Turner Syndrome Awareness Month 2022

February is Turner Syndrome (TS) Awareness Month, a time to focus on spreading the word and supporting the TS community. The Turner Syndrome Foundation (TSF) advocates for this unique cause that affects thousands of individuals and families this month and year round. Learn how you can support the community, too.

About TS Awareness Month

Every February, thousands of individuals with TS, along with their families, caregivers, and supporters, work to spread awareness. But they need help. Will you help this growing movement to improve the lives of those in the TS community everywhere?

TS is a genetic condition that affects one in every 2,000 live female births. It causes different physical, mental, and social challenges for those with the condition. TS is caused by a missing or incomplete X chromosome in the DNA–the building blocks of cell function. Only 1-2% of fetuses with TS survive to birth, making TS butterflies extra special! You might have someone in your community who has it without your even knowing it.

Despite the wide variety of effects on those with the condition, TS is still not well known. Unfortunately, many patients with TS do not receive diagnoses enough to get the resources they need to live full and healthy lives. The TS community needs as many supporters as possible to advance this cause, including:

doctors and other medical professionals to help diagnose and treat the condition;
educators to help individuals with TS excel academically;
researchers to discover new methods to diagnose, treat, and understand TS; and
people like you to help those with TS by spreading awareness.

If you want to help the TS community by supporting this growing movement, we have a fun, month-long challenge you can join!

The 28-day Giveaway Challenge

The 28-day Giveaway Challenge is a great opportunity to learn more about TS and the TS community. You can spread awareness throughout February and beyond. Not only that, but it also makes

you eligible to win dozens of prizes TSF is giving away throughout the month!

These prizes will be given to participants who do special activities each day that help spread TS awareness. The daily tasks can be found on a Google Calendar that is connected to TSF’s email.

For example, the challenge for February 1st is to sign up for our Awareness Newsletter, which will inform you about causes and stories that are meaningful to the TS community. If you sign up you will be eligible for a prize! The more challenges you complete, the more prizes you could win!

To sign up for the event, all you need to do is:

Click here.
Click on the green button at the top that says 28-day Giveaway Challenges, which give you access to the event.
To complete the challenges, click on the links (in purple) on the calendar.

Other Ways To Celebrate TS Awareness Month

Other awareness events this month include:

Facebook chats: Meet the bright, colorful personalities of the TS community and learn about TS, the challenges people with TS face, and how you can help them! Chats take place throughout February on Wednesdays from 8:00 to 9:00 p.m. EST on TSF’s Facebook page. To learn more, contact Awareness Team leader Nicole Topp at ntopp@tsfusa.org.

Take a Step for TS: This virtual walk/run event helps to spread awareness for the cause and raise money for the TS community. To participate, just click here, create an online fundraising page and encourage others to join the event. Mention your progress on social media, and enjoy the benefits of working out and supporting the TS community!

Card auction: Organized by Lori Kobular, TS mom and TSF volunteer, this Instagram auction will help raise funds to support the TS community. Bid on masterpieces created by greeting card artists from across the globe to spread TS awareness. All auction proceeds go to funding resources to help the TS community. Visit this page to learn more.