging the important males in your life.

Although Turner Syndrome only occurs in females, there is no denying the impact it can have on men as well. Fathers, grandfathers, brothers, sons, partners, doctors and friends can all have a connection to Turner Syndrome through the women in…

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Together we make a difference!

TS family

Standing Tall for Turner Syndrome

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Youth Contributors

Internship

Social consciousness of Turner Syndrome is evident through our solid base of youth activists. TAKE ACTION and visit https://turnersyndromefoundation.org/volunteer/ to get involved.

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Turner Syndrome. Know the Signs.

Turner Syndrome. Know the signs. A list of Common Symptoms: Short statured Verbally gifted Learning issues Frequent earaches Delayed puberty ORDER A WINDOW DECAL FOR AWARENESS TAKE A CLOSER LOOK AT SHORT GIRLS WHAT IS TS? SYMPTOMS DIAGNOSING

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