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Category: Latest Articles


A Gift from Above

Emily is both a mother and postpartum nurse. She helps other parents cope with a Turner Syndrome diagnosis while raising a miracle of her own. With this unique perspective, Emily understands the importance of raising Turner Syndrome awareness. On April…

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Sign the Awareness Petition

Advocacy is the path to obtaining the support and services you need. As an advocacy organization, we understand that gaps exist in certain areas of Turner Syndrome care, legislation, and more. However, with your help, we can raise awareness to…

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Why You Should Support Awareness Month

turner syndrome, awareness month, raise awareness

Every eight hours a baby is born with Turner Syndrome and their lives are a miracle. Only 1-3% of Turner Syndrome babies survive until full-term. Those that do make it will require specialized medical care at every walk of life….

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How Physicians Can Support Awareness Month

Doctors know the importance of preventative medicine for overall health and wellness. When it comes to Turner Syndrome, early diagnosis and preventative treatments are especially important. With a late diagnosis, treatment options like growth hormone therapy are unavailable. You can…

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My Story: No Diagnosis Without Awareness

turner syndrome awareness early diagnosis

Catrina was diagnosed with Turner Syndrome at 20 after a chance encounter with a cashier at her college bookstore. The cashier asked her if she had Turner Syndrome. Catrina’s mother explained, “They looked at her when she was little, but…

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Host a Casual Day Fundraiser

jean day

Thinking of all the ways you can get involved this Awareness Month can be overwhelming! “Do I want to host an event? Should I schedule a meeting with my legislators?” No need to worry – we’ve got an easy solution…

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My Story: “It’s Rewarding to Help Others”

turner syndrome advocate

A Turner Syndrome Advocacy Volunteer Shares Her Story My name is Kym and I was diagnosed with Turner Syndrome at 16 years old. I was born the youngest of six with my twin brother in 1971. Growing up I showed…

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Benefits of Stock Contributions in 2018

Stock contributions

Giving Stock, Bonds, or ETF Shares To Turner Syndrome Foundation is a smart way to increase your gift – and your tax deduction. When you donate appreciated stock shares that you have owned for at least one year to Turner…

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Meet Doreen: Mother & Advocate

My husband Gary and I were married for 4 years, the proud parents of Paul, almost 2 years old, and pregnant with Olivia, when we received a call from our OBGYN with our amniocentesis test results. When I replied, “What…

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Give Today for Her Tomorrow

legacy giving

Planned or legacy giving forms a charitable gift now that will go to the organization of your choice in the future. “Planned” gifts are unlike usual donations because you should consult a lawyer and financial planner when setting them up….

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