Parent/Caregiver Archives | Turner Syndrome Foundation //

Category: Parent/Caregiver


Celebrating the TS Community This International Women’s Day

It is March 8th and the feeling of female empowerment is in the air, which can only mean one thing. It’s International Women’s Day! Why Celebrate International Women’s Day? This over century-old holiday has two goals. For one, it celebrates…

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You Are Enough (It’s a Girl Thing)

February is Turner Syndrome (TS) Awareness Month, and the Turner Syndrome Foundation (TSF) has several awareness and educational activities throughout the month. One of them is a blog hop and cardmaking challenge (see more information below). As a woman with…

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My Story: We Are Unstoppable

we are unstoppable!

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents or caregivers. In this post, Eileen, a 44-year-old woman who was diagnosed with TS at 16 years old,…

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My Story: I’ve Never Let Turner Syndrome Slow Me Down

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, Dori, a 43-year-old woman who was diagnosed with TS at four years old, shares her…

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Why I Fundraise: Ideas for In-person and Virtual Fundraisers

Why I Fundraise

In this post, Lori, a mother of a woman with Turner Syndrome (TS), details two awareness and fundraising events she organized and how she has pivoted to virtual activities since then. My Motivation People ask me why I fundraise for…

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Upcoming Webinar: the Cognitive Impact of Turner Syndrome

the cognitive impact of TS webinar

Learn about the Turner Syndrome Foundation’s (TSF) upcoming webinar, The Cognitive Impact of TS, presented by Dr. Ilyse O’Desky. This webinar will take place on January 27, 2021 at 7:00 p.m. EST. The Cognitive Impact of Turner Syndrome The cognitive…

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Choosing a Health Insurance Plan

Choosing a health insurance plan

In this post, we will discuss some tips on how to choose a health insurance plan based on a recent webinar presented by Pfizer and hosted by the Turner Syndrome Foundation (TSF). Particularly, we will focus on considerations to think…

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Health Insurance and Reimbursements FAQ’s- Accessing Growth Hormone

FAQ: Health insurance and reimbursement

This post presents important information about the types of insurances and reimbursement process for growth hormone treatment from recent webinar “Insurance & Reimbursement – A Turner Syndrome Foundation Webinar” presented by Patient Affairs Liaisons from Pfizer. What is a Patient…

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Discussing Infertility: Upcoming Webinar

Discussing Infertility Webinar

The upcoming webinar, Discussing Infertility, presented by NYU School of Medicine’s Dr. Gwendolyn Quinn, will help you learn how to approach conversations about infertility with others. Why is Discussing Infertility Important? Infertility is a wide-reaching issue that affects many. 10%…

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My Story: Advice for Patients and Parents

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has…

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