Benefits of Registering with TSF
Education – Information- Support
Patients are invited to join the Foundation’s patient registry. Studies derived from patient registries can provide a real-world view of clinical practice, patient outcomes, safety, and comparative effectiveness and cost-effectiveness, and can serve a number of evidence development and decision making purposes.
Patients can receive the monthly eNewsletter, stay informed, receive invitations to education and research opportunities, and learn ways you can make a difference through our Team TSF activities taking place across the country. Patient Registration
Providers are invited to join the Foundation’s professional registry. Physicians, educators, researchers, industry and policy makers. Stay up-to-date on current information, conferences, workshops and community activities. Your involvement can directly impact the future of Turner Syndrome. Professional Registry
When you register online you can also sign-up for upcoming TSF e-newsletter updates on TSF educational events, special events, and volunteer organized events scheduled throughout the country.
Your input on issues surrounding TS are important to understanding and defining programs. firstname.lastname@example.org
Online Web Based Community Support: Note, the Foundation does not control or monitor the comments and interaction provided on social networks.
Leadership, Committee, Community, Fundraiser, TEAM TSF, Bake Sale, and more... Volunteer opportunities
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