Monthly Archives: September 2020


My Story: My Daughter Eliana

This post is part of the Turner Syndrome Foundation’s (TSF) monthly blog post series My Story, which highlights the varied experiences of individuals with Turner Syndrome (TS) and their families. Below is an account by Marlene, whose daughter Eliana (Eli)…

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How to Help Your Child Overcome Their Reading Challenges

tips for overcoming reading challenges

Is your child having lower test scores than the average student on topics such as reading and writing? Are they getting frustrated with or losing interest in reading with you or in class? They may have reading challenges, such as…

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Susan’s Educational Journey

Susan is a volunteer blog post editor and translator for the Turner Syndrome Foundation (TSF). Her Turner Syndrome (TS) journey began when she was 19, after testing by the genetics department at her university. She is now 51. While TS…

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Cyberbullying: How to Help your Child

 Is your child acting more upset, angry, hungry, antisocial, or tired lately? Has your child become less social online or become more negatively emotional when online? Does your child have health challenges that cause them to stand out at school,…

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Insights on Education: Ask Star Sisters

We asked our Star Sisters, a private Facebook group for individuals with Turner Syndrome (TS), for their insights on education. Read below to see what three ladies with TS had to say about their educational journey, their biggest challenges, and…

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Coping with Miscarriage: Sara’s Story

Coping with Miscarriage

Sara is a woman who lost her second child in utero due to Turner Syndrome (TS). In this post, she shares her story of loss, acceptance, and perseverance in coping with miscarriage. While miscarriages occurs in up to 99% of…

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TSF Volunteers Making an Impact

Do you want to positively impact your community but don’t know how? Read the stories of several new Turner Syndrome Foundation (TSF) volunteers who are making an impact by dedicating their time and talent. In this post, you will see…

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How To Advocate for Your Child in School: Navigating 504 Plans and IEPs

Do you or a loved one have a child who struggles in school? Are you having difficulty advocating for their academic needs? Learn how to advocate for your child in school using a 504 plan or Individualized Educational Program (IEP)…

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In Celebration of Education

blog series with Katie Steedly curling

Written by Katie Steedly Curling, PhD, writer, and guest blogger for the Turner Syndrome Foundation. Katie writes monthly about her experiences living with Turner Syndrome. In this article, she reflects on her educational journey and the things she celebrates in life….

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Sharing Your Child’s Turner Syndrome Diagnosis: One Family’s Perspective

Sharing your child’s Turner Syndrome (TS) diagnosis can be challenging. Amy and Chris are the parents of Avary, a wonderful, now four-year-old girl who has TS. They have long been advocates for TS awareness, having navigated the stages of coping…

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