Category: Clinical Resource


Adult Care Guidelines for Individuals with Turner Syndrome

adult care guidelines

In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in…

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Pediatric Care Guidelines for Turner Syndrome

pediatric care guidelines

In this post, we will share care guidelines for pediatric patients with Turner syndrome (TS). We aim to provide a general breakdown of suggested physician visits and tests to expect to ensure early monitoring and prevention of potential health concerns….

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Common Doctors for Individuals with Turner Syndrome

common doctors for TS

Turner syndrome (TS) is a complex disorder, and a variety of specialized healthcare providers are involved in its management depending on individual needs. Although finding the right provider is a challenge of its own, remember that we are here to…

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Physicians Making a Difference!

physicians making a difference

The Professional Membership is an opportunity for professionals such as physicians to get involved with TSF to advance our mission. You can help us improve resources and supports for individuals with Turner Syndrome! Physician Spotlight Dr. Mary Gwyn Roper, Pediatric…

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Autoimmune Diseases Common in Turner Syndrome

autoimmune diseases common in turner syndrome

In this post, we will discuss some of the autoimmune diseases commonly associated with Turner Syndrome (TS), including Hashimoto’s thyroiditis, diabetes, and celiac disease. Learn more about the causes, symptoms, diagnosis, and treatment of these conditions below. Note: The information…

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Autoimmunity and Immune Dysregulation in Turner Syndrome Webinar: 5 Takeaways

5 facts about autoimmunity in Turner syndrome

This post presents five interesting facts about Turner Syndrome (TS) and autoimmunity from the recent “Autoimmunity and Immune Dysregulation in Turner Syndrome” webinar, presented by Dr. Roopa Kanakatti Shankar. Dr. Shankar is an Assistant Professor of Pediatrics at The George…

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Financial Resources for Growth Hormone Therapy

Do you have a child or loved one who has Turner Syndrome (TS) and needs growth hormone therapy (GHT) but cannot afford it? Do you know another parent in this situation? Read below to learn about what financial resources for…

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Finding the Right Doctors for Your Daughter with Turner Syndrome

Amy and Chris are the parents of Avary, a wonderful, now four-year-old little girl who has Turner Syndrome. They have long been advocates for Turner Syndrome awareness, having navigated the stages of coping with diagnosis, finding care, and parenting a…

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Turner Syndrome Research: AJ’s Journey

Turner syndrome research

Written by Audrey (AJ) Jones, Turner Syndrome Foundation (TSF) intern and researcher. AJ is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome (TS) and working with the TSF since 2016. After completing her Princeton University…

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Understanding Experiences with Turner Syndrome- Research Project

Research Opportunity

Audrey (AJ) Jones is an anthropology PhD candidate at Emory University. She has been studying Turner Syndrome and working with the Turner Syndrome Foundation (TSF) since 2016. After completing her Princeton University Bachelor’s thesis on Turner Syndrome communities, she is…

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