Turner Syndrome FoundationCategory: Parent/Caregiver
Research Opportunities
Research is a team effort. The more people that are on the team, the more effective research can be. It is important for all women, girls, and family members affected by Turner Syndrome to contribute to clinical trials in order…
Read MoreTS Care Center: eXemplarY Kids Clinic
The eXemplarY Kids Clinic of Cedars-Sinai in Los Angeles, CA is a multidisciplinary clinic for children with X & Y chromosome variations. We spoke with Dr. Schweiger, Director of Pediatric Endocrinology and Co-Director of the Clinic, to learn how this…
Read MoreMeet Doreen: Mother & Advocate
My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…
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Legislative Advocacy in PA
One of the greatest joys of work at the Turner Syndrome Foundation is hearing stories of people getting involved across the nation to make a difference. On February 5, a wonderful Turner Syndrome parent and advocate, Dana, and her daughter,…
Read MoreTurner Syndrome Patient Guide Available Upon Request
[sg_popup id=”1″ event=”onload”][/sg_popup] The Turner Syndrome Patient Guide is available upon request. The “Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome- Brief Synopsis” is a guide that provides a summary of the main points from…
Read MoreMeant to Live
Ivy was diagnosed with Turner Syndrome at 16 weeks in utero. The doctors gave us no hope that she would live. But 20 weeks later, our little girl beat the 1% odds and came screaming into this world and she’s…
Read MoreTurner Syndrome. Know the Signs.
Turner Syndrome. Know the signs. A list of Common Symptoms: Short statured Verbally gifted Learning issues Frequent earaches Delayed puberty ORDER A WINDOW DECAL FOR AWARENESS TAKE A CLOSER LOOK AT SHORT GIRLS WHAT IS TS? SYMPTOMS DIAGNOSING
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