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Category: Clinical Resource


Understanding Experiences with Turner Syndrome- Research Project

Research Opportunity

Audrey (AJ) Jones is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome and working with the Turner Syndrome Foundation (TSF) since 2016. After completing her Princeton University Bachelor’s thesis on Turner Syndrome communities, she is…

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Turner Syndrome Variations

Turner syndrome variations classic mosaic

Turner Syndrome manifests itself differently in each patient. This post will examine the different variations of Turner Syndrome and what that means for girls and women with the condition. Many people do not realize that there are two variations of…

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Self-Advocacy for Better Health

Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the open-heart surgery that…

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Welcome!

Girl with Turner Syndrome

Learn the indications of TS and understand your diagnosis!

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Perspectives on Health and Turner Syndrome

In our second Twitter chat for Turner Syndrome awareness, we talked about health concerns. It was insightful to hear so many perspectives on the condition. As we learned, TS affects every woman and girl differently. There are some more common…

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A Virtual Chat for Turner Syndrome Awareness

This week we hosted our first ever Turner Syndrome Awareness Twitter Chat. You can visit this post to learn what exactly that means. Today we want to share with you some of the stories that were shared in our conversation….

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My Annual Checkup for Turner Syndrome

coming out turner syndrome diagnosis

by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF After many years of patchwork health care from non-Turner Syndrome specialists – that often put me in the difficult position of coordination, translation, and advocacy – I decided to have…

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Attend the Patient Workshop in California!

Cedars Sinai Workshop

Join the Department of Pediatrics at the Cedars-Sinai Medical Center in Los Angeles, California for a Turner Syndrome workshop! This workshop will take place on January 9, 2020 from 12:30 to 2. It features lectures by Dr. Michelle Schwieger and…

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Lessons Learned in Research

TSF Board Member

In celebration of the ten year anniversary of receiving her PhD, TSF Director of Research, Danielle Moore, shares the lessons and insights she’s learned as a medical and scientific researcher. Celebrating Lessons in 15 Years of Scientific and Medical Research…

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“When Was Your Last Period?”: A Few Things to Consider When Seeking Adult Care for Turner Syndrome

coming out turner syndrome diagnosis

by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF Living with Turner Syndrome I live with Turner syndrome. I was diagnosed at the age of 15. I am now almost 48. I saw the same Ob-Gyn, who guided…

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