Category: Parent/Caregiver


Meet Doreen: Mother & Advocate

My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…

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Help Us Win the Top-Rated Award for 2018!

Review TSF on GreatNonprofits to influence donors and volunteers to join us!

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TSF at the 2018 PENS Conference

TSF was pleased to be a part of the 2018 PENS Conference!

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Legislative Advocacy in PA

Pennsylvania legislature

One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter,…

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Turner Syndrome Patient Guide Available Upon Request

[sg_popup id=”1″ event=”onload”][/sg_popup] The Turner Syndrome Patient Guide is available upon request. The “Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome- Brief Synopsis” is a guide that provides a summary of the main points from…

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Meant to Live

Ivy was diagnosed with Turner Syndrome at 16 weeks in utero. The doctors gave us no hope that she would live. But 20 weeks later, our little girl beat the 1% odds and came screaming into this world and she’s…

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Turner Syndrome. Know the Signs.

Diagnosis

Turner Syndrome. Know the signs. A list of Common Symptoms: Short statured Verbally gifted Learning issues Frequent earaches Delayed puberty ORDER A WINDOW DECAL FOR AWARENESS TAKE A CLOSER LOOK AT SHORT GIRLS WHAT IS TS? SYMPTOMS DIAGNOSING

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