Want to find more ways to spread holiday cheer this season? Help children and adults with Turner Syndrome (TS) access the resources and support they need to excel by giving to the Turner Syndrome Foundation (TSF). Learn the many ways to give back to the TS community this holiday season.
Why Support TSF?
What is TS?
TS is a genetic condition that affects 1 in every 2,000 female births in a variety of ways:
• physically: health challenges like short stature, hearing loss, heart disease, and osteoporosis;
• mentally: mental health challenges like anxiety, low self-esteem, and depression; and
• socially: social challenges like shyness and social anxiety.
TS is caused by a lack of a complete pair of XX chromosomes. Usually, people have cells with 46 chromosomes, which have DNA, the building blocks of the cell that control how the cell functions. These chromosomes come in pairs. Females typically have XX genes in their cells while males typically have XY chromosome pairs.
Patients with TS have either only one X chromosome or a pair of X chromosomes (XX), but one X chromosome has parts of the DNA, called genes, missing. This creates an incomplete pair of chromosomes.
How Does TSF Help Individuals with TS?
TSF helps individuals with TS by:
- advocating for the needs of the TS community, including better treatments, diagnosis, and care for patients with TS;
- supporting research that explores ways to better care for, treat, and diagnose individuals with TS;
- making the general public more aware about TS, the health challenges that it causes, and the diversity of the TS community;
- teaching members of the TS community how to advocate for themselves and other members of the TS community, as well as how to advocate for more laws that support their wellbeing; and
- creating resources that help educators and medical providers better understand TS and how to support students/patients with the condition.
How Do My Donations Help TSF?
Here are some ways that your donations help TSF:
- If you donate $50 a month, you can help an individual with TS access personalized support.
- At $75 a month, you can help fund advocacy and education programs that support the TS community.
- If you donate $100 a month, you can help fund research that supports the TS community.
Ways To Give to TSF
Now that you know more about TS, how can it effect individuals who have it, and how TSF helps individuals with the conditions, here are some ways that you can give to TSF:
Give to TSF via Direct Donations
You can donate financially by:
- filling out this online form, which asks for information such as your name, address, and how you will pay; or
- mailing a check with this form attached, which asks you for information similar to the online form, to PO Box 726, Holmdel, NJ 07733.
Any information you share with TSF is confidential; only you and TSF will have access to it. TSF may send you updates about upcoming events and recommend resources it offers if you opt-in.
Another way you can support TSF is by becoming a monthly giver. Becoming a monthly giver means that instead of donating one time, you are donating a certain amount of money every month for an entire year.
To become a monthly giver:
- check the box that says “I’d like to make a MONTHLY PLEDGE to make an impact all year long!” if you are donating online or;
- use this form and fill out your donation amount in the Monthly Donation Amount section if you are donating via mail.
As a monthly giver, you can, at any time:
- increase your donation amount,
- decrease your donation amount, or
- stop being a monthly giver.
TSF will also help you learn how your donations affect your taxes by sending you an annual statement.
In addition to directly donating or becoming a monthly giver, you can also give back to the TS community and TSF by fundraising, COVID-permitting, including:
- bake sales,
- casual/business casual days,
- birthday pledging,
- restaurant nights, and
- virtual runs/walks.
To set up a fundraiser, all you need to do is:
- choose what type of event you want to run;
- sign this fundraiser form, which asks questions such as your name, address, where and when you are holding the event, and what the event will be like; and
- run your event and send the money back to us either online or by mail.
Another way you can help TSF is by using Amazon Smile. It works just like regular Amazon, except that 0.5% of your purchase will go to TSF! Here’s how it works:
- Visit smile.amazon.com and sign into your Amazon account.
- Type in your chosen charity–Turner Syndrome Foundation.
- After you choose TSF, your Amazon Smile account will be ready to go.
- Start shopping like you normally do on Amazon Smile, not Amazon, so 0.5% of your purchase is donated to TSF.
