Parent/Caregiver Archives | Turner Syndrome Foundation

Category: Parent/Caregiver


Cyberbullying: How to Help your Child

 Is your child acting more upset, angry, hungry, antisocial, or tired lately? Has your child become less social online or become more negatively emotional when online? Does your child have health challenges that cause them to stand out at school,…

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Insights on Education: Ask Star Sisters

We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and…

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Coping with Miscarriage: Sara’s Story

Coping with Miscarriage

Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of…

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How To Advocate for Your Child in School: Navigating 504 Plans and IEPs

Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP)…

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In Celebration of Education

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on her educational journey and the things she celebrates in life….

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Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective

Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping…

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Overcoming Educational Challenges

Christina is a woman with Turner Syndrome, a wife, and a teacher. In this post, she shares her perspective on what unique educational challenges children with Turner Syndrome might face. She also discusses some strategies to support your child so…

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My Hormone Therapy Experience

In this post, Katie, a woman who has Turner Syndrome (TS), talks about her experience with growth hormone and estrogen therapies. Her experience may not be the same as that of others, but may shed some light on the treatments…

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My Daughter’s Turner Syndrome Journey: Q&A with a Mother

Woman with Turner syndrome

Lori Kobular has adult daughter, Julie, with Turner Syndrome (TS). Lori is a Turner Syndrome Foundation (TSF) board member and serves on the volunteer Awareness Committee. In this post, she answers some questions about her experience parenting a daughter with…

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I Had Heart Surgery During a Pandemic

I have Turner Syndrome. I had heart surgery during a pandemic. . . and this is what it was like!

Nicole, a woman who has Turner Syndrome (TS), shares her experience undergoing heart surgery during the COVID-19 pandemic. Her heart surgery is not uncommon among those with TS, so many with TS can relate to her experience. I am a…

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