Turner Syndrome FoundationCategory: Parent/Caregiver
I Had Heart Surgery During a Pandemic
Nicole, a woman who has Turner Syndrome (TS), shares her experience undergoing heart surgery during the COVID-19 pandemic. Her heart surgery is not uncommon among those with TS, so many with TS can relate to her experience. I am a…
Read MoreFinancial Resources for Growth Hormone Therapy
Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for…
Read MoreLoud and Clear: My Hormone Replacement Therapy Journey
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses her experience with Hormone Replacement Therapy. Hormones are your body’s chemical…
Read MoreWhat Are Growth Hormone and Estrogen Therapy?
Growth hormone and estrogen therapies are among the most common treatments for individuals who have Turner Syndrome (TS). Short stature affects at least 95% of all individuals with TS and is the most consistent and readily recognizable clinical feature of…
Read MoreFinding Answers to Your Questions about Turner Syndrome
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome (TS). They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MorePerspectives on Self-advocacy
Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to…
Read MoreA Turner Syndrome Advocacy Success Story
Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…
Read MoreTurn A Page Read-A-Thon
Announcing the TSF Read-A-Thon: Turn a Page for Turner Syndrome Do you love to read? As students prepare to go back to school and summer comes to an end, we hope to encourage learning and cognitive development through reading, all…
Read MoreSelf-Advocacy Tips for Healthcare, School, and Work
This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re…
Read MoreRecognizing Your Beauty
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses recognizing your beauty in a world that often focuses on…
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