Turner Syndrome FoundationCategory: Parent/Caregiver
How to Find a Turner Syndrome Specialist
Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…
Read MoreExercise for a Great Cause!
This article talks about the benefits of exercising, particularly walking, and how you can exercise for a great cause! Read below to learn more and sign up for the Turner Syndrome Foundation‘s (TSF) Take a Step for Turner Syndrome event….
Read MoreIs Growth Hormone Therapy Right for Your Child?
In a recent webinar, Dr. Mary Gwyn Roper discussed Growth Hormone Therapy (GHT) in patients who have Turner Syndrome. Read below to learn some things she shared that might help you decide whether Growth Hormone Therapy (GHT) is right for…
Read MoreFinding Your “Something”
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome (TS). In this article, she reflects on finding her “something”–a cause that speaks to her…
Read MoreInsights on Education: Ask Star Sisters
We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and…
Read MoreCoping with Miscarriage: Sara’s Story
Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of…
Read MoreIn Celebration of Education
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on her educational journey and the things she celebrates in life….
Read MoreSharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective
Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping…
Read MoreMy Hormone Therapy Experience
In this post, Katie, a woman who has Turner Syndrome (TS), talks about her experience with growth hormone and estrogen therapies. Her experience may not be the same as that of others, but may shed some light on the treatments…
Read MoreMy Daughter’s Turner Syndrome Journey: Q&A with a Mother
Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with…
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