Category: Parent/Caregiver


Grassroots Activism for Turner Syndrome: YOU Can Make a Difference!

legislative advocacy for Turner Syndrome

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation intern and blog post writer. Struggling with finding ways to make a positive impact in your community? Through grassroots activism and legislative advocacy for Turner Syndrome, we can all make a difference!…

Read More

Turner Syndrome Variations

Turner syndrome variations classic mosaic

Turner Syndrome manifests itself differently in each patient. This post will examine the different variations of Turner Syndrome and what that means for girls and women with the condition. Many people do not realize that there are two variations of…

Read More

Help Us Raise Awareness in Every State!

February is Turner Syndrome Awareness Month

Read More

Awareness Month Involvement Packet

Involvement Guide

February Awareness Month is almost here, and we have prepared so many ways for you to join us in making change. Raising awareness happens all year, but February is a special time for us to focus our efforts and work…

Read More

Why We Support TSF

If you’re still deciding which organization you plan to support this giving season, let our community show you why Turner Syndrome Foundation is the right choice! When my daughter, Julie, was born with Turner Syndrome we had never heard of…

Read More

Attend the Patient Workshop in California!

Cedars Sinai Workshop

Join the Department of Pediatrics at the Cedars-Sinai Medical Center in Los Angeles, California for a Turner Syndrome workshop! This workshop will take place on January 9, 2020 from 12:30 to 2. It features lectures by Dr. Michelle Schwieger and…

Read More

Giving back to our health care providers!

Turner Syndrome Specialist

November is the month of being thankful, and with that we would like to thank the health care providers who go above and beyond each day for girls and women affected by Turner Syndrome. 1 in 2000 girls are affected…

Read More

Reflections from a Volunteer: Turner Syndrome Meet Up

A few weeks ago, I hosted a picnic and walk meet up at Eno River State Park in Durham, North Carolina through the Turner Syndrome Foundation. Choosing a public location meant that I didn’t need to make any expensive reservations…

Read More

TS Podcast: The Butterfly Pod

butterfly pod

Brooke Caron and her mom, Kathy, are veteran volunteers of the Turner Syndrome Foundation! They’ve been successful in raising awareness of TS, even getting Turner Syndrome Awareness Month declared in their home state of Maine. Now they’re getting creative with…

Read More

Research Opportunities

Turner Syndrome Research eXchange

Research is a team effort. The more people that are on the team, the more effective research can be. It is important for all women, girls, and family members affected by Turner Syndrome to contribute to clinical trials in order…

Read More

©2022 Copyright Turner Syndrome Foundation - All rights Reserved.

X