Monthly Archives: December 2020


2020 in Review

TSF 2020 in review

As a TS patient, I’ve been longing for a community and resources to access the information and community I’ve been craving. TSF has given that to me 10-fold as I began joining their online forums, volunteer on their Awareness Committee…

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My Story: Navigating Turner Syndrome Under the Radar

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of two women, Katelynne and Susan, who were both diagnosed later than…

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From 1938 to 2020: It’s Time for Change

Did you know that Turner Syndrome (TS) was first discovered in 1938? It might be hard to believe, given that, after 80 years, there is still a lack of awareness, research, and support for the TS community. Take a look…

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My Story: Never Let a Diagnosis Get in Your Way

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Maria, a 29-year-old woman with TS. Maria discusses how she has…

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Adult Care Guidelines for Individuals with Turner Syndrome

adult care guidelines

In this post, we will share adult care guidelines for patients with Turner Syndrome (TS). We aim to provide a general overview of suggested physician visits, tests, and monitoring to ensure prevention of potential health concerns. Note: The information in…

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Letters from Santa

Spread holiday cheer with a letter from Santa to your child! You can select a pre-written letter template, add some personalization, and TSF will send the letter to your child, from Santa. Registration is open from December 7-14th so that…

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Ways To Give Back to the TS Community

Want to find more ways to spread holiday cheer this season? Help children and adults with Turner Syndrome (TS) access the resources and support they need to excel by giving to the Turner Syndrome Foundation (TSF). Learn the many ways…

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New Merchandise- the Story Behind the Designs

new ts awareness merchandise

We are so excited for the launch of new merchandise to show Turner Syndrome Pride! The items feature unique designs with symbols commonly associated with TS. They are available on a variety of products from hats to blankets to sweatshirts…

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