Determined to make a difference in the lives of individuals with Turner Syndrome through education, research and support, I founded this organization to advocate for a randomly acquired and complex condition affecting women. Precious lives, families and communities are struggling for answers.
As part of the Turner Syndrome Foundation team, I am here to help find solutions to your everyday questions and concerns. Using the abundance of information on our website, my daily communication reaches the person who contacts TSF, whether by e-mail to welcome the new registrant or by phone to share the emotions of a newly diagnosed woman.
As of 2017, my focus has been on program development, working with our executive director to write plans, proposals, and resource materials. Previously I had been a Health Initiatives Coordinator, generating and expanding research and educational resources for both medical professionals and those affected by TS. To date, I have assisted in the coordination of the Council on Infertility’s publication as well as developed numerous resources for the TSF website. I am dedicated to the mission of TSF to ensure that in the near future every women touched by Turner Syndrome will have her questions and concerns answered.
In the role as Talent & Communication Coordinator, I share the excitement of advocacy opportunities with individuals and companies to encourage support for the important objectives of the Turner Syndrome Foundation. Creating new alliances for a greater awareness, allows me to understand the personal or professional commitment of our talented volunteers. It is my goal to align each with a meaningful way to give back and get involved. There is an opportunity here for everyone.
I am generously committed to the mission of the Turner Syndrome Foundation. As I round out my senior year at Monmouth University, I continue my work with TSF on data forensics, analysis, and budgeting.
Patient Registry Coordinator
My mission at the Turner Syndrome foundation, as a bilingual speaker and writer, is to infuse diversity in our patient outreach to increase education and facilitate support to all young girls, and women with Turner Syndrome. It’s highly important to me that our families know we are here to help, communicate, and bring comfort in more than one language.
Being a part of the Turner Syndrome Foundation, to me, means that I can contribute to those dealing with TS alone. My goal for Turner Syndrome Foundation is that we make the awareness of this cause even greater and find support for the girls and women living with Turner Syndrome. I plan to use my skills in media and publicity to open up a whole new world to people unaware of TS and broaden the foundation’s horizons.
I am a student of Brandeis University in pursuit of a major in Health: Science, Society, and Policy with a minor in Biology. I am an athlete on the BU fencing team and an active member of Russian Club. In my free time, I enjoy drawing and taking pictures. After graduation, I plan to attend medical school and pursue a career as an ophthalmologist. My mission at Turner Syndrome Foundation is to raise awareness and enhance medical care of those affected by Turner Syndrome. I will accomplish this mission through advocacy, networking, and educating myself and others through my research efforts.
Peer to Peer Support
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