Turner Syndrome FoundationMonthly Archives: February 2020
Self-Advocacy for Better Health
Christina is a woman who has Turner Syndrome, a wife, and a teacher. In this monthly blog series, she shares her experiences living with Turner Syndrome. This month I would like to shed some light on the open-heart surgery that…
Read MoreCamp Carefree 2020
Camp Carefree is a wonderful camp in North Carolina that is offering a week of camp for girls who have Turner Syndrome this summer! Each week in the summer, they host children that have various health challenges. They offer an…
Read MoreLori’s Scrapbooking for Awareness
Lori is board member for the Turner Syndrome Foundation. She has created a community of support for Turner Syndrome through her love for scrapbooking. Lori’ daughter, Julie, was diagnosed at six weeks old. When it came to caring for and…
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Turner Syndrome Health Presentations at UTHealth
The University of Texas, Houston, recently hosted their annual “Turner Syndrome Community Day.” This is an event for patients and families to learn about a variety of health topics in a series of presentations. From clinical care guidelines, to dental…
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Turner Syndrome affects 1 in 2,000 females
She is a daughter, a sister, a friend. Women and precious babies diagnosed with Turner Syndrome require a lifetime of specialized care.
Read MorePerspectives on Health and Turner Syndrome
In our second Twitter chat for Turner Syndrome awareness, we talked about health concerns. It was insightful to hear so many perspectives on the condition. As we learned, TS affects every woman and girl differently. There are some more common…
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An Awareness Success Story
by Katie Steedly Curling, PhD, Writer & Guest Blogger for TSF Sometimes in our rush to think about awareness as big events and campaigns, we forget that awareness is, above all, personal. Connection is the heart of Turner Syndrome awareness….
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