Category: Patient Resource


How To Spread Your Butterfly Wings & Be Successful in College

Getting accepted to college is a huge accomplishment. Many students wonder if they are prepared for the challenges they might face when entering college and feel worried about managing academic and personal life. The transition from high school to college…

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Living Independently with Turner Syndrome

Turner Syndrome (TS) is a genetic condition that affects 1 in every 2,000 live female births. Individuals with TS usually have short stature, may be infertile, and may experience a variety of medical, cognitive, and psychological challenges. Given these challenges,…

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Cardiovascular Risk in TS Patients: Integrating Cardiology, Genetics, and Endocrinology

The importance of early cardiac evaluation and intervention for  those with Turner Syndrome (TS) cannot be stressed enough. In this post, we will explore a study that highlights the different cardiovascular risks for TS patients and their connection to endocrine…

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TSF’s Professional Membership for Healthcare Professionals

Ongoing, specialized medical care is essential for those with Turner Syndrome (TS). The Turner Syndrome Foundation (TSF) offers a Professional Membership Program for healthcare professionals to network, share resources, and register themselves as TS providers in our registry. Communication is…

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My Story: If I Was Tall

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers impacted by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….

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Turner Syndrome and Celiac Disease

May is Celiac Disease Awareness Month. Those with Turner Syndrome (TS) are at increased risk for celiac disease. As with TS, Increased awareness is critically important, so that patients, their caregivers, and medical professionals are aware of the symptoms, diagnosis,…

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How Vision Problems Can Affect Your Life

Individuals with Turner syndrome (TS) are more susceptible to vision problems than the general population. Vision challenges can affect almost every part of a person’s life. Since May is Healthy Vision Month, let’s look at some common vision issues and…

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Social Skills and Relationships in Turner Syndrome: a Study

social skills

One of the main goals of the Turner Syndrome Foundation (TSF) is to educate medical professionals and institutions on important research that can help patients with Turner Syndrome  (TS). In this post, we summarize the research paper “Social Skills and…

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Safe & Effective Hormone Therapy for Turner Syndrome Patients

The Turner Syndrome Foundation (TSF) is a strong advocate for early diagnosis. Diagnosing Turner Syndrome (TS) early is critical, in part, because it allows for timely and effective growth hormone therapy (GHT) treatment for TS patients. Read below about one…

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Gene Analysis Helps Identify Causes of Turner Syndrome

As part of its mission to support the Turner Syndrome (TS) community, the Turner Syndrome Foundation (TSF) spreads awareness of this chromosomal condition. With increased awareness, researchers will have the knowledge to develop new perspectives about TS. As a result,…

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