Hi! My name is Amanda, and I am 21 years old with Turner Syndrome (TS). After my diagnosis at the age of 7, I was surrounded by my family’s love and support. However, my friends have played an even bigger role (don’t tell my mother) in my life with Turner Syndrome. In dedication to Friendship Day, I want to thank all of the friends I have met since my diagnosis and express how thankful I am for each of them. Getting diagnosed with anything is a frightening time, and having a good group of friends by your side makes it a lot easier! So, I ask of all of you, regardless if you can attend the seminar or not, to pick up the phone or send a text to that one friend who you cherish, and just say how thankful you are to have them in your life.
Please join us on July 30th!
REGISTER & SAVE THE DATE!
On 27 April, 2011, the General Assembly of the United Nations declared July 30 as official International Friendship Day. Growing and maintaining positive friendships is a great way to connect with people on a shared experience of living life with TS.
The Star Sister’s National Friendship Day event will take place on Friday, July 30, 2021 at 8PM EDT. It’s sponsored by the Turner Syndrome Foundation. It will take place on Zoom, allowing the community to connect freely and safely!
Advance registration is required.
Light and Social Meetup
Join us for a casual evening of small talk and introductions. Amanda will be joined by a few of her longtime friends to welcome you!
Stories will be shared about how important their bond of friendship has meant to them over their younger years and even today.
The meeting will have break out rooms organized by age groups to allow meaningful discussions. Furthermore, there will also be a room just for moms, too!
Each person registered must register and have their own screen at the event. For example, a mother and daughter would register separately. During the breakout session, they would move into their respective group.
This event is for ages 10 and up and adult supervision is recommended.
No medical information will be shared at this event, it is strictly social.
Would you like to make new friendships?
The Turner Syndrome Foundation is always asked, ‘Can I connect with someone like me?’ Of course you can! The Star Sister’s program is a free virtual program for women, girls and their caregivers to connect and mentor one another.
Just hear what one Star Sister shared:
- Why do you want to be a Star Sister? I want to be a Star Sister because when I was growing up, I never knew anyone else with Turner Syndrome. Then, I met some girls with it, and that had such an impact on me. I want to be able to give that to another girl with TS. Also, I welcome the opportunity to make new friends.
- What do you hope to gain from having a Star Sister? I hope to show my Star Sister that she is not alone and that I understand what she’s going through. I’d also like to gain a new friendship from having a Star Sister.
- Do you have any previous mentorship experience? No, but I welcome an opportunity to mentor younger girls with any questions regarding TS.
Many girls and women, and their caregivers, have never met anyone with TS. The Star Sister’s program creates a space for these connections to blossom. Thus, this allows individuals to share honest experiences and form a sisterhood of positivity. All meet-ups and events occur online. Therefore, anyone, anywhere can participate!
Stars Sisters experience many new ways to connect, including:
- Webinars hosted by experts, life coaches & more
- Exclusive invitation to a closed group for Star Sisters only
- Virtual hangouts for Star Sisters members
- Learn from the best – each other!