Parent/Caregiver Archives | Page 2 of 12 | Turner Syndrome Foundation //

Category: Parent/Caregiver


Exercise and Young People with Turner Syndrome

Event Gallery

This post summarizes an article by Dr. Thalia Thompson, et al. titled “A Mixed-Methods Study of Physical Activity and Quality of Life in Adolescents with Turner Syndrome.” It explores how Turner Syndrome (TS) affects young people’s ability to exercise, given…

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Environmentally Friendly Ways To Promote TS Awareness & Fundraise

You can help members of the Turner Syndrome (TS) community and protect the environment at the same time. Learn more about environmentally friendly ways to promote TS awareness and how to support the Turner Syndrome Foundation (TSF), while also doing…

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My Story: Never Stop Fighting

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals affected by Turner Syndrome (TS). Meet Kym, a TSF volunteer from NJ who will never stop fighting for increased awareness and earlier diagnosis. Note: Everyone’s journey…

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Thyroid Disorders in TS: The Definitive Guide

This post is based on the recent webinar by Dr. Schweiger on “Thyroid Disorders in Turner Syndrome.” It briefly highlights the two common thyroid-related autoimmune conditions, hypothyroidism and hyperthyroidism, that greatly affect the Turner Syndrome community—hypothyroidism and hyperthyroidism. Note: The…

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How to Set Goals to Overcome Challenges

How to Set Goals to Overcome Challenges

Do you or a loved one have challenges due to having health conditions like TS? Have you ever struggled with overcoming your challenges or setting goals? This article will help you learn what goals are, a certain goal-based system that…

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Celebrating TS Moms

Celebrating TS Moms

Yesterday was Mother’s Day, so we want to feature some of the amazing moms within the Turner Syndrome community. Thank you to all of the amazing moms who support the TS community!

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How To Call Government Officials Like A Pro

how to call government officials

Calling your local government officials is a great way to spread awareness of your cause and fight for actionable change, but many people may not know how to do it, or why. This article will tell you everything you need…

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When to Share the Turner Syndrome Diagnosis?

when to share the Turner syndrome diagnosis

In this post, we explore perspectives on when to share the diagnosis of Turner Syndrome with a child. This post is an update of an article published by TSF, based on a 2006 research study. Some personal perspectives shared within…

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My Story: I Feel So Lucky

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents and caregivers. In this post, Rita, a 78-year-old woman who was diagnosed with TS at 17 years old,…

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Estrogen Replacement Therapy Overview

Estrogen Replacement Therapy Overview

Estrogen Replacement Therapy (ERT) is an important treatment for adolescents and women with Turner Syndrome (TS). The below overview is provided by Lournaris Torres-Santiago, MD and Nelly Mauras, MD, from Nemours Children’s Health System in Jacksonville, FL. Note: The information…

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