Turner Syndrome FoundationCategory: Patient Resource
Health Insurance and Reimbursements FAQ’s- Accessing Growth Hormone
This post presents important information about the types of insurances and reimbursement process for growth hormone treatment from recent webinar “Insurance & Reimbursement – A Turner Syndrome Foundation Webinar” presented by Patient Affairs Liaisons from Pfizer. What is a Patient…
Read MoreAdult Care Guidelines for Individuals with Turner Syndrome
In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in…
Read MoreCommon Doctors for Individuals with Turner Syndrome
Turner syndrome (TS) is a complex disorder, and a variety of specialized healthcare providers are involved in its management depending on individual needs. Although finding the right provider is a challenge of its own, remember that we are here to…
Read MoreHow to Find a Turner Syndrome Specialist
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…
Read MoreDefining Key Terms in Discussing Turner Syndrome
Medical information can be confusing, and defining key terms in discussing Turner Syndrome (TS) is important. In this post, we aim to provide definitions of some general medical terms and some specifically associated with TS. General Medical Terms Amniocentesis: procedure…
Read MoreAutoimmune Diseases Common in Turner Syndrome
In this post, we will discuss some of the autoimmune diseases commonly associated with Turner Syndrome (TS), including Hashimoto’s thyroiditis, diabetes, and celiac disease. Learn more about the causes, symptoms, diagnosis, and treatment of these conditions below. Note: The information…
Read MoreAutoimmune Diseases and Turner Syndrome: a Brief Overview
This post provides a general overview of autoimmune diseases associated with Turner Syndrome (TS). Note: This post is solely intended to inform and educate readers. It should not be considered medical advice and is not a substitute for recommendations or…
Read MoreHow To Advocate for Your Child in School: Navigating 504 Plans and IEPs
Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP)…
Read MoreFinancial Resources for Growth Hormone Therapy
Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for…
Read MoreFinding Answers to Your Questions about Turner Syndrome
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome (TS). They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
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