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Public Advocacy
“Children are the future, and they are an extension of a parent’s love and hope for a life well lived. As for me, my daughter is the light and inspiration to everything I do, especially in my leadership role with the Foundation. She is fortunate in so many ways, yet her struggles, albeit mild, keep me up at night dreaming of solutions that will enable her a lifetime of good health and fulfillment. This quest for health and happiness is universal and far reaching, beyond borders, cultures, ethnicities or social boundaries. Turner Syndrome is a random disorder. A new baby girl is born every eight hours with TS. We need to learn more about its causes, treatments and how to improve outcomes.” Laura Fasciano, Founding President & Director
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Call to action for residents of New Jersey - Support Legislative Bill AJR65
There is a new bill being proposed in the senate, SJR64 that would make the month of February “Turner Syndrome Awareness Month.” The bill, currently sponsored by Senator Jennifer Beck, co-sponsored by Robert W. Singer, was approved and moved through committee. This would bring awareness to this issue that affects thousands of New Jerseyans and their families. This legislation would highlight Turner Syndrome and advocate for programs that would inform caregivers about its effects and treatments.
The Foundation is asking New Jersey residents to contact committee President, Stephen Sweeney to respectfully ask him to include bill SJR64 on the Marach agenda. Contact Sen. Stephen Sweeney at (856) 251-9801 or email him at SenSweeney@njleg.org.
Share your personal story as to how this condition affects your life and why this legislature is important to you.
Template: Sample letter
If you have any questions, contact cgong@tsfusa.org.
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The Turner Syndrome Foundation has created a tool to support your advocacy efforts. The Short and Sweet Talking Points will help you learn to speak about TS. It is meant to be an introductory guide to help you get the conversation started. Talking Points Guide
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