Monthly Archives: April 2021


Celebrating TSF’s Volunteers

celebrating TSF's volunteers

April is National Volunteer Month! As the month comes to a close, we want to highlight some of our amazing volunteers. TSF is primarily volunteer-led. We are grateful for the individuals who generously offer their time and talent to advance…

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How To Call Government Officials Like A Pro

how to call government officials

Calling your local government officials is a great way to spread awareness of your cause and fight for actionable change, but many people may not know how to do it, or why. This article will tell you everything you need…

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When to Share the Turner Syndrome Diagnosis?

when to share the Turner syndrome diagnosis

In this post, we explore perspectives on when to share the diagnosis of Turner Syndrome with a child. This post is an update of an article published by TSF, based on a 2006 research study. Some personal perspectives shared within…

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My Story: I Feel So Lucky

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents and caregivers. In this post, Rita, a 78-year-old woman who was diagnosed with TS at 17 years old,…

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Estrogen Replacement Therapy Overview

Estrogen Replacement Therapy Overview

Estrogen Replacement Therapy (ERT) is an important treatment for adolescents and women with Turner Syndrome (TS). The below overview is provided by Lournaris Torres-Santiago, MD and Nelly Mauras, MD, from Nemours Children’s Health System in Jacksonville, FL. Note: The information…

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Announcing Long Island’s Turner Syndrome Clinic

Turner Syndrome Clinics, otherwise known as Specialized Centers of Care, offer comprehensive health care for individuals with Turner Syndrome. We are happy to announce a newly-approved clinic in Long Island and share how you can find one near you! Turner…

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Everything You Need to Know About Fertility Preservation Treatments

Everything you need to know about fertility preservation

This post is based on the recent webinar by Dr. Oktay on “Fertility Preservation in Girls with Turner Syndrome.” It briefly highlights the importance of early diagnoses and treatment as well as the types of fertility preservation treatments individuals with…

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The Importance of Vitamin C

The Importance of Vitamin C

In honor of National Vitamin C Day, we’ll talk about vitamin C–its effects on the body and health benefits for people living with Turner Syndrome (TS). Note: The information in this post is educational and should not replace medical advice…

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Estrogen Replacement Therapy FAQ

Estrogen Replacement Therapy FAQ

Estrogen Replacement Therapy is a common treatment for patients with Turner Syndrome. In this post, find the answers to some frequently asked questions about ERT. Thank you to Lournaris Torres-Santiago, MD and Nelly Mauras, MD of Nemours Children’s Health System,…

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