A Nutcracker Sweets: Enchanted Performance & Benefit
Celebrating the Holiday Season with Friends and Families
The 5th Annual Holiday Party
Sunday, 12/8 from 12 - 4 p.m.
Greycliff, Moonachie, NJ
View event program
Special thanks to our generous sponsors:
Sofia is all smiles in her festive party dress at the 5th Annual Holiday Party for Friends and Families of the Turner Syndrome Foundation. This annual benefit of the Turner Syndrome Foundation, a national organization dedicated to raising awareness and advocating for all girls and women with the condition. In addition to being held at a new venue, the Graycliff, in Moonachie, The Garden State Ballet accompanied by an orchestra conducted by Ilene Greenbaum performed a spectacular performance of Tchaikovsky’s “The Nutcracker”. Many raved that this years event felt more like a "gala" and the committee raised the bar. 200 guests attended from coast to coast who had ties to Turner Syndrome.
Laura Fasciano's speech illustrated the basis for this work. She shared, " Months ago a man called sharing that his wife was carrying a baby with Turner Syndrome, and I counseled him the best I could. Months passed and I found my scribbled handwritten note on a small piece of paper on my desk. I thought to check on the fate of this child. Statistics show that I should have expected the worst, but when he answered the phone I could hear he was at work, and briefly reintroduced myself. He said, "Thank you ma'am for calling. My baby girl is so beautiful! She had a coarctation of her heart repaired two weeks after birth and she is doing fine. Other than that she is really healthy and we love her so much!" Tearfully spoken, Laura shared that this child, these children, must be provided the dignity of good healthcare and parents much needed education and support. These daily testimonies push the Foundation's mission forward. We thank all who continue to contribute to our appeal for support.
Our goal to celebrate our many blessings and to bring families and friends together for a memorable occasion to benefit the foundation was realized because of countless and invaluable volunteers and supporters. Thank you each and all who attended or sponsored the event. Wishing all a healthy & Happy New Year in 2014!
Photo gallery coming soon....
FREE PATIENT AND CAREGIVER WORKSHOP PROGRAMS
The purpose of patient workshops is to provide education, information and support to patients and their caregivers by experienced and knowledgeable providers. Turner Syndrome Foundation workshops have been organized since 2009, and reach patients in communities where they live. Many families travel a great distance to increase their understanding, gain new perspectives and learn about current resources. Please join us by registering today. If you have any technical difficulty registering online, call 1-800-594-4585 to register by telephone or email email@example.com.
WHEN: September 2014
WHERE: Children's Hospital at Montefiore
TIME: 11 a.m. - 4 p.m.
TOPICS: Care and management of girls with Turner Syndrome, Pediatric Endocrinologist, Cardiologist, Psychologist, Dentist, and a supervised children's program
TOPIC: Bullying Sadness and Worry: Knowing what to watchout for and when to be concerned
by: Becky Hashim, Ph.D. Attending Clinical Psychologist, Behavioral Consultant Team
WHEN: Saturday, September 21, 2013
WHERE: Jersey Shore University Medical Center
9 a.m. - 12 p.m.
TOPICS: Dr. Margarita Smotkin - Tangorra, pediatric endocrinologist: Care and management of girls with Turner Syndrome
Dr. Stephanie Chin, pediatric cardiologist, Jane Reinerstein, registered dietician, Carol Porter, social worker, and a supervised children's program. View the agenda
REGISTER: Every guest must register
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Do you have an idea or event you would like to promote? Email details to firstname.lastname@example.org
“Beyond learning more about what is happening inside me, I met a lot of great people. I felt immediately welcomed into the TSF community with open arms. I never felt judged, which often happens being the shortest person in a room. Furthermore, I met other girls with TS for the first time in my life. I finally didn’t feel like I was alone. I could talk candidly with them about what I am going through and what I went through as a child. I’ve never felt comfortable doing that with my friends. Sure, I’ve told a few close friends what TS is and that I have it, but I’ve never went much further. As I said, I just never felt comfortable talking about something so personal. “ Jennifer
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