Parent/Caregiver Archives | Turner Syndrome Foundation

Category: Parent/Caregiver


Pediatric Care Guidelines for Turner Syndrome

pediatric care guidelines

In this post, we will share care guidelines for pediatric patients with Turner syndrome (TS). We aim to provide a general breakdown of suggested physician visits and tests to expect to ensure early monitoring and prevention of potential health concerns….

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My Story: I Wouldn’t Change a Thing

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Jill, a 28-year-old woman with TS. Jill discusses how she found…

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Celebrate Children’s Day with TSF!

World Children’s Day is a day to celebrate the rights and education of children. This year, in honor of Children’s Day on November 20th, the Turner Syndrome Foundation (TSF) is are offering two opportunities to celebrate your special child. Spotlight…

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Announcing 24/7 Caregivers Group

“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a…

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Common Doctors for Individuals with Turner Syndrome

common doctors for TS

Turner syndrome (TS) is a complex disorder, and a variety of specialized healthcare providers are involved in its management depending on individual needs. Although finding the right provider is a challenge of its own, remember that we are here to…

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How to Find a Turner Syndrome Specialist

finding a doctor

Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…

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Communicating With Your Physician: Tips On Self-Advocacy

In this post, we will discuss some tips on how to communicate with your physician. Particularly, we will focus on specific ways patients and caregivers can ensure that physicians are listening to and hearing their stories for effective clinical encounters….

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Exercise for a Great Cause!

the benefits of exercise

This article talks about the benefits of exercising, particularly walking, and how you can exercise for a great cause! Read below to learn more and sign up for the Turner Syndrome Foundation‘s (TSF) Take a Step for Turner Syndrome event….

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Defining Key Terms in Discussing Turner Syndrome

Turner syndrome definitions

Medical information can be confusing, and defining key terms in discussing Turner Syndrome (TS) is important. In this post, we aim to provide definitions of some general medical terms and some specifically associated with TS. General Medical Terms Amniocentesis: procedure…

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My Story: Living with an Autoimmune Disease and Other Medical Issues

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Coping with TS can be challenging, but dealing with other…

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