A Universal Call to Action

On November 28, our Advocacy Coordinator, Liz Carmines, presented for TSF at the Monmouth University Social Work Society Teach-In. With a theme of “community members as change agents,” Liz was featured on an opening-day panel with three other change makers to present the work of TSF. She presented in front of a filled auditorium, talking about the progress that has been made in recent years, the struggles, and how people can get involved in our work as volunteers.

Then, she presented a session called “Women’s health: the medical, financial, and social intersections.” This was an opportunity to further elaborate on the purpose of TSF and our goals, talking about the lack of awareness as the main barrier to providing quality care. The overarching message of this session was that raising awareness is the first step, and that will foster growth in the medical, financial, and social aspects.

A main takeaway that we should reflect on is how detrimental it is to keep secrets. We all have one, whether it is a health issue, a family difficulty, a financial struggle, or many other things that we experience but are embarrassed or ashamed to share with others. Keeping these secrets causes inner turmoil and can lead to a plethora of psychological effects like depression and anxiety. But even more than that, without making the issue known to others, there is no way to seek help and for society to show support. Take Turner Syndrome, for instance. If no one knows about the disorder, how can our society possibly improve care and provide social support? Unless people know there is a problem, there is no necessity for a solution. We would like to change this culture, by each promising to share our secrets with the world, and in turn pledging to recieve people without judgment and with empathy. This way, we can all help each other and be helped in turn.

The overall message of the day was discovering what we can each do to make a positive impact on the lives of others. We truly believe in the power of one, that every person can make a difference. There are ways to make a difference that are virtually effortless, like sharing our blog posts on your social media and talking to people in your every day life. Try asking, “have you ever heard of Turner Syndrome?” This might seem like a random question to ask people, but it may start a conversation that will spark interest in whomever you are speaking to, and they, in turn, can share what they learned with others. Here are some more things you can do to get involved for Turner Syndrome Foundation, or another organization you support:

  1. Make a one-time donation or reoccurring donations
  2. Intern or volunteer with us
  3. Link with TSF on Amazon Smiles- https://turnersyndromefoundation.org/2017/11/21/cyber_monday/
  4. Or with Investors Bank Care2Share- https://turnersyndromefoundation.org/2017/11/10/tsf-investors-banks-business-month/
  5. Or with TD Bank Affinity Program- https://turnersyndromefoundation.org/become-supporter/td-bank/
  6. Participate in the NJ Marathon or 5K “Fun Run or Walk” with Team TSF- https://form.jotform.com/72164879284166
  7. Host a fundraiser

Please contact advocacy@tsfusa.org for more information on how to get involved!

 

©2017 Turner Syndrome Foundation

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