Support for Grandparents

turner syndrome grandparents

Are you the grandparent of a girl or woman with Turner Syndrome? We want to thank you for being here, for seeking knowledge and understanding for your granddaughter.

Grandparents reach out to TSF just as frequently as parents. They’re often hoping to understand what their granddaughter is going through and looking for resources to help her. Grandparents also contact TSF for support for coping with a new diagnosis.

Today, we’re sharing tips specifically for grandparents on coping with a diagnosis. How can you get involved now while supporting you son or daughter who just received a diagnosis for their child? Keep reading to find out!

Tips for Coping with a New Diagnosis
  1. Give everyone time to grieve. Though TS girls can live long, healthy lives, the future you envisioned for her may be a little different. Be patient with your child, grandchild, and yourself as you all take time to accept the diagnosis.
  2. Ask how you can help. Your child may have a lot on their plate right now and can benefit from your support. If you’re struggling with something, don’t be afraid to ask for help, too.
  3. Listen. One of the best ways you can support your son or daughter is just by being there and listening. Visiting doctors, finding insurance help, and more can be overwhelming. By listening, you can help alleviate any negative feelings.
  4. Remain hopeful. Turner’s girls are amazing! They are limited only by their own dreams. Watch our video series to see what our girls are capable of.
  5. Don’t ask too many questions about the future yet. There may be some unknowns right now, and bringing them to your son or daughter’s attention may lead to more confusion. Visit the TSF website or reach out to us instead and we’ll help you find answers.

Turner Syndrome Foundation is happy to provide personalized support to each person that contacts our office free of charge. We know how important a listening ear or a reassuring voice can be at this challenging time of a new diagnosis. Your donation today can allow TSF to continue providing one-on-one support to those who need it most. 

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