Patient Education Workshop, Secaucus Public Library, NJ



WHERE: Secaucus Public Library, 1379 Paterson Plank Rd, Secaucus, NJ 07094

WHEN: September 30, 2017,   Check-in at 11:30 am.

Program 12:00pm to 3:00 pm  —  Light refreshments will be served



  • Allison Amend (see photo & bio below)
  • Michele Disco, CGC
  • Panel Discussion

Have Questions? Contact Dot Smith at or (732) 847-3385

12:00pm: “Fact or Fiction – Telling Our Stories”, Allison Amend, Author, and Speaker

Allison Amend aupAllison Amend, a graduate of the Iowa Writer’s Workshop, is the author of the novels Enchanted Islands, A Nearly Perfect Copy, and Stations West, which was a finalist for the 2011 Sami Rohr Prize for Jewish Literature and the Oklahoma Book Award. She is also the author of the Independent Publisher’s Award-winning short story collection Things That Pass for Love. She lives in New York City where she teaches creative writing, but remains a die-hard Cubs fan.

Inspired by the midcentury memoirs of Frances Conway, Enchanted Islands is the dazzling story of an independent American woman whose path takes her far from her native Minnesota when she and her husband, an undercover intelligence officer, are sent to the Galápagos Islands at the brink of World War II.

Born in Duluth, Minnesota, in 1882 to immigrant parents, Frances Frankowski covets the life of her best friend, Rosalie Mendel, who has everything Fanny could wish for—money, parents who value education, and an effervescent and winning personality. When, at age fifteen, Rosalie decides they should run away to Chicago, Fanny jumps at the chance to escape her unexceptional life. But, within a year, Rosalie commits an unforgivable betrayal, inciting Frances to strike out on her own.

Decades later, the women reconnect in San Francisco and realize how widely their lives have diverged. While Rosalie is a housewife and mother, Frances works as a secretary for the Office of Naval Intelligence. There she is introduced to Ainslie Conway, an intelligence operator ten years her junior. When it’s arranged for Frances and Ainslie to marry and carry out a mission on the Galápagos Islands, the couple’s identities—already hidden from each other—are further buried under their new cover stories. No longer a lonely spinster, Frances is about to begin the most fascinating and intrigue-filled years of her life.

Amid active volcanoes, forbidding wildlife and flora, and unfriendly neighbors, Ainslie and Frances carve out a life for themselves. But the secrets they harbor from their enemies and from each other may be their undoing.
Drawing on the rich history of the early twentieth century and set against a large, colorful canvas, Enchanted Islands boldly examines the complexity of female friendship, the universal pursuit of a place to call home, and the reverberations of secrets we keep from others and from ourselves.

1:00pm: 2017 Clinical Practice Guidelines regarding Genetics, Speaker: Michele Disco, CGC

Michele Disco, CGC, a Pediatric Genetic Counselor now at Northwell Health on Long Island is currently teaching and supervising genetic counseling students at Sarah Lawrence College. Previously, at the Children’s Hospital at Montefiore and Albert Einstein College of Medicine. She presented “Telling Her About Turner” at the Turner Syndrome Foundation Workshop at Montefiore in 2016. Powerpoint presentation followed by Q & A from audience. ” I would love to hear how your stories might be incorporated into the pre- or postnatal information in a useful way.”

A youth program for the girls and siblings. Advanced registration is required.

Donations are appreciated. Thank you for your generous support.

©2017 Turner Syndrome Foundation

Turner Syndrome Foundation

Turner Syndrome Foundation