Patient Resource Archives - Turner Syndrome Foundation //

Category: Patient Resource


Everything You Need To Know about the TSRX-PIN Registry

One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during…

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New Resource for Parents Expecting a Baby with Turner Syndrome

prenatal diagnosis

New Resource for Expectant Parents: Prenatal Testing & Information About Turner Syndrome booklet. Learn more

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Making Exercise Enjoyable

We all know that exercise is good for us, but for someone with a chronic condition like Turner Syndrome (TS), it is even more important. Read below for some tips for making exercise more enjoyable for you and your children….

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A Guide to Common Challenges of Elementary Schoolers with Turner Syndrome

School can be difficult for many students, but especially if they have a chronic condition. This article will address the common challenges of elementary schoolers with Turner Syndrome (TS) and how to help them overcome them.. Disclaimers: Caretakers, this article…

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How To Open a Conversation About Turner Syndrome Diagnosis

One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this…

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Stress Free Health Care

The Importance of Stress Free Health Care Did you remember to take your medicine today? Did you attend your doctor’s appointment? Maintaining good health practices is a frequent topic of discussion in society. From talking about certain diets such as…

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Turner Syndrome and Diabetes

diabetes

Diabetes is a condition that affects a large percentage of individuals with Turner Syndrome (TS). It has received even more attention due to the pandemic, as there is now a growing focus on staying healthy to help strengthen our immune…

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How to Live Courageously With Type 2 Diabetes: Webinar

Confronting T2 Diabetes in Turner Syndrome Did you know that the Turner Syndrome community is at a heightened risk for developing type II diabetes? Sugary drinks and other sweet treats lovingly doled out to children may not have been the…

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My Story: Moving from Pain to Purpose

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their loved ones/caregivers. This month, it is an honor to share Bill’s story. His late wife, Jennifer, had TS and…

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Eating Healthy: Have You Eaten Your Veggies Today?

flat lay photography of vegetable salad on plate

Everywhere you turn for guidance on nutrition, you will find strong recommendations to eat more of a plant-based diet. But did you know that the many varieties of vegetables have fantastic healing properties? Eating a diet rich in vegetables (and…

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