Turner Syndrome FoundationCategory: Patient Resource
Turner Syndrome and Heart Health
Heart health is especially important for those with Turner Syndrome (TS), as their risk of certain types of heart disease is higher. It is crucial that TS patients receive early cardiac care to avoid serious illness and possibly death. This…
Read MoreEverything You Need To Know about the TSRX-PIN Registry
One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during…
Read MoreNew Resource for Parents Expecting a Baby with Turner Syndrome
New Resource for Expectant Parents: Prenatal Testing & Information About Turner Syndrome booklet. Learn more
Read MoreMaking Exercise Enjoyable
We all know that exercise is good for us, but for someone with a chronic condition like Turner Syndrome (TS), it is even more important. Read below for some tips for making exercise more enjoyable for you and your children….
Read MoreA Guide to Common Challenges of Elementary Schoolers with Turner Syndrome
School can be difficult for many students, but especially if they have a chronic condition. This article will address the common challenges of elementary schoolers with Turner Syndrome (TS) and how to help them overcome them.. Disclaimers: Caretakers, this article…
Read MoreHow To Open a Conversation About Turner Syndrome Diagnosis
One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this…
Read MoreStress Free Health Care
The Importance of Stress Free Health Care Did you remember to take your medicine today? Did you attend your doctor’s appointment? Maintaining good health practices is a frequent topic of discussion in society. From talking about certain diets such as…
Read MoreTurner Syndrome and Diabetes
Diabetes is a condition that affects a large percentage of individuals with Turner Syndrome (TS). It has received even more attention due to the pandemic, as there is now a growing focus on staying healthy to help strengthen our immune…
Read MoreHow to Live Courageously With Type 2 Diabetes: Webinar
Confronting T2 Diabetes in Turner Syndrome Did you know that the Turner Syndrome community is at a heightened risk for developing type II diabetes? Sugary drinks and other sweet treats lovingly doled out to children may not have been the…
Read MoreMy Story: Moving from Pain to Purpose
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their loved ones/caregivers. This month, it is an honor to share Bill’s story. His late wife, Jennifer, had TS and…
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