Category: Parent/Caregiver


Is Growth Hormone Therapy Right for Your Child?

is growth hormone therapy right for your child?

In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for…

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Autoimmune Diseases Common in Turner Syndrome

autoimmune diseases common in turner syndrome

In this post, we will discuss some of the autoimmune diseases commonly associated with Turner Syndrome (TS), including Hashimoto’s thyroiditis, diabetes, and celiac disease. Learn more about the causes, symptoms, diagnosis, and treatment of these conditions below. Note: The information…

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Finding Your “Something”

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her…

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Autoimmunity and Immune Dysregulation in Turner Syndrome Webinar: 5 Takeaways

5 facts about autoimmunity in Turner syndrome

This post presents five interesting facts about Turner Syndrome (TS) and autoimmunity from the recent “Autoimmunity and Immune Dysregulation in Turner Syndrome” webinar, presented by Dr. Roopa Kanakatti Shankar. Dr. Shankar is an Assistant Professor of Pediatrics at The George…

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Insights on Education: Ask Star Sisters

We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and…

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Coping with Miscarriage: Sara’s Story

Coping with Miscarriage

Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of…

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In Celebration of Education

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on her educational journey and the things she celebrates in life….

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Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective

Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping…

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My Hormone Therapy Experience

In this post, Katie, a woman who has Turner Syndrome (TS), talks about her experience with growth hormone and estrogen therapies. Her experience may not be the same as that of others, but may shed some light on the treatments…

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My Daughter’s Turner Syndrome Journey: Q&A with a Mother

Woman with Turner syndrome

Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with…

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