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Category: Latest Articles


Understanding Experiences with Turner Syndrome- Research Project

Research Opportunity

Audrey (AJ) Jones is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome and working with the Turner Syndrome Foundation (TSF) since 2016. After completing her Princeton University Bachelor’s thesis on Turner Syndrome communities, she is…

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Figure and Ground: Perceptions of Living with Turner Syndrome

blog series with Katie Steedly curling

Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome describes her perceptions of living with Turner Syndrome throughout her life using the concept of figure and ground. Our perceptions of our experiences, including living with Turner Syndrome,…

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Our Daughter’s Health Journey

Turner syndrome health

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

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TSF Internships: Supporting the Mission

Turner syndrome internship volunteer

Written by Liz Rivera, Turner Syndrome Foundation (TSF) intern and currently a junior at Stockton University studying sociology and anthropology. Liz has a strong passion for helping people and hopes to connect people in need with support and resources to…

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How Aortic Dissection Surgery Impacted My Family Planning

Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences with family planning and Turner Syndrome after aortic dissection surgery. The Struggle of Infertility In honor of Women’s Health…

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Adoption Tips from an Experienced Mom

mother and daughter

This month, we are exploring family planning options for women with Turner Syndrome. Below are some adoption tips from one mom, Meghan, who is a woman who has Turner Syndrome. She and her husband embarked on their journey to adopt…

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Returning to the New “Normal”

Woman with Turner Syndrome

Written by Susan Herman, a woman with Turner Syndrome and volunteer blog post editor and translator with the Turner Syndrome Foundation. In a previous blog post, we examined coping with grief during the current pandemic, In this post, we examine…

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Coping with Diagnosis – Two Parents’ Perspectives

coping with Turner syndrome diagnosis parents

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

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My Life After Aortic Dissection Surgery

Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome after aortic dissection surgery. Life Post-Surgery Hello again! I hope everyone is doing well…

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Mental Health and Turner Syndrome

Written by Cassidy Hooper, Turner Syndrome woman and TSF volunteer Twitter Chat Facilitator What a great discussion about mental health and Turner Syndrome we had on Twitter on March 25th! We got to learn so much from women with Turner…

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