Donations Honoring a Loved One
In addition what was stated above, another way you can help TSF is by honoring a loved one by donating in their honor. This can be done in several ways:
To celebrate or honor a loved one, you can:
- donate in their name here online by going to Tribute Type and choosing “Celebration” or “Honor”; or
- send a mailed check and attaching this form with it to donate to TSF.
To memorialize a loved one who has passed away, you can:
- create a Memorial Tribute Fund in memory of your loved one: To create this fund, you must input information such as your address and phone number, which will be confidential between you and TSF. After entering your information, you can set up the fundraiser on Facebook or on a TSF account, set a fundraising goal, and start your fund.
- make a donation towards another person’s Memorial Tribute Fund: To do this, you first search for the fund’s name here. Then click on the fund’s link. Finally, click on “Support the Fund – Give Here.”
- Donate monthly or one time in memory of your loved one: You can do this the same way that you celebrate and honor your loved one, by going online or mailing a check with this form. But when you donate online and choose your Tribute Type, choose Memorial.
One of the best ways to maximize your financial impact and help TSF is by dedicating donor-advised-funds (DAFs).
What is a DAF?
According to the IRS, a DAF is a “separately identified fund or account that is maintained and operated by a…(nonprofit). . .called a sponsoring organization.” DAF accounts are made of donations that you give towards your chosen nonprofit (in this case, TSF).
When creating a DAF account for TSF, you control where and how much of your donation money will be spent but give TSF legal control over the account.
Along with the benefit of it being easy to maximize your financial impact, DAF’s are extremely flexible. If you wish to change how much funding you give to TSF or want to stop donating to TSF and allocate your donations elsewhere, you can.
Some examples of DAFs include:
- retirement plan gifts,
- gifts of life insurance,
- stock contributions, and
- IRA contributions.
Two types of DAF’s, Stock and IRA contributions, are explained below.
To donate stock funds to TSF, all you have to do is to create an account with Schwab Charitable, which requires a minimum of a $5,000 donation to start up. To create an account:
- Open an account with Schwab Charitable.
- Enter your personal information (it will be confidential between you and Schwab Charitable).
- Name your fund and what you want to donate to TSF with. To donate with stocks, choose Investment Capital Gains.
- Decide whether you want to add others to your account so they can donate, too. This is an easy way to maximize your financial impact with a DAF.
- If you add others to your account, you must add additional information about them, including their email addresses, afterwards.
- After filling out your fund’s or you other account members’ information, manage how your and other members’ money will be distributed in the Recommend Investments sections.
- Read and consent to Schwab Charitable’s Terms and Conditions agreement.
- If you have other members of your account, your account is not complete yet. You must have these other members sign up for the account in a similar way using an email sent to them by Schwab Charitable. This must be done within 10 days.
Another type of DAF that can really maximize your financial impact, especially if you are at least 70½ years old, are Individual Retirement Account (IRA) contributions. These are funds directly taken from your retirement account that are directly donated to TSF.
To make an IRA Contribution:
- Tell your financial provider that you want to directly donate to TSF with a portion of your IRA funds. Then, have them check if you qualify for tax benefits by donating this way (usually, if you are over the age of 70½, you do).
- If you qualify, donate at least the minimum amount of money to satisfy the IRA contribution requirement. This can be done in full or in portions over time.
- See how much tax relief you can get from donating to charity.
- Set up the direct transaction of your funds to your chosen charity–TSF.
- Start making your direct impact by donating!
There are many ways to give back to the TS community by supporting TSF. You can give directly by mailing checks or donating online in various ways: Amazon Smile, fundraising, and with DAFs to maximize your financial impact. Please support TSF in helping individuals with TS and their loved ones excel now and in the future by beginning your gifting journey today.
Written by Elizabeth Rivera, TSF blog writer and member of TSF’s Communications staff. Edited by Susan Herman, TSF volunteer blog post editor and translator.