Turner Syndrome FoundationCategory: Patient Resource
My Story: Moving from Pain to Purpose
As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their loved ones/caregivers. This month, it is an honor to share Bill’s story. His late wife, Jennifer, had TS and…
Read MoreEating Healthy: Have You Eaten Your Veggies Today?
Everywhere you turn for guidance on nutrition, you will find strong recommendations to eat more of a plant-based diet. But did you know that the many varieties of vegetables have fantastic healing properties? Eating a diet rich in vegetables (and…
Read MoreFertility Preservation in Turner Syndrome
In this post, we’ll review some of the information shared during the webinar “Fertility Preservation in Girls with Turner Syndrome” hosted by the Turner Syndrome Foundation, featuring guest speaker Dr. Kutluk Oktay–an OB/GYN physician and professor at Yale University. We…
Read MoreBalancing Emotional Wellness
From time to time, we all need a little support to maintain emotional wellness. After months of sheltering in place, we must find balance in managing health and emotional wellness as we begin anew. WEBINAR TOPIC Balancing Emotional Wellness REGISTER…
Read MoreTurner Syndrome and Celiac Disease
The month of May has been dedicated to Celiac Disease Awareness. Increased awareness of both Turner Syndrome (TS) and celiac disease is critically important. Celiac disease is more prevalent in those with TS, so it is vital that patients, their…
Read MoreEnvironmentally Friendly Ways To Promote TS Awareness & Fundraise
You can help members of the Turner Syndrome (TS) community and protect the environment at the same time. Learn more about environmentally friendly ways to promote TS awareness and how to support the Turner Syndrome Foundation (TSF), while also doing…
Read MoreThyroid Disorders in TS: The Definitive Guide
This post is based on the recent webinar by Dr. Schweiger on “Thyroid Disorders in Turner Syndrome.” It briefly highlights the two common thyroid-related autoimmune conditions, hypothyroidism and hyperthyroidism, that greatly affect the Turner Syndrome community—hypothyroidism and hyperthyroidism. Note: The…
Read MoreHow to Set Goals to Overcome Challenges
Do you or a loved one have challenges due to having health conditions like TS? Have you ever struggled with overcoming your challenges or setting goals? This article will help you learn what goals are, a certain goal-based system that…
Read MoreEverything You Need to Know About Fertility Preservation Treatments
This post is based on the recent webinar by Dr. Oktay on “Fertility Preservation in Girls with Turner Syndrome.” It briefly highlights the importance of early diagnoses and treatment as well as the types of fertility preservation treatments individuals with…
Read MoreHealth Insurance and Reimbursements FAQ’s- Accessing Growth Hormone
This post presents important information about the types of insurances and reimbursement process for growth hormone treatment from recent webinar “Insurance & Reimbursement – A Turner Syndrome Foundation Webinar” presented by Patient Affairs Liaisons from Pfizer. What is a Patient…
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