Category: Parent/Caregiver


Turner Syndrome and Heart Health

Heart health is especially important for those with Turner Syndrome (TS), as their risk of certain types of heart disease is higher. It is crucial that TS patients receive early cardiac care to avoid serious illness and possibly death. This…

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Take a Step For TS

Intro 2021 has been busy for many of us. It’s hard to balance our academic, work, family, and social lives on top of weathering the pandemic’s many changes. Because of that, it has become difficult for us to find time…

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TSF Celebrates Hispanic Heritage Month

Each year, we observe National Hispanic Heritage Month from September 15th to October 15th by celebrating the histories, cultures and contributions of individuals in the U.S. whose ancestors came from Spain, Mexico, the Caribbean, and Central and South America. The…

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Everything You Need To Know about the TSRX-PIN Registry

One of the many things the COVID-19 pandemic has taught us is the importance of scientific research. Without research, we could not solve many health questions, like how to help treat people with rare conditions like Turner Syndrome (TS) during…

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New Resource for Parents Expecting a Baby with Turner Syndrome

prenatal diagnosis

New Resource for Expectant Parents: Prenatal Testing & Information About Turner Syndrome booklet. Learn more

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Making Exercise Enjoyable

We all know that exercise is good for us, but for someone with a chronic condition like Turner Syndrome (TS), it is even more important. Read below for some tips for making exercise more enjoyable for you and your children….

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Daughter’s Day 2021

Raising Daughters Now and Then Today is Daughter’s Day 2021, a day in society where being a daughter and having a daughter means something completely different than it did even a few years ago.  Women are teaching their young daughters…

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A Guide to Common Challenges of Elementary Schoolers with Turner Syndrome

School can be difficult for many students, but especially if they have a chronic condition. This article will address the common challenges of elementary schoolers with Turner Syndrome (TS) and how to help them overcome them.. Disclaimers: Caretakers, this article…

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How To Communicate Effectively

webinar balancing emotional wellness

The importance of communication has increased during the pandemic, The Turner Syndrome Foundation (TSF) presents this article to discuss effective communication and the barriers to it, communication in different situations, communication for social change (like TS awareness!), and resources to…

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How To Open a Conversation About Turner Syndrome Diagnosis

One of the most challenging aspects of Turner Syndrome (TS) is knowing when and how to approach the TS diagnosis conversation. Whether you are a parent/caregiver or patient, read on to learn more about when and how to have this…

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