Category: Parent/Caregiver


My Story: Turner Syndrome and Gonadoblastoma

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….

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Butterflies Around the World: Our Turner Syndrome Kaleidoscope

In August, the Turner Syndrome Foundation (TSF) launched the “Butterflies Around the World” campaign and created a beautiful Turner Syndrome (TS) kaleidoscope. During its lifetime, and with a difficult beginning, the butterfly is able to accomplish things other beings cannot,…

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How To Be of Service to Your Community

September 11th is a National Day of Service in the U.S. Serving your community benefits both you and others. One community you can serve is those affected by Turner syndrome (TS). The Turner Syndrome Foundation (TSF) supports advocacy, awareness, education,…

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My Story: A Fighting Spirit

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….

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A Day in the Life of a Girl with Turner Syndrome

The Turner Syndrome Foundation (TSF) is excited to bring you the second blog post in the ‘’Day in the Life” series! In this post, we’ll take a deeper look at the life of a young girl with Turner Syndrome (TS)…

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How To Spread Your Butterfly Wings & Be Successful in College

Getting accepted to college is a huge accomplishment. Many students wonder if they are prepared for the challenges they might face when entering college and feel worried about managing academic and personal life. The transition from high school to college…

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Butterflies Around the World: Join the TS Kaleidoscope!

Join the Turner Syndrome Foundation (TSF) this month in its Butterflies Around the World event. Download and print your butterfly, decorate it to your liking, and take it with you on your end-of-summer or back-to-school adventures. Take photos of you…

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Living Independently with Turner Syndrome

Turner Syndrome (TS) is a genetic condition that affects 1 in every 2,000 live female births. Individuals with TS usually have short stature, may be infertile, and may experience a variety of medical, cognitive, and psychological challenges. Given these challenges,…

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Cardiovascular Risk in TS Patients: Integrating Cardiology, Genetics, and Endocrinology

The importance of early cardiac evaluation and intervention for  those with Turner Syndrome (TS) cannot be stressed enough. In this post, we will explore a study that highlights the different cardiovascular risks for TS patients and their connection to endocrine…

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My Story: Finding the Strength Within

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers impacted by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….

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