Category: Parent/Caregiver


A Day in the Life of a Teenager with Turner Syndrome

The Turner Syndrome Foundation (TSF) is excited to introduce a new blog series: A Day in the Life. In this series, we’ll be interviewing and highlighting Turner Syndrome (TS) butterflies of different ages and asking them what their daily lives…

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My Story: If I Was Tall

The Turner Syndrome Foundation’s (TSF) My Story blog series highlights the experiences of individuals, families, and caregivers impacted by Turner Syndrome (TS). Their stories have an incredible ability to inspire others and make a positive impact on the TS community….

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May: a Time for Celebrations and Nurturing

Spring is a time for renewals and celebrations. Mother’s Day, graduations, weddings, and other events remind us of the importance of nurturing in our lives. Mother’s Day, in particular, can be a difficult time for people with Turner syndrome (TS)….

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Turner Syndrome and Celiac Disease

May is Celiac Disease Awareness Month. Those with Turner Syndrome (TS) are at increased risk for celiac disease. As with TS, Increased awareness is critically important, so that patients, their caregivers, and medical professionals are aware of the symptoms, diagnosis,…

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How Vision Problems Can Affect Your Life

Individuals with Turner syndrome (TS) are more susceptible to vision problems than the general population. Vision challenges can affect almost every part of a person’s life. Since May is Healthy Vision Month, let’s look at some common vision issues and…

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Social Skills and Relationships in Turner Syndrome: a Study

social skills

One of the main goals of the Turner Syndrome Foundation (TSF) is to educate medical professionals and institutions on important research that can help patients with Turner Syndrome  (TS). In this post, we summarize the research paper “Social Skills and…

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Safe & Effective Hormone Therapy for Turner Syndrome Patients

The Turner Syndrome Foundation (TSF) is a strong advocate for early diagnosis. Diagnosing Turner Syndrome (TS) early is critical, in part, because it allows for timely and effective growth hormone therapy (GHT) treatment for TS patients. Read below about one…

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Student Volunteers Make a Difference, Too!

We often talk about the importance of “making a difference.” This can sound intimidating, especially for young people, but the Turner Syndrome Foundation (TSF) provides many ways for advocates of all ages to make a difference for Turner Syndrome (TS)….

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My Story 2022: A Look Ahead

As we wrap up Turner Syndrome (TS) Awareness Month, the Turner Syndrome Foundation (TSF) would like to honor those who are living with or affected by TS. One way we do this is by sharing their stories in our monthly…

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Turner Syndrome Awareness Month 2022

February is Turner Syndrome Awareness Month

February is Turner Syndrome (TS) Awareness Month, a time to focus on spreading the word and supporting the TS community. The Turner Syndrome Foundation (TSF) advocates for this unique cause that affects thousands of individuals and families this month and…

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