Positivity through the Journey

“I have always been shorter and smaller than my peers and that’s okay. I like being my own unique self! We are all beautiful, no matter what!

Cassidy is a woman who has Turner Syndrome with a story to share. She spreads a message of positivity despite challenges she has faced through her life journey.

Diagnosed with Turner Syndrome at Birth

Hello! My name is Cassidy Hooper and I’m from Mississippi. I’m 26 years old. I was diagnosed with Turner Syndrome at 9 days old. The doctors knew something was different about me even when I was born. I had puffy hands and feet, which is a common characteristic of TS.

At 9 days old I had coarctation of my aorta which is also common with TS. I had that repaired and the doctors did a karyotype. This confirmed that I had classic Turner Syndrome. Of course my parents were scared at first because they knew nothing about TS, but as I got older they realized I can live a happy, fulfilled life with TS.

Challenges Growing Up

I took growth hormone shots from the ages of 3 to 17. There are some other health challenges I am affected by such as hypothyroidism and horseshoe kidney. I’m also concerned about aortic dissection because I know TS women are at higher risk, and my dad had aortic dissection. This can be scary, but luckily I haven’t had any heart issues since the coarctation of my aorta was repaired at 9 days old. But still, it’s good to be cautious!

During high school, around age 17, I was also diagnosed with a form of autism called Asperger’s Syndrome. My mom wasn’t surprised at all because she knew something other than TS was going on. I wasn’t connecting or socializing much with others my age in high school. Sure enough, she took me to a psychiatrist and he diagnosed me with Asperger’s Syndrome.

Finding Community

At first I didn’t know anyone with both TS and Asperger’s, but over the years I’ve been meeting women like me, especially online. It’s so nice to have a community that is supportive of each other! We are here for each other even through our struggles and obstacles. We are strong butterflies!

I’m so lucky to have a great support system and I’m also lucky to meet other TS sisters! You all are amazing! I’m around 4’10” to 4’11”, and short stature is another characteristic of TS. I have always been shorter and smaller than my peers and that’s okay. I like being my own unique self! We should all be unique in our own way! We are all beautiful, no matter what!


Cassidy is a Turner Syndrome Foundation volunteer, and we are so glad to have her working with us! Her outlook of positivity despite facing challenges in her journey is inspiring. She uses that message to us raise awareness through social media. Check back next week to learn about Cassidy’s volunteer experience.

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