Category: Latest Articles


Health Insurance and Reimbursements FAQ’s- Accessing Growth Hormone

FAQ: Health insurance and reimbursement

This post presents important information about the types of insurances and reimbursement process for growth hormone treatment from recent webinar “Insurance & Reimbursement – A Turner Syndrome Foundation Webinar” presented by Patient Affairs Liaisons from Pfizer. What is a Patient…

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Discussing Infertility: Upcoming Webinar

Discussing Infertility Webinar

The upcoming webinar, Discussing Infertility, presented by NYU School of Medicine’s Dr. Gwendolyn Quinn, will help you learn how to approach conversations about infertility with others. Why is Discussing Infertility Important? Infertility is a wide-reaching issue that affects many. 10%…

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My 2021 Word of the Year: Health

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she shares the meaning behind her “word of the year.” Health –…

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My Story: Advice for Patients and Parents

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. In this post, we present the story of Olivia was diagnosed in utero. She discusses how she has…

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A Doctor’s Turner Syndrome Story

Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born…

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How to Find a Turner Syndrome Specialist

finding a doctor

Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…

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Communicating With Your Physician: Tips On Self-Advocacy

In this post, we will discuss some tips on how to communicate with your physician. Particularly, we will focus on specific ways patients and caregivers can ensure that physicians are listening to and hearing their stories for effective clinical encounters….

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The Importance of Research

the importance of research

Research is a main aspect of our mission because it can improve future outcomes in many ways. Keep reading to learn about some of the reasons research is so important, and some opportunities that you can get involved in! Medical…

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Participate in NIH COVID Impact Study

COVID-19 has undeniably has a profound impact on all members of society. Until this point, we haven’t been able to describe the impact on those who have Turner Syndrome specifically. Now, a study by NIH researchers will help us understand…

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How to Help Your Child Overcome Their Reading Challenges

tips for overcoming reading challenges

Is your child having lower test scores than the average student on topics such as reading and writing? Are they getting frustrated with or losing interest in reading with you or in class? They may have reading challenges, such as…

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