Mission

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Turner Syndrome affects 1 in 2,000 females.  We can help.

Mission Statement:
The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care of those affected by Turner syndrome.   Early diagnosis and comprehensive treatments over the lifespan may lead to a brighter and healthier future for all young girls and women with Turner syndrome. TSF is a registered 501(c)(3) nonprofit organization

“First a baby, soon a growing child, and finally a woman, our efforts must transcend the Turner Syndrome life span.”

History of Turner Syndrome
A Tribute to Henry H Turner, A Pioneer in Endocrinology, authored by G. Bradley Schaefer, MD, and Harris D. Riley, Jr., MD


What Makes TSF Different

Free Resources. Personalized Support. Dedication to Research & Education.

Our philosophy to keep life-changing resources free and accessible to patients is a key component of what sets us apart. We do not require membership dues or fees to access our resources. Everything found on our website is completely free to everyone, so you can find what you need exactly when you need it.

In fact, most of our events are free to attend as well, such as our patient education workshops. These workshops feature presentations by experienced medical professionals – and are 100% donation run. In addition to our online resources, we provide personalized one-on-one support to every individual that calls or emails our office everyday. We are proud to offer this level of support to the most vulnerable members of our community.

However, these elements only begin to scratch the surface of what makes us unique. While we understand and appreciate the importance of community events and fundraisers, we also know how much more impactful research and education initiatives will be in the long term. Our mission to “support research initiatives and facilitate education programs that increase professional awareness and enhance medical care” means that we partner with medical professionals, industry leaders, and more to form councils, publish guidelines, and support research. 

Our commitment to research and education is demonstrated by the strong support of the medical community. TSF is regarded in the medical community as a leading resource for Turner Syndrome. Professionals often refer their patients to TSF because of our many enriching resources. Many medical professionals have even chosen to support us by joining the TSF Professional Membership, an initiative formed to help deliver support to the patients who need it most.

With all of this in mind, turn to the Turner Syndrome FOUNDATION. A strong foundation of free support, education, and research builds a future of hope, awareness, and care.


Governance and Reporting

The Turner Syndrome Foundation is guided by standard practices to maintain fiduciary responsibility and transparency to its donors. Information is provided upon request. For a copy of the Turner Syndrome Foundation’s by-laws and articles of incorporation, please write to us: Turner Syndrome Foundation, PO Box 726, Holmdel, NJ 07733

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