Turner Syndrome FoundationCategory: Latest Articles
Autumn Retreat at YMCA of the Pines
Dining Hall Lodge Lake Stockwell Cabin Lodge When choosing a location for the Autumn Retreat, there were many things to consider. After meeting with staff members and touring the grounds, we knew YMCA of the Pines would be perfect for…
Read More5 Reasons to Attend the Autumn Retreat
Some of the top benefits of attending this exciting weekend in nature! It’s so much more than the camp you’re used to!
Read MoreTS Care Center: eXemplarY Kids Clinic
The eXemplarY Kids Clinic of Cedars-Sinai in Los Angeles, CA is a multidisciplinary clinic for children with X & Y chromosome variations. We spoke with Dr. Schweiger, Director of Pediatric Endocrinology and Co-Director of the Clinic, to learn how this…
Read MoreA Gift from Above
Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…
Read MoreSign the Awareness Petition
Advocacy is the path to obtaining the support and services you need. As an advocacy organization, we understand that gaps exist in certain areas of Turner Syndrome care, legislation, and more. However, with your help, we can raise awareness to…
Read MoreWhy You Should Support Awareness Month
Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….
Read MoreHow Physicians Can Support Awareness Month
Doctors know the importance of preventative medicine for overall health and wellness. When it comes to Turner Syndrome, early diagnosis and preventative treatments are especially important. With a late diagnosis, treatment options like growth hormone therapy are unavailable. You can…
Read MoreMy Story: No Diagnosis Without Awareness
Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…
Read MoreHost a Casual Day Fundraiser
Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…
Read MoreMy Story: “It’s Rewarding to Help Others”
A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…
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