Category: Parent/Caregiver


Why We Support TSF

If you’re still deciding which organization you plan to support this giving season, let our community show you why Turner Syndrome Foundation is the right choice! When my daughter, Julie, was born with Turner Syndrome we had never heard of…

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Attend the Patient Workshop in California!

Cedars Sinai Workshop

Join the Department of Pediatrics at the Cedars-Sinai Medical Center in Los Angeles, California for a Turner Syndrome workshop! This workshop will take place on January 9, 2020 from 12:30 to 2. It features lectures by Dr. Michelle Schwieger and…

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Giving back to our health care providers!

Turner Syndrome Specialist

November is the month of being thankful, and with that we would like to thank the health care providers who go above and beyond each day for girls and women affected by Turner Syndrome. 1 in 2000 girls are affected…

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Reflections from a Volunteer: Turner Syndrome Meet Up

A few weeks ago, I hosted a picnic and walk meet up at Eno River State Park in Durham, North Carolina through the Turner Syndrome Foundation. Choosing a public location meant that I didn’t need to make any expensive reservations…

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TS Podcast: The Butterfly Pod

butterfly pod

Brooke Caron and her mom, Kathy, are veteran volunteers of the Turner Syndrome Foundation! They’ve been successful in raising awareness of TS, even getting Turner Syndrome Awareness Month declared in their home state of Maine. Now they’re getting creative with…

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Research Opportunities

Turner Syndrome Research eXchange

Research is a team effort. The more people that are on the team, the more effective research can be. It is important for all women, girls, and family members affected by Turner Syndrome to contribute to clinical trials in order…

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TS Care Center: eXemplarY Kids Clinic

exemplary kids clinic, cedars sinai

The eXemplarY Kids Clinic of Cedars-Sinai in Los Angeles, CA is a multidisciplinary clinic for children with X & Y chromosome variations. We spoke with Dr. Schweiger, Director of Pediatric Endocrinology and Co-Director of the Clinic, to learn how this…

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Meet Doreen: Mother & Advocate

My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…

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Help Us Win the Top-Rated Award for 2018!

Review TSF on GreatNonprofits to influence donors and volunteers to join us!

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TSF at the 2018 PENS Conference

TSF was pleased to be a part of the 2018 PENS Conference!

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