Turner Syndrome FoundationCategory: Parent/Caregiver
What School Psychologists Need To Know About Students with Turner Syndrome
Students with Turner syndrome (TS) often have special needs in the classroom. Some experience nonverbal learning disorder (NVLD), social anxiety, or other challenges. School psychologists are in a unique position to nurture these students’ strengths and support them in their…
Read MoreTurner Syndrome Awareness Month 2023: Let’s Keep the Momentum Going!
Well, Turner Syndrome Awareness Month (TSAM) 2023 is a wrap, and what a wonderful month it was! Throughout February, the TS community–patients, families, advocates, and medical professionals–came together to raise awareness for this rare condition. The Turner Syndrome Foundation (TSF)…
Read MoreTurner Syndrome & Verbal Skills: a Good-news Story!
We often hear a lot about the challenges of Turner syndrome (TS), which vary from patient to patient. But let’s make sure to look at the positives, too! One of those for individuals with TS is having above-average verbal skills….
Read MoreTurner Syndrome & Family History/Heredity
After a child receives a diagnosis of Turner Syndrome (TS), parents and caregivers are likely to have many questions regarding their child’s health and future. One common question is whether or not TS is hereditary or somehow preventable. While there…
Read MoreTSF Celebrates National Disability Awareness Month
March is National Disability Awareness Month. It is a time to celebrate the contributions of those with disabilities, including people who also have chronic conditions like Turner syndrome (TS). While TS is not in itself a disability, some individuals with…
Read MoreMy Story: From Pregnancy Loss to Cast-iron Endurance
The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers affected by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….
Read MoreSharing a Turner Syndrome Diagnosis with Your Child at Different Stages
Many parents struggle with sharing a Turner Syndrome (TS) diagnosis with their child. When is it appropriate? How do I share it? How much do I share? It is a difficult decision, but there are benefits to sharing the diagnosis…
Read MoreTurner Syndrome Care Around the World
Throughout the years, the amount of available resources, treatments and educational material about Turner syndrome (TS) has steadily increased. TS is gaining much more attention in the medical field, with new research and more recognition around the world than in…
Read MoreMy Story: Grateful for My Early Diagnosis
The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers impacted by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….
Read MoreManaging a Chronic Condition as a Young Adult
Managing a chronic condition like Turner syndrome (TS) can be challenging, especially as a young adult transitioning from pediatric to adult care. Let’s talk about taking control of your condition, developing a support system, and advocating for your own healthcare….
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