Turner Syndrome FoundationCategory: Latest Articles
Loud and Clear: My Hormone Replacement Therapy Journey
Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she discusses her experience with Hormone Replacement Therapy. Hormones are your body’s chemical…
Read MoreFinding Answers to Your Questions about Turner Syndrome
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome (TS). They have long been advocates for TS awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MorePerspectives on Self-advocacy
Do you want to advocate for yourself but do not know what self-advocacy actually means? Struggling to find examples of being a self-advocate? This article can help you! We recently talked with members from the Turner Syndrome (TS) community to…
Read MoreA Turner Syndrome Advocacy Success Story
Engaging in Turner Syndrome (TS) advocacy can be a big task. However, it is one of the most important ways to make a difference for all girls and women who live with TS. In this post, organizing advocate Renee Nowacki…
Read MoreSelf-Advocacy Tips for Healthcare, School, and Work
This month, we are discussing all kinds of advocacy, which includes self-advocacy. To be a self-advocate means to understand your needs and speak up for them until you get what you need. Sometimes, this can be intimidating, like if you’re…
Read MorePeer Chat: Self-Advocacy and Turner Syndrome
Written by Elizabeth (Liz) Rivera, Turner Syndrome Foundation (TSF) intern and blog writer. Self-advocacy is important for any patient who has Turner Syndrome (TS) and their caregivers. The ability to speak up for your needs is crucial to ensure access…
Read MoreFinding the Right Doctors for Your Daughter with Turner Syndrome
Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…
Read MoreTurner Syndrome Research: AJ’s Journey
Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…
Read MoreTurner Syndrome and Relationships: Twitter Chat
Written by Cassidy Hooper, TSF volunteer Twitter Chat Facilitator Our Twitter discussion in May was about Turner Syndrome (TS) and relationships. It was so interesting and inspiring to learn about all the personal experiences with relationships as they relate to…
Read MoreUnderstanding Experiences with Turner Syndrome- Research Project
Audrey (AJ) Jones is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome and working with the Turner Syndrome Foundation (TSF) since 2016. After completing her Princeton University Bachelor’s thesis on Turner Syndrome communities, she is…
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