Category: Latest Articles


Welcome Back Advocacy Coordinator, Liz Carmines!

TSF is happy to welcome Liz Carmines back to the team as Advocacy Coordinator! In this role, Liz will be working one-on-one with YOU to connect you with an opportunity to take action and raise awareness. Liz spent the past…

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Lessons Learned in Research

In celebration of the ten year anniversary of receiving her PhD, TSF Director of Research, Danielle Moore, shares the lessons and insights she’s learned as a medical and scientific researcher. Celebrating Lessons in 15 Years of Scientific and Medical Research…

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TS Podcast: The Butterfly Pod

butterfly pod

Brooke Caron and her mom, Kathy, are veteran volunteers of the Turner Syndrome Foundation! They’ve been successful in raising awareness of TS, even getting Turner Syndrome Awareness Month declared in their home state of Maine. Now they’re getting creative with…

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“When Was Your Last Period?”: A Few Things to Consider When Seeking Adult Care for Turner Syndrome

coming out turner syndrome diagnosis

by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF Living with Turner Syndrome I live with Turner syndrome. I was diagnosed at the age of 15. I am now almost 48. I saw the same Ob-Gyn, who guided…

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Tools for Going Back to School

Back to School

The start of Fall is about more then heading back to school. It means getting back to our usual routines. For girls and women with Turner Syndrome, it can be especially important to establish routines, and doing so can help…

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Pfizer Sponsors Turner Syndrome Camp Weekend

Turner Syndrome Foundation is pleased to announce that Pfizer is a sponsor of the Turner Syndrome Autumn Retreat!

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Join Samantha at the Autumn Retreat

Samantha shares what it means to her to be able to attend an event focused on community and support, and we’re sharing one of our favorite memories from last year’s Retreat!

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Novo Nordisk Sponsors Turner Syndrome Foundation Weekend

Thank you, Novo Nordisk, Autumn Retreat Sponsor! Turner Syndrome Foundation is pleased to announce that Novo Nordisk, Inc. is an Education Sponsor of the Turner Syndrome Autumn Retreat for the second year in a row! The Autumn Retreat will be…

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Share a Photo, Support Research

Genetics Home Reference is partnering with Genetic Alliance to give a face to Turner Syndrome. You can help the world understand Turner Syndrome by sharing your photos! Genetics Home Reference is gathering images and photographs to add to their website to…

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Support TSF at Work

turner syndrome foundation employee volunteer

Do you know all of the ways your employer can support TSF? Learn about them here (you may even get a day off to volunteer)!

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