Monthly Archives: November 2020


How YOU Can Support the Turner Syndrome Community

Want to make a difference and help people in your community? This article will explain how you can support the Turner Syndrome (TS) community, as well as the Turner Syndrome Foundation (TSF). All About Turner Syndrome What Is Turner Syndrome?…

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Pediatric Care Guidelines for Turner Syndrome

pediatric care guidelines

In this post, we will share care guidelines for pediatric patients with Turner syndrome (TS). We aim to provide a general breakdown of suggested physician visits and tests to expect to ensure early monitoring and prevention of potential health concerns….

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A Doctor’s Turner Syndrome Story

Learn Dr. Mary Gwyn Roper’s story on how she was affected by TS, why she started working with TSF, her hopes for the future, and how you can help the TS community! A Doctor’s TS Story Dr. Roper was born…

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Thankful for Turner Syndrome

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation (TSF). Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on how she made peace with and learned to be…

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My Story: I Wouldn’t Change a Thing

As part of its monthly My Story series, the Turner Syndrome Foundation (TSF) highlights individuals with Turner Syndrome (TS) and their parents/caregivers. This month, we present the story of Jill, a 28-year-old woman with TS. Jill discusses how she found…

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Celebrate Children’s Day with TSF!

World Children’s Day is a day to celebrate the rights and education of children. This year, in honor of Children’s Day on November 20th, the Turner Syndrome Foundation (TSF) is are offering two opportunities to celebrate your special child. Spotlight…

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Announcing 24/7 Caregivers Group

“I have come to realize that there are other families out there that are struggling with similar issues. I recognized there was a need for a 24/7 Caregivers Group to help and support each other.” -Lori Kobular, mother of a…

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Common Doctors for Individuals with Turner Syndrome

common doctors for TS

Turner syndrome (TS) is a complex disorder, and a variety of specialized healthcare providers are involved in its management depending on individual needs. Although finding the right provider is a challenge of its own, remember that we are here to…

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How to Find a Turner Syndrome Specialist

finding a doctor

Do you or a loved one have health challenges due to Turner Syndrome? Struggling with finding the doctors you need in order to stay healthy? This article will help you learn how to find doctors that can help you with…

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Communicating With Your Physician: Tips On Self-Advocacy

In this post, we will discuss some tips on how to communicate with your physician. Particularly, we will focus on specific ways patients and caregivers can ensure that physicians are listening to and hearing their stories for effective clinical encounters….

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