Category: Parent/Caregiver


I Had Heart Surgery During a Pandemic

I have Turner Syndrome. I had heart surgery during a pandemic. . . and this is what it was like!

Nicole, a woman who has Turner Syndrome (TS), shares her experience undergoing heart surgery during the COVID-19 pandemic. Her heart surgery is not uncommon among those with TS, so many with TS can relate to her experience. I am a…

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Financial Resources for Growth Hormone Therapy

Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for…

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Loud and Clear: My Hormone Replacement Therapy Journey

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses her experience with Hormone Replacement Therapy. Hormones are your body’s chemical…

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What Are Growth Hormone and Estrogen Therapy?

Growth hormone and estrogen therapies are among the most common treatments for individuals who have Turner Syndrome (TS). Short stature affects at least 95% of all individuals with TS and is the most consistent and readily recognizable clinical feature of…

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Finding Answers to Your Questions about Turner Syndrome

Turner syndrome blog

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome (TS). They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

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Perspectives on Self-advocacy

self-advocacy for Turner Syndrome

Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to…

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A Turner Syndrome Advocacy Success Story

advocacy for Turner syndrome

Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…

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Turn A Page Read-A-Thon

Turner syndrome read-a-thon

Announcing the TSF Read-A-Thon: Turn a Page for Turner Syndrome Do you love to read? As students prepare to go back to school and summer comes to an end, we hope to encourage learning and cognitive development through reading, all…

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Recognizing Your Beauty

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses recognizing your beauty in a world that often focuses on…

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Awareness Committee Video Project Increases Awareness of Turner Syndrome

Turner syndrome video campaign

Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog post writer. TSF’s newest volunteer endeavor, the Awareness Committee, has started full speed ahead on its first project, a video project called The Questions Campaign. The Awareness Committee…

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