Rutgers University Study on the Epidemiology of TS

Rutgers Student Studies Health Concerns in Turner Syndrome For MPH Project

Veronia Hanna, Rutgers University Masters of Public Health student, chose to study Turner Syndrome for her practicum poster presentation, a final project required for Masters of Public Health candidates. Titled, “Health Concerns in Turner Syndrome Patients,” Veronia assessed the epidemiology of health concerns frequently expressed by women and girls with Turner Syndrome. She completed this IRB-approved study by quantifying de-identified survey responses of more than 2,000 patients and caregivers.

Veronia presents her findings at the MPH Practicum Poster Session.

When preparing for this research study, Veronia noted that most of the existing literature focused on short stature and other physical implications of Turner Syndrome, but shed little light on the psychological aspects. She also noticed that the literature was not clear on the impact diagnosis age and early interventions had on the severity and number of health concerns. Through her research, Veronia sought to bring some understanding to these aspects of Turner Syndrome.

Veronia found general health and lack of awareness to be the most commonly reported health concerns among the survey responses, and that patients and parents reported their concerns differently. Overall, more research, education, and awareness are needed to fully understand this complex condition.

Are you looking to expand your research skills with a unique and impactful project? Complete the TSF Volunteer Application today and we’ll work with you to develop a meaningful opportunity! We look forward to receiving new candidates to continue Veronia’s important study this fall!

“Working with the Turner Syndrome Foundation was an incredible experience. Having the opportunity to analyze data that’s been collected over a number of years provided robust and unique insight about the concerns of TS women as well as parents of those with TS. Assessing health concerns elucidated the hardship and less acknowledged social/emotional difficulties of women living with TS. I hope this research and results opens the door for further assessment of self-reported health concerns amongst women and parents waiting for their voices to be heard to raise awareness about TS and its implications on quality of life.” 

